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User
Posted 09 Dec 2018 at 04:43

I was diagnosed with prostate cancer on Tuesday 4th December, Gleason score 3+4, PSA 7.9. I was given the option of surgery or radiotherapy. I was told to go away and consider which I required and get back to my liaison person at the hospital. After reading the information I am tending towards surgery but required more information to make an informed choice. Also, I wanted to know whether I could have an MRI, CT scan or bone scan to see if the cancer had spread. I got back to the liaison person but was told I could not see the radiotherapy consultant unless I was going to go down that route and I could not have an MRI, CT or bone scan if I opted for surgery, but could have an MRI if I was going down the radiotherapy route. I am therefore at a crossroads not knowing which way to go.

User
Posted 09 Dec 2018 at 16:56
Hi Ian,
Thank you for your very welcome advice. I thought the whole first telling I had seemed very rushed and chaotic, you had just been told you have cancer, the consultant is trying to get across his message, the nurse is butting in cutting him off and you are sent out with a load of bumf to digest on your own.
Having read your profile you seem to have been through the mill. I am glad things seem to be moving in the right direction, I hope things go on in the same way.
Thank you once again for you advice, much appreciated.
Paul
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User
Posted 09 Dec 2018 at 09:52
Please download or order the ‘Toolkit’ information folder from this website. It contains invaluable information to help with your decision.

Of course you can get a second opinion from an oncologist, so insist on one, and ask nicely for a bone scan and an mpMRI, but ask the consultant, or the secretary, not ‘the liaison person’.

Others here will no doubt contribute further opinions.

Cheers, John.
User
Posted 09 Dec 2018 at 10:13

Hi John,


Thanks for your reply most helpful.

User
Posted 09 Dec 2018 at 14:13
Hi Trixiebelle.

I am about 4 weeks ahead of you I was diagnosed 13th November with very similar results as yours so I know exactly what you are going through.

Take your time, the only good thing about PCa is that it is slow growing so you don’t need to rush your decision.

Read all you can the PCUKweb site has everything you need to know. Check the pros and cons of all the treatments you have been offer then you will be able to make an informed choice as to which way to go.

We are all deferent and make our choices for different reasons.

As is said by others here not a club you really want to be a member of but welcome.

Bob

User
Posted 09 Dec 2018 at 15:59
Hi Bob,
Thank you fot that. How are you going?
Paul
User
Posted 09 Dec 2018 at 16:33
Trixibelle, how can you, the surgeons or the oncologists make an informed decision without an MRI?
Surely both need to know where exactly the cancer is in order to treat you.
That’s not helpful. I saw a surgeon and an oncologist to discuss my situation and options. That did take time though, a few weeks between seeing the surgeon and then seeing the oncologist.
I didn’t get offered a bone scan at that time and I was unaware that would be useful in decision making.
I would telephone the specialist nurses at PCUK for advice on 0800 074 8383.
Best wishes,
Ian
User
Posted 09 Dec 2018 at 16:56
Hi Ian,
Thank you for your very welcome advice. I thought the whole first telling I had seemed very rushed and chaotic, you had just been told you have cancer, the consultant is trying to get across his message, the nurse is butting in cutting him off and you are sent out with a load of bumf to digest on your own.
Having read your profile you seem to have been through the mill. I am glad things seem to be moving in the right direction, I hope things go on in the same way.
Thank you once again for you advice, much appreciated.
Paul
User
Posted 09 Dec 2018 at 17:00

Originally Posted by: Online Community Member
Hi Bob,
Thank you fot that. How are you going?
Paul


 


i have a post running at the moment called My Journey, if you read it you will see my decision and how I reached it 


 


Bob

User
Posted 09 Dec 2018 at 17:05
Thanks Bob will look,at 'Your Journey' with great interest. Please keep in touch.
Paul
User
Posted 15 Jan 2019 at 14:52

Hi Paul


I was diagnosed in September with very similar results (PSA 7.9; Gleason 4+4). I was also given 2 options - surgery (robotic) and radiotherapy. Given my (relatively young) age of 59 and my health (healthy other than the cancer), my urologist strongly recommended the robotic surgery. 


To be honest, one other reason why he may have recommended the surgery was because he is a surgeon himself but I am happy with the choice I made. He strongly believed that I would make a speedy recovery and should the surgery unable to remove all traces of cancer, we could always add the radiotherapy. My surgery took place towards the end of November and I am recovering well, although I do have some incontinence issues. This is getting surely better though!


I do, however, strongly recommend that you insist on a bone scan and MRI. I was offered both and these results really helped me to make a wise choice and to have confidence in my treatment. These scans are also crucial in determining your cancer stage. 


All the best!

 
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