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Low PSA but Under Investigation - Worried!

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User
Posted 13 Nov 2018 at 15:04

Hello


I am 57 and was screened for PCa due to family history and onset of night and day time frequency of need to urinate. PSA was low at 1.1 but on DRE GP found a nodule. He said prostate was normal size andand wasn't worried but just to be sure he booked me an Ultrasound Scan. The scan showed prostate to be normal size but confirmed that I did not empty bladder and retained a significant amount.


He took advice from Urology who requested him to refer me and for me to take Tamsulosin whilst waiting for appointment to see if it helped. It didn't help at all. When I saw the consultant he did another DRE and said he needed to fast track me for MRI and TRUS Biopsy. This was because I had bialateral firmness and an irregular feeling prostate.


I had the MRI just over a week ago and the TRUS biopsy today. The Nurse told me that nothing significant was found on MRI but consultant still wanted the Biopsy and I should get those results in about 2 weeks. I must say that the Nurse that did the Biopsy was fantastic and a credit to the NHS.


I wondered if anyone on here has been investigated for similar symptoms (Firm/irregular prostate) and what was diagnosis?


Thanks

Edited by member 15 Nov 2018 at 19:13  | Reason: Typos and better subject heading

User
Posted 19 Nov 2018 at 22:59
Sorry Steve, it seems that all the regulars missed your first post. As you have no doubt googled and discovered for yourself, firmness is not a good sign so it was great that your GP ignored the low PSA and referred you just in case. Fingers crossed that all will be well and you just have some inflammation but if you do get a cancer diagnosis, order a copy of the toolkit from the number above - it explains all the different treatment options and implications.

Waiting is definitely the worst bit.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Nov 2018 at 02:41
Hi Steve,

Just to reiterate what our Matron here mentioned earlier, if you do get some unfortunate news following your biopsy results, please do order the very comprehensive free information folder (aka Toolkit) from this charity’s website. It is available as a PDF file download, and although I spend all day on this IPad, I prefer the paper version.

I gave a Toolkit to my GP last week who was very impressed with the wealth of information it contained.

Here’s hoping you won’t have to order a Toolkit at all.

Best of luck.

Cheers, John.
User
Posted 05 Dec 2018 at 15:35
I would candidly say Steve, don’t hold your breath or draw any inference from the delay in the interpretation of your results, remember, most prostate cancers are slow-growing, so what is of the utmost urgency to you, is possibly not with your urologist.

I waited five weeks for my post-operative biopsy results, and when I read the report, the remains of my gland had been in the freezer for four weeks before even being looked at! The hospital blamed a severe shortage of pathologists.

Nevertheless, I hope you get good news on the twelfth and have no need to order a bloody ‘Toolkit’! 🤞

Best of luck as ever.

Cheers, John.
User
Posted 05 Dec 2018 at 15:56
Win or lose we’ll have some booze!
User
Posted 05 Dec 2018 at 18:26
I had my biopsy on 19th October and result on 13th November

Bob
User
Posted 12 Dec 2018 at 20:07
Brilliant news - enjoy your trip
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Dec 2018 at 22:02
That's pretty positive news, all things considered, Steve. Must be a weight off your mind. Go and enjoy your holiday!

Cheers,

Chris
User
Posted 12 Dec 2018 at 22:11

what wonderful news! I’m so pleased for you! Enjoy your hols 

User
Posted 13 Dec 2018 at 01:06

Good news and bad news then.


I’m sure you’ll enjoy your TURP even more than your TRUS! Not.


A mate had a TURP recently with a green laser, and he was fine soon after, pissing like a horse, and with a hard-on like a stallion.


A shame you haven’t had the TURP prior to your boozy visit to Bratislava.


Stag do?


Cheers, John.

Edited by member 13 Dec 2018 at 06:45  | Reason: Not specified

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User
Posted 19 Nov 2018 at 21:47

19 Nov 18: still waiting for biopsy results and probably another week to wait. This is torture, trying to keep busy.

User
Posted 19 Nov 2018 at 22:59
Sorry Steve, it seems that all the regulars missed your first post. As you have no doubt googled and discovered for yourself, firmness is not a good sign so it was great that your GP ignored the low PSA and referred you just in case. Fingers crossed that all will be well and you just have some inflammation but if you do get a cancer diagnosis, order a copy of the toolkit from the number above - it explains all the different treatment options and implications.

Waiting is definitely the worst bit.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 19 Nov 2018 at 23:37

Thanks Lyn, I appreciate your reply

User
Posted 20 Nov 2018 at 00:00

Thanks. I do find the wait torturous but trying to stay positive. I even helped my wife do her pots in the garden today and I hate gardening 😂

User
Posted 20 Nov 2018 at 02:41
Hi Steve,

Just to reiterate what our Matron here mentioned earlier, if you do get some unfortunate news following your biopsy results, please do order the very comprehensive free information folder (aka Toolkit) from this charity’s website. It is available as a PDF file download, and although I spend all day on this IPad, I prefer the paper version.

I gave a Toolkit to my GP last week who was very impressed with the wealth of information it contained.

Here’s hoping you won’t have to order a Toolkit at all.

Best of luck.

