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Daily Cialis 5mg, no nerves spared

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User
Posted 24 Dec 2018 at 03:41

Hi, age 57 had RP last September but was told no nerves could be saved.

So I have total ED but the consultant I saw last week who was not my surgeon said to keep taking the daily 5mg Cialis.

I was a bit puzzled by this as I thought if the nerves were lost I would never be able to have a natural erection again.

He said it has been known for the nerves to grow back.

Has this ever happened to anyone here?

Thanks

Tony.     

User
Posted 24 Dec 2018 at 07:51
I am six months after surgery and the only time I have any tumescence is when having a crap. I had nerve-sparing on one side and take daily Cialis 5mg, which has no effect so far but which worked well before.

I can still have a pleasurable orgasm, (albeit of a lessened intensity) and Her Loveliness was never that keen on penetrative sex anyway, I am still breathing, so what’s not to like?

Cheers, John

User
Posted 24 Dec 2018 at 11:28

Hello Tony

 

Sorry to hear your news, but don't despair.

I had non nerve sparing surgery in 2016. Within a few months I started to have some erectile response, and this news caused the consultant to prescribe Viagra (generic) 100mg.  By the time of the first anniversary of the surgery I was getting maybe 80% of what I had pre-surgery, but only with the chemical support.

I changed to Cialis (again the 'event' dose -  20mg this time) around  1 year ago, as it has a longer half-life than viagra, and when Cialis came off patent and was approved by the local CCG, I switched to the 5mg daily dose. The result is now, nearly 30 months since surgery, I have 90% of my pre-surgery function 'on demand'. Without the chemical support it's still satisfactory for the intended purpose, but  not as robust or perhaps long lasting.

My consultant Urologist describes such recovery as unusual but not rare, and says the biggest predictor of recovery is pre-surgery function. You will read on these pages that such recovery is impossible or only possible in the event the  nerves were left in-situ. I offered this possibility up to my surgeon and got the shortest of shrifts in response, including the half-joking comment 'so the pathologist is in on it too'?

I would strongly agitate for the daily dose were I in your shoes. And don't despair.

 

 

User
Posted 24 Dec 2018 at 06:45
Not sure about this at all , however the Cialis will undoubtedly keep things warm down there and much more blood flow. It isn’t just the nerves that need healing. I really really hope you are using a pump daily at least to keep things used to be being engorged and stretched and elastic , because if you don’t even when you use an injection it will be a disappointment. I still use it 3 1/2 yrs on each day i shave although my erections are fully returned. Good luck
User
Posted 24 Dec 2018 at 07:20

 Tony

I am now just  over four and a half years post op.I was" supposedly "non nerve sparring but still get tumescence of the penis, but sadly no standing to attention.  My surgeon said it is possible my network of nerves have made a new connection or were not in the "normal" location. 

My on going stricture has meant the use of the pump has not been quite up to CJs regime  but when I do use it  can still get an almost pre op length and girth and the flaccid health and size is definitely pre op  size. There was a suggestion that use of the pump might be a aggrevating the stricture, so I have not used the pump as often as I perhaps should have done.
I was prescribed 100 mg  daily sildenafil and although it does not work as it would with a fully nerved/ complete male it has helped keep my penis healthy, exercise of the penis has probably also helped to maintain the health of the penis. 

Finally,You do not need an erection to have intercourse and we have mastered the technique of flacid intercourse.

All the best for your treatment and recovery.

Thanks Chris

Edited by member 24 Dec 2018 at 07:22  | Reason: Layout

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User
Posted 24 Dec 2018 at 06:45
Not sure about this at all , however the Cialis will undoubtedly keep things warm down there and much more blood flow. It isn’t just the nerves that need healing. I really really hope you are using a pump daily at least to keep things used to be being engorged and stretched and elastic , because if you don’t even when you use an injection it will be a disappointment. I still use it 3 1/2 yrs on each day i shave although my erections are fully returned. Good luck
User
Posted 24 Dec 2018 at 07:20

 Tony

I am now just  over four and a half years post op.I was" supposedly "non nerve sparring but still get tumescence of the penis, but sadly no standing to attention.  My surgeon said it is possible my network of nerves have made a new connection or were not in the "normal" location. 

My on going stricture has meant the use of the pump has not been quite up to CJs regime  but when I do use it  can still get an almost pre op length and girth and the flaccid health and size is definitely pre op  size. There was a suggestion that use of the pump might be a aggrevating the stricture, so I have not used the pump as often as I perhaps should have done.
I was prescribed 100 mg  daily sildenafil and although it does not work as it would with a fully nerved/ complete male it has helped keep my penis healthy, exercise of the penis has probably also helped to maintain the health of the penis. 

Finally,You do not need an erection to have intercourse and we have mastered the technique of flacid intercourse.

All the best for your treatment and recovery.

Thanks Chris

Edited by member 24 Dec 2018 at 07:22  | Reason: Layout

User
Posted 24 Dec 2018 at 07:51
I am six months after surgery and the only time I have any tumescence is when having a crap. I had nerve-sparing on one side and take daily Cialis 5mg, which has no effect so far but which worked well before.

I can still have a pleasurable orgasm, (albeit of a lessened intensity) and Her Loveliness was never that keen on penetrative sex anyway, I am still breathing, so what’s not to like?

Cheers, John

User
Posted 24 Dec 2018 at 11:28

Hello Tony

 

Sorry to hear your news, but don't despair.

I had non nerve sparing surgery in 2016. Within a few months I started to have some erectile response, and this news caused the consultant to prescribe Viagra (generic) 100mg.  By the time of the first anniversary of the surgery I was getting maybe 80% of what I had pre-surgery, but only with the chemical support.

I changed to Cialis (again the 'event' dose -  20mg this time) around  1 year ago, as it has a longer half-life than viagra, and when Cialis came off patent and was approved by the local CCG, I switched to the 5mg daily dose. The result is now, nearly 30 months since surgery, I have 90% of my pre-surgery function 'on demand'. Without the chemical support it's still satisfactory for the intended purpose, but  not as robust or perhaps long lasting.

My consultant Urologist describes such recovery as unusual but not rare, and says the biggest predictor of recovery is pre-surgery function. You will read on these pages that such recovery is impossible or only possible in the event the  nerves were left in-situ. I offered this possibility up to my surgeon and got the shortest of shrifts in response, including the half-joking comment 'so the pathologist is in on it too'?

I would strongly agitate for the daily dose were I in your shoes. And don't despair.

 

 

 
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