Hi Prostate forum pals! I was diagnosed about a year or so ago and have been doing fine. I am on 'Active Surveillance' and having regular PSA's every three months. So this has been average, with my 'scores' going up and down from 5.6 at the start and up to 6.3 in May this year, up again to 7.0 in August and back down again (thankfully!) to 6.0 in November.
My partner has been worried though, as with Bill Turnbull, recent newscaster on the BBC Breakfast programme, having been diagnosed and having seemingly similar symptoms to me. That is pains in the back, hips and legs etc. (Mostly caused I thought, by my ten-year bout of Osteo Arthritis). So off I toddled to the doctor to get stronger painkillers. They didn't help, so I went back yesterday, asking if maybe my Osteo Arthritis, had turned to the Rheumatoid variety. While not mentioning the cancer.
The doctor saw that I have PC and instantly said, (while arranging up to date X-rays on my lumbar/hips region), that maybe the cancer has spread to the bone, making it a lot more serious! He also said that, with my fairly steady PSA, which he called high, though I would have thought it low or average, that it shouldn't be that. I thought I was safe with a fairly low PSA? One doctor said a while back that, as long as the PSA level remains stable, that I should still be OK and that they would only be concerned if it shot up to over 12 or more in a 3 month period.
So now I'm confused and worried. My brother had his prostate removed the moment he heard the word 'cancer'. His firm covered him with private health insurance and his op was carried out within 10 days! Maybe I should have had the same op? Although it would have taken a bit longer for me.
So whaddya think? Should I be worried? Or is my doctor (a locum I haven't even seen before) possibly on to something? I did try this Pomi-T stuff, but it cost too much and going by my PSA results, didn't make much of a difference, as I haven't had any since May this year.
Please help and many thanks for doing so.