Bazza health update (for those long enough in the tooth to remember me!)

A

This is para aortic Lynn and now 60mm by 45mm So quite full of cancer. Surely it’s too dangerous so near aorta and risk of lymphedema. Only had SRT to prostate bed

Edited by member 31 Oct 2018 at 06:17  | Reason: Not specified

Hi Bazza

i also have para aortic lymph node involvement and had Chemo to try and sort them out which it did, only in my case they reappeared in different nodes in the same area, but you may be luckier than me with the chemo.

all the best

Roy

Pleased to read that your bone scan is clear, it’s pretty much the same here in Italy after a scan I get a DVD with the results and a conclusion letter within 20 minutes.

I had SRT to 3 lymph nodes adjacent to my spine last December pet scans since then have shown they’ve disappeared, however my last PET scan a few weeks ago showed a tumor in a lymph node in my neck, I’ve just had that zapped with 8 Gy per day for 5 days. The set up was a bit scary as your pinned down to the table via a nylon face and shoulder mask. It takes 15 minutes breathing isn’t easy, I passed the time to stop my mind straying by counting.

I truly hope you get yours sorted soon.

Cheers

Stu

So, after nine years of fighting this thucking disease and being symptom free until July this year, I have now reached the stage where chemotherapy is necessary.

I have a kidney stent down to my bladder, I haven’t a clue what my PSA is as I’ve chosen not to know and on Jan 2nd, I commence six cycles of Taxotere each three weeks. 

On 28th Dec, I have a permanent line put into my chest for the chemo, a CT scan for the baseline and bloods. A day before chemo, I have to take Prednisone, on the day and the day after followed by a daily 5mg dose for the duration of my course.

I’m really worried what this poison is going to do to me. I’m worried about extreme tiredness, I’m worried about hair loss, I’m worried that starting this marks the start of the slippery slope towards death next year. In short, I’m so, so worried. Is there any tangible benefit? Will it shrink my highly swollen para-aortic lymph nodes, will it set the cancer back? Will it deleteriously affect my quality of life? Will I ever b able to get on a plane and travel again? Is this the beginning of the end? 

I need some positive stories guys and girls. I’m 56, have a good constitution, am fairly strong and apart from the kidney pain for which I take 10mg morphine three times a day, feel well and strong. Hell, I even told the bathroom floor yesterday.

Anyone who has direct experience of this drug and was on a similar regimen to myself, I would appreciate some feedback.

Thanks guys.

Bazza

Edited by member 11 Dec 2018 at 17:54  | Reason: Not specified

I know that he was an exceptional guy but he wasn't superman. Of course you will do this and hold it together, you have believed at every stage that you would not be able to cope with the next stage and have exceeded your own limitations every time.

Plus you know I would be pretty p**sed off with you if you didn't give it your best xxx

Tony has just had his 3rd chemo infusion last Friday, same regime as you and with injections in stomach for 5 days after each chemo of 5ml of nivestim.

I was also petrified of the side effects and qol he would be getting, so far he has not lost his hair and has no really bad side effects apart from a bit of moodiness and lethargy and also weight gain due to the steroids. Tony has not felt sick and plays golf twice a week in the 2 weeks before the next infusion.Hope this helps.

regards barbara

Lyn, youre going to have to get peed off with me. I feel too well to be poisoned at this stage. Im backing out.