guidance required

Of course you can get a second opinion from an oncologist, so insist on one, and ask nicely for a bone scan and an mpMRI, but ask the consultant, or the secretary, not ‘the liaison person’.

Others here will no doubt contribute further opinions.

Cheers, John.

I am about 4 weeks ahead of you I was diagnosed 13th November with very similar results as yours so I know exactly what you are going through.

Take your time, the only good thing about PCa is that it is slow growing so you don’t need to rush your decision.

Read all you can the PCUKweb site has everything you need to know. Check the pros and cons of all the treatments you have been offer then you will be able to make an informed choice as to which way to go.

We are all deferent and make our choices for different reasons.

As is said by others here not a club you really want to be a member of but welcome.

Bob

Surely both need to know where exactly the cancer is in order to treat you.

That’s not helpful. I saw a surgeon and an oncologist to discuss my situation and options. That did take time though, a few weeks between seeing the surgeon and then seeing the oncologist.

I didn’t get offered a bone scan at that time and I was unaware that would be useful in decision making.

I would telephone the specialist nurses at PCUK for advice on 0800 074 8383.

Best wishes,

Ian

i have a post running at the moment called My Journey, if you read it you will see my decision and how I reached it 

Bob

Hi Paul

I was diagnosed in September with very similar results (PSA 7.9; Gleason 4+4). I was also given 2 options - surgery (robotic) and radiotherapy. Given my (relatively young) age of 59 and my health (healthy other than the cancer), my urologist strongly recommended the robotic surgery. 

To be honest, one other reason why he may have recommended the surgery was because he is a surgeon himself but I am happy with the choice I made. He strongly believed that I would make a speedy recovery and should the surgery unable to remove all traces of cancer, we could always add the radiotherapy. My surgery took place towards the end of November and I am recovering well, although I do have some incontinence issues. This is getting surely better though!

I do, however, strongly recommend that you insist on a bone scan and MRI. I was offered both and these results really helped me to make a wise choice and to have confidence in my treatment. These scans are also crucial in determining your cancer stage. 

All the best!

That's great. Now you can go ahead knowing those scans are clear.

All the best,

Ian

Heigh Ho, such is life.

Just an update.

Had my op on Monday 8th April. Have spent the last 7 days in hospital. I came home last night. 

The seems op to have gone ok and will have to wait and see what happens in the coming weeks.

one question has anyone been given Inhixa injections to counter DVT's?

If so have they given you terrible sweats?