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My Journey.

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User
Posted 08 Jan 2019 at 18:58

Last two days have been days of fairly pointless appointments.
First one yesterday was with the nurse at my GP surgery for my Prostap injection, when I told her that I had an appointment with the oncologist today she said that she wanted to delay the injection until after the appointment to ensure that the oncologist wanted to proceed with the HT. seemed pointless to delay it to me but as it was only for two days I agreed, as she said if he did say he wanted to stop the HT she wouldn’t be able to take it away. I did get her to take a blood test so I would have the results today.

Well today was a bit of a farce got to Hospital in plenty of time to ensure I was able to park got to the oncology department with 20 minutes to spare. Finally got called in over an hour later only to be told that my oncologist had been called away on urgent business and I would have to see a substitute.
She just went over a lot of details that I had been over with numerous other doctors.
She didn’t seem to have much idea of my situation as she said that I would be having 37 fractions when I have been to that I would be getting 20. To sum it up she just said that I was no logged onto the system for RT and I would have to have another appointment with my oncologist to sign the consent forms along with other appointments in preparation for my art.

One good thing from all this is my PSA has dropped from 7.5 to 2.8 on the HT.

 

End of witter  

Bob

Edited by member 08 Jan 2019 at 18:59  | Reason: Not specified

User
Posted 08 Jan 2019 at 19:50

What a farce Bob. Are you having your PROSTAP injection tomorrow?

The nurse should not be anticipating the oncologist changing your treatment, she should have just given you the injection. It’s not in her realm to make that kind of decision.

The positives are that you are on HT and PSA is coming down. Being on HT for slightly longer before RT will possibly even be beneficial on the end. 

Did you get a new appointment with the oncologist?

Ian

Ido4

User
Posted 08 Jan 2019 at 20:04

Originally Posted by: Online Community Member

What a farce Bob. Are you having your PROSTAP injection tomorrow?

The nurse should not be anticipating the oncologist changing your treatment, she should have just given you the injection. It’s not in her realm to make that kind of decision.

The positives are that you are on HT and PSA is coming down. Being on HT for slightly longer before RT will possibly even be beneficial on the end. 

Did you get a new appointment with the oncologist?

Ian

Yes i am having my Prostap jab tomorrow. on the plus side i got the oncologist to give me a note for the nurse to give me the flu jab as it was refused a couple of weeks ago due to me not being on active treatment.

will hav to wait for the hospital to get back to me with my new appointment.

Bob

User
Posted 15 Mar 2019 at 15:32
First contact with Radio Therapy today given program for treatment and told what will I will need to go through each day. I will be having 20 fractions.

CT scan next Thursday then all ready for treatment to start on 10th April.

At last things are moving forward

User
Posted 08 Apr 2019 at 16:54
Had my CT scan and Tatoos last week today I saw my oncologist for the first and probably the last time. The result from the blood test is down to 1.8.

The consultant has said that I will not need to have any more hormone injections after RT so hopefully that will be it for me apart for the 3 monthly check

User
Posted 09 Apr 2019 at 13:03

Great news. 

User
Posted 09 Apr 2019 at 14:30
Good luck with the RT, Bob
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 May 2019 at 14:14
I am now nearing the end of my journey. Today i finished my RT and rang the bell. RT was a bit of a trial at times making sure that you had enough fluid in your bladder but not that much that you cant hold it. I had problems with both, having yo sit on the naughty chair with a cup of water and having to jump off the bed just as the scanner was about to start. The nurses were brilliant though and it was never a problem and they only had words of encouragement. To be honest i don't think i could have done it without them.the camaraderie in the waiting room was great to start we were a group of about 5 who had the same time appointments every day and we used each other to bounce off any problems and side effect. I found ringing thr bell quite emotional as i thought of my brother who never made it that far.

Strange as it sounds i think i am going to miss those early mornings

Next step oncologist appointment 26th June

User
Posted 10 May 2019 at 22:01
Yes good feeling to have got RT completed. You should now be monitored by at least PSA tests on a regular basis. If results are good the time span between tests may be increased. RT goes on working for anything up to about 2 years so you should achieve your nadir within this time frame. It is important that you continue to be monitored because sometimes some cancer cells escape the RT or are radio resistant and call for further treatment even many years later. So for a time at least your cancer journey continues.

I hope your RT serves you well and that side effects are minimal.

Barry
User
Posted 26 Jun 2019 at 18:24

Had my follow up appointment with my oncologist today. Results from my last blood test are 0.9 so the oncologist has told me I am to have blood test every 3 months and he will see me again in a year unless my PSA rises above to.

I think I am now officially in remission.

Good luck to you all with your treatments and the future

Bob

Edited by member 27 Jun 2019 at 07:36  | Reason: Not specified

User
Posted 26 Jun 2019 at 23:08
Brilliant
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Jun 2019 at 19:52

Great news.

Ido4

 
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