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User
Posted 19 Sep 2023 at 07:16
A PSA of 0.8 should be easily visible to a PSMA PET provided it is one or 2 tumours and not 1000s of micromets.

Your doubling time is probably relevant here as it's > 2 years? Which is very slow and hence NOT indicative of micromets.

I think you are doing the right thing having a PSMA scan. If you have £2000 spare a private PSMA scan and a second opinion would not hurt.

User
Posted 19 Sep 2023 at 07:24
Also was your salvage RT whole pelvis or just prostate bed?
User
Posted 19 Sep 2023 at 21:33
Cheers Francij

Prostate bed I believe

Thanks

Brian

User
Posted 19 Sep 2023 at 22:52

Ok so that means you still have some room for further RT to your pelvis if the scan finds something...

User
Posted 20 Sep 2023 at 23:46

Hi,  it's surprising that they only do psma scans at psa of 2.  I've read that having treatment much earlier is more likely to be successful.  My hospital said they'd refer me to Oncology at 0.2 and a psma scan at 0 5.  They also said patients get private scans and they'll use them.

There are probabilities on line for what might be found at different psa levels.  A single lesion could be seen well before 0.5, much lower in some cases,  but the more it's divided the less probable it will be seen.  If you're paying yourself I'd be trying to get a scan now, although if the hospital refer you and you are confident they will then you could stay with them. You need to keep them on board I'd feel you know. I haven't read your profile as yet so hope there isn't some other factor   All the best Peter

User
Posted 21 Sep 2023 at 12:04

Hi

ive had RP&RT in 2013. The purpose of the PMSA scan is if there are only isolated cells they can be dealt with via saber treatment

cheers

Bri

Edited by member 21 Sep 2023 at 19:16  | Reason: Not specified

User
Posted 25 Sep 2023 at 20:16

Wow got a phone call today to book me in for a PMSA scan in October. That was quicker than I thought. 
At least we will know if there is anything obvious floating around and if so can hopefully deal with it

Bri 

User
Posted 25 Sep 2023 at 21:23

That's good news.

User
Posted 13 Nov 2023 at 11:45
Hi guys, just had PSMA results. There is a 4mm lesion in a pelvic lymph node. But also unsure about further activity in the pelvic bone. They want a MRI to see if the issues in the pelvis bone are mets. If they are then SABR is not possible. If they are not mets they will discuss Sabr treatment. Either way they said they do not want to start HT yet as my PSA is still relatively low. Any thoughts from those who have experienced similar. Cheers.
User
Posted 13 Nov 2023 at 20:39
Oh meant to say. The Trust I am under wont start HT until PSA reaches 10 unless it starts to rocket

Cheers

User
Posted 13 Nov 2023 at 23:30

A couple of years back my onco said we would wait until my PSA got to 2.4.or even 10, before starting HT. He then changed his mind and went down the SABR route.

Hope it's not in your bones.

Thanks Chris 

User
Posted 14 Nov 2023 at 12:00
Hi Brainissac. Assume you wouldn't be able to have your pelvis zapped because it has been previously??
User
Posted 15 Nov 2023 at 00:25
Chris, the wau she was speaking I suspect it has gone to the pelvic bona

Francij- I am not sure tbh. Will speak to her about that altho if there are more than 3 mets its a no go

Cheers guys

User
Posted 21 Nov 2023 at 20:54
Well had the MRI scan of the pelvis yesterday. Now the waiting game to see if there are pelvis bone mets to join the pelvic lymph node that has some PCa

One thing I forgot to mention following my PMSA scan is that although it identified spread to the lymph node there was nothing seen in the prostate bed so I presume RP and RT did the job but maybe too late

🤷🏻‍♂️

User
Posted 22 Nov 2023 at 01:10
Aww Bri - just catching up with all this - sorry :-( But fingers crossed for a single met & SABR x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2023 at 07:31

Brian, fingers crossed for you. 

Thanks Chris 

User
Posted 21 Dec 2023 at 13:00

The urology nurse has rung me today to let me know that the MRI could not see any mets on the pelvic bone and the suspicious areas are likely to be OA. This potentially means I  currently just have the one pelvic lymph node affected (that is visible). So maybe Sabr treatment will be an option. Got to speak to Oncologist in January but she did mention previously that Sabr to the pelvic region could be risky due to the previous RT

Anyone got any thoughts on this

Cheers Bri

Oh and Happy Christmas to all

Edited by member 21 Dec 2023 at 13:01  | Reason: Not specified

User
Posted 21 Dec 2023 at 16:46

Bri, I have had two lots of SABR to two separate pelvic tumors following salvage RT. They may not treat a tumor that is too close to certain organs.

Merry Christmas to you and your family.

Thanks Chris 

User
Posted 23 Dec 2023 at 17:55

Thanks Chris. Appt mid January so will find out there

Merry Christmas to you and yours

Bri 

User
Posted 18 Apr 2024 at 18:58

So SABR treatment has been agreed. Had a planning scan and today went to sign the consent form and have a dry run ie lining me up on the Linac (RT machine). Start three intense RT sessions tomorrow

Interestingly the Dr I saw to go through the procedure, possible side effects etc said the hope was to obliterate the cancer in the lymph node. He then said after 10 years it is unlikely to have spread anywhere else and I will just need monitoring. That was a bit of a wow moment as my oncol was very definite that the treatment was not curative
Fingers crossed

Bri

Edited by member 19 Apr 2024 at 08:33  | Reason: Not specified

 
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