High PSA nearly 6000 at diagnosis.

I wonder if you are a world-record holder with that figure?

I am not sure how astronomic PSA such as your initial score correlates exactly to future outcomes. Others here will no doubt comment.

But anyway, great news that your treatment plan is obviously working, and I wish you all the best for the future.

Cheers, John

AC

Thanks for your comments. This is all still a new experience for me but I was amazed after just one month on Degarelix my PSA dropped to around 1600. Would have liked to have kept with it but my Oncologist decided to switch me to Prostap. More convenient as only 3 monthly injections (for life apparently). The team treating me have been brilliant so would trust them to keep up the progress. 

Thanks

David

Not posted anything for a while because still feel much of a newbie on this ’journey’, so to speak and really don’t think I could add anything to all the knowledge you guys and your carers come up with. However, since my first post have had five cycles of chemo (docetaxel) together with initially degarelix but now prostap. PSA now down to 17.4 (from initial 5806) which have to put down to fantastic care and treatment from Queen’s Hospital, Burton on Trent. they insisted on early chemo within a month of diagnosis which possibly made all the difference. Home and diet regime drastically changed and supervised by my good lady who like all the carers on this forum supports and encourages constantly. Chemo has been fine, few side effects just a bit of hair thinning, the expected tiredness and annoyingly tingling and numb fingers. All in all feel very fortunate compared to some but my problem because of this is that I don’t think I have come to terms with having PCa which puts me almost in denial. I know full well that sometime in the future it will get personal and nasty between me and the beast and hope to be strong enough to handle it. 

Good luck and best wishes for 2019 to all you guys and will continue to read your posts and learn.

David

Hi AC

yep, PSA has dropped every time so far following start of chemo. Not so spectacular now, obviously. My 6th chemo cycle due 17th Jan so hoping for maybe sneeking to single figures, who knows. Then just the Prostap injections from Feb and meetings with Onco and more scans.  Hope you get to single figures yourself.

David

If any of the above, the PSA should drop again with the next injection so I can see why the onco wants to wait until after that.

Quick update. Meeting with oncologist yesterday. PSA up again, now 500. After end of chemo in January was 10.9 then 6.6 in March. Then on the rise to 63 in May and now up again. This is worrying and unexpected. Oncologist has requested new bone scan and CT scan then review meeting in just three weeks time. Nurse said plenty of things in the cupboard so not get too worked up about it. 

Any thoughts on where treatment might go from here?

Everything else worked out well on blood tests and apart from tiredness and occasional back pain, feel fine, so confused as to what’s going on. 

Also updated profile but with no success, doing something wrong I expect. 

David

Thanks for reply.

Probably an obvious question but how do they differ from Prostap that I currently have.

Thanks

David

David,

Check for a local prostate cancer support group. Many of them run weekly exercise classes cheaply or for free. It is the main way to combat tiredness.

Find a local support group

Wishing you the best for your new treatment.