High PSA nearly 6000 at diagnosis.

User

Posted 18 Sep 2019 at 17:50

David

Obviously we re all different but since I presented with a PSA of 1547 in Feb 2017my treatment regime has been—

Immediate

Degaralix then Prostap/3 hormone injections.

17 infusions of chemo—Docetaxel and/or Cabazitaxel.

2 months on Abiraterone

2 months on Enzalutamide.

6 x infusions of Zometa bone hardener.

Now awaiting trials and/or private treatment possibly Lutetium 177.

So as you can see there are plenty of options for those of us with high PSA. Most of which unfortunately result in fatigue and tiredness.

Let’s just hope they can sort you out soon.

Keep the Faith.

User

Posted 18 Sep 2019 at 18:19

Thanks for that Valleyboy.

We seem to be in the minority with high PSA so good to know of the options. My oncologist is so good and positive that I trust her advice totally so hopefully she’ll get it sorted.

david

User

Posted 04 Oct 2019 at 00:40

DBlue, Do take care. Hope things are going better for you. The Tempest

Kathleen in Pennsylvania

User

Posted 06 Oct 2019 at 12:28

Well two weeks on Zytiga and my bloods came back ok so carrying on for time being. PSA has stabilised a bit from it’s meteoric rise, now up slightly to 3480 and Oncologist not too concerned as early stage on Zytiga. Next review in two weeks.

more annoying is the ongoing Caude Equinas syndrome business. Still numb in nether regions, still with catheter because bladder being very uncooperative and still fatigued. Made worse because forced myself to go for a walk to get some exercise and managed to strain a muscle in my groin so semi laid up again. Think there needs to be more awareness of Caude Equinas as it has similar outcomes to SCC but I’d never heard about it.

Anyway, onwards and upwards.

David

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