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55 Years old Just diagnosed with prostate cancer

User
Posted 03 Dec 2018 at 23:20
Dear Friend

I thank you for your positive comment.

But I'm already having less sleepleness nights.

Many thanks also for you making me feel better

XxxxX

User
Posted 03 Dec 2018 at 23:36

Peter 

I just looked at the link that you have forwarded to me 

Its a very good one  

Many thanks my friend 

R.

User
Posted 04 Dec 2018 at 18:21

Dark Rainbow, I was diagnosed at 50 with a similar presentation. I hope my profile will give you some comfort.

 

All the best 


Flexi

User
Posted 04 Dec 2018 at 22:50

Good Evening 

Fkexie 

I just looked at your profile info 

That made me WOOOOWW how did you go all those things th through unbelievable!

So many appointments. So many discussions. Plus disappointments and pain pain more pain. 

How did you survive until so far unbelievable. 

Where did you find all those energy from?

You seem a strong man with plenty times. 

Not sure if I could go  through those  what you have been through. 

Yes after my biopsy operation I was called to see A DR  but instead seen by a nurse same as yours she told me with unprofessional way that I have a cancer!!!

Anyway my friend. Thanks for your kind contact with me.

Today Had a phone call from the hospital where they were supposedto carry out my surgery operation was told by her that my operation has been cancelled. 

So that put me under more stress. 

Good night my friend 

In just taken a sleeping tablet that makes me sleepy 

Chat soon 

Dark Rainbow 

Ps.on your profile you did not mention your present situation.?

Hope your ok anyway 

 

User
Posted 05 Dec 2018 at 09:10

Good Morning All 

This is an update about my situation. 

Yesterday I had a phone call from the hospital /Medical team's PA 

I was told that my surgery operation This saturday Has been cancelled. 

I couldn't say why I couldn't Ask why I was walking on the very busy street was noisy couldn't ask ((was walking in Oxford street central London)

All I said .OK than what is the next step?she said exactly like this..YOUR ON THE LIST WE WILL CONTACT WITH YOU.

I said O.K.. 

So I was looking forward to have the operation this weekend prepared most of the thing's ....now all cancelled and that added more stress more pressures. Also yesterday's a gentlman (flexi)

Contacted with me from here I read his experiences (profile)

That made me scare really his profile is not different than a horror movie. Poor man after the operation he had to rush to AE couple of times because of he couldn't have wee etc he had to insert catheter him self etc.has anyone gone through the way he did?

Thank you all in advance for your answer 

Darkrainbow 

User
Posted 05 Dec 2018 at 11:55

DR

I tend not to reply to newbies seeking the experience of others,  I would hate too put anyone off having treatment. Check out my profile you will see Flexi and I have similar problems. We are in a minority and over the 4 plus years on here I have only found a handful of people with similar experience but read hundreds of success stories. Best wishes for the op.

Thanks Chris

User
Posted 05 Dec 2018 at 22:54
I may be getting cynical but is anyone else wondering .... ?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Dec 2018 at 23:00

Me too

User
Posted 05 Dec 2018 at 23:07

Lynn 

Please could you be more specific please 

Thanks 

User
Posted 05 Dec 2018 at 23:50

Not sure what is going on here.  You posted your last reply on this thread at 23.07hrs asking Lyn to clarify something.

You replied to Chris at 22.28hrs on this thread telling him that the operation had been cancelled.  But you have also started another thread called 'Medical Neglect' and posted on the new one at 23.03hrs that your operation is back on.

This is what you wrote: "I was supposed to be having RS this coming saturday but they phoned me up yesterday and said operation has been cancelled. Than this morning they phoned me up again and  I can have the operation tomorrowmorning!"

Why did you not tell Chris when you knew that the operation was back on?  Why pretend it was still cancelled?  

Why have you also started another thread when you should have replied in the original one as it is the same subject?  You are accusing a nurse of medical neglect?  For what?  Doing her job?  None of this makes any sense.

The more I read of your posts, the more unbelievable you become.

Edited by member 05 Dec 2018 at 23:58  | Reason: Not specified

User
Posted 06 Dec 2018 at 02:06
It would be helpful to show your diagnosis and major developmentsbunder your Profile/Bio, as it tends to be lost if only in threads which members have to spend time searching for.
Barry
User
Posted 06 Dec 2018 at 05:29
GOOD MORNING

Barry..Sure Noted.

True since I joined here it's sometimes hard to find some friends answers/comments.

Promise would do what you say.

Thanks for your advise

DR

User
Posted 06 Dec 2018 at 06:37

Is it just coincidence or the time of year but we seem to be getting a few unbelievable " stories".

Ann

User
Posted 06 Dec 2018 at 07:33
DR, you've ignored the very reasonable question you've been asked. In another thread you said that yesterday morning you'd been told that your op was back on, and yet in this thread, late yesterday you were still saying it had been cancelled. Why would you do that?

This entire thread is starting to smell very strongly of a hoax to me.

Chris

User
Posted 06 Dec 2018 at 07:58

Originally Posted by: Online Community Member

Is it just coincidence or the time of year but we seem to be getting a few unbelievable " stories".

Ann

 

It is more than coincidence. I was thinking how interesting it is that a few days after I posted to someone to get advice about sperm freezing, we have two new members who have both, amazingly, been offered sperm freezing. As far as I know, we have only ever had one member who had that, and he died a couple of years ago. That’s how rare it is. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Dec 2018 at 08:13
Just messaged you Lyn, but your inbox is full.
User
Posted 06 Dec 2018 at 08:25
I personally think DR is a genuine person with a limited command of English, but are there a regular crop of impostor visitors with fake sob stories?

If so, how sad must they be?

Cheers, John.

User
Posted 06 Dec 2018 at 14:27

Hi everyone,

I wanted to post a reminder about the purpose of our online community is to provide a welcoming and supporting place where people can share information and support each other through personal experiences of prostate cancer and prostate problems.

If you see a message on the community or receive a private message that you are concerned about please tell us by emailing your concerns to: onlinecommunity@prostatecanceruk.org.

Every post has a report facility on it so you can report a message you have concerns about and the moderation team will be notified and can then take appropriate action.

Best wishes,
Carol

Digital Manager
Prostate Cancer UK

 

 

User
Posted 06 Dec 2018 at 18:44

Carol,

I have tried to report posts to you in the past but this is what happens: 

I click the 'report post' tab.

It opens and I write my post.

I click on 'send'.

A pop up box appears that says, 'are you sure you want to report this post?'

I click yes.

Another screen appears and says 404 not found.

So I cannot report it???

 

Of course we all want to help someone here, but there will always be trolls and sad people who post what they do for whatever reason is applicable to them.  Had DarkRainbow not posted his second thread, while there was some doubt in his first his assertion that the operation was off then on again but misled another member by continuing the deception, we would be none the wiser.  The second thread is a moan about the nursing staff but he has already stated this in the first.  Something is not right!!!  

User
Posted 06 Dec 2018 at 19:38

Carol.   Do you think this person is genuine?

Regards

Ann

 

 
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