Cheers, John.
User
Posted 23 Nov 2018 at 19:19
Update: I chased biopsy results today. Consultants secretary called back to say she couldn't give me results over the phone but consultant would see me again in clinic on 12 December. So......I am presuming and hoping that because there doesn't seem to be any rush that I have nothing major to worry about.
User
Posted 27 Nov 2018 at 14:57
Hi Steve,
I'm similar to yourself, I've had no symptoms, but due to family history (BRACA1) I've had yearly PSA checks. The latest in October was 5.2 followed by a 4.2 a month later. I was referred for an MRI scan which showed an issue as the Oncology Nurse put it to me.
I had a TRUS today, the results are in next week.
All this is less than a month, hats off to the NHS!!
Good luck with appointment,
I'm new to this game, but I'm assured by this forum and website that there is lots of supports out there.
Michael
User
Posted 27 Nov 2018 at 15:51

Hi Michael


Thanks for the reply. My appointment is 2 weeks today and as they don't seem to be in a rush to give the biopsy results and the fact that it is with urology and not oncology, seems to be favourable that I am not going to get bad news.


I hope your results are good. Keep us all posted on here. This is a brilliant forum and everyone's individual experience may help someone else through theirs.


Cheers, Steve

User
Posted 05 Dec 2018 at 14:58

Is there anyone else on here who had to wait 4 weeks for their TRUS Biopsy results? I have my appointment on 12 December and the wait is torture. Is it a good sign that I am not being rushed back for results?

Edited by member 05 Dec 2018 at 14:58  | Reason: Not specified

User
Posted 05 Dec 2018 at 15:35
I would candidly say Steve, don’t hold your breath or draw any inference from the delay in the interpretation of your results, remember, most prostate cancers are slow-growing, so what is of the utmost urgency to you, is possibly not with your urologist.

I waited five weeks for my post-operative biopsy results, and when I read the report, the remains of my gland had been in the freezer for four weeks before even being looked at! The hospital blamed a severe shortage of pathologists.

Nevertheless, I hope you get good news on the twelfth and have no need to order a bloody ‘Toolkit’! 🤞

Best of luck as ever.

Cheers, John.
User
Posted 05 Dec 2018 at 15:47

Thanks John. The consultant had my lab results within 10 days of the biopsy. I phoned his secretary chasing results and she confirmed he had them but would not discuss them on the phone and that he wanted to see me in clinic and earliest appointment was 12 Dec. Still hoping for a good result, I am going to Bratislava for a few days on 15th and it would be good to celebrate. Definitely having a few beers though whatever the outcome 😁

User
Posted 05 Dec 2018 at 15:56
Win or lose we’ll have some booze!
User
Posted 05 Dec 2018 at 18:26
I had my biopsy on 19th October and result on 13th November

Bob
User
Posted 05 Dec 2018 at 19:26

I guess I shouldn't jump to the conclusion that all is ok 

User
Posted 12 Dec 2018 at 19:04

12 Dec 18:  i saw the consultant today to get my biopsy result and the good news is no cancer was found.


The pathology report said they did find atypical cells but the  consultant said he did not want a repeat biopsy because MRI was clear and PSA is normal. He would just like to monitor it so I won't be discharged to GP.


I also had a flow test and ultrasound after it and he said I have a serious flow and retention problem and i am  at high risk of acute retention. He said I need a resection of my prostate (TURP surgery) and he wasn't recommending it he was telling me I need it!!! He has put me on list for surgery and put me on a drug until I have the surgery.


So not great that I need the TURP but could be a lot worse. He took a lot of time to explain the procedure and the possible side effects and what could go wrong.  He has done 500 TURPS and not had one patient who has suffered incontinence so am happy about that. 


I go to Bratislava on Saturday and intend to have a bloody good time!

User
Posted 12 Dec 2018 at 20:07
Brilliant news - enjoy your trip
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 12 Dec 2018 at 22:02
That's pretty positive news, all things considered, Steve. Must be a weight off your mind. Go and enjoy your holiday!

Cheers,

Chris
User
Posted 12 Dec 2018 at 22:11

what wonderful news! I’m so pleased for you! Enjoy your hols 

User
Posted 13 Dec 2018 at 01:06

Good news and bad news then.


I’m sure you’ll enjoy your TURP even more than your TRUS! Not.


A mate had a TURP recently with a green laser, and he was fine soon after, pissing like a horse, and with a hard-on like a stallion.


A shame you haven’t had the TURP prior to your boozy visit to Bratislava.


Stag do?


Cheers, John.

Edited by member 13 Dec 2018 at 06:45  | Reason: Not specified

User
Posted 13 Dec 2018 at 09:37

Thanks John. Not a stag do, with OH and 2 other couples but we all do like a good night out! How are you doing?

User
Posted 13 Dec 2018 at 10:16

I’m fine, apart from E.D. and the missing in action 2”!


Off for a large dose of vitamin sea (Red) tomorrow for Christmas. Maybe the sunshine will encourage a spurt of growth in Winter😉.


Cheers, John.

Edited by member 13 Dec 2018 at 11:06  | Reason: Not specified

User
Posted 13 Dec 2018 at 15:35

Haha. I hope the sun does the magic for you. A bit of sun is always good.

 
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