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a bout to start rt

User
Posted 31 Dec 2018 at 13:42

I go for the setting up of my rt on 2/01/19 . After locally advanced pca diagnosis in august 2018.Been told I will have 35 sessions any advice out there on this treatment. also at meeting with the onco they said i was "no mo"which I understand but said there may also be a problem with "microscopic" issues which may become apparent later which Ido not  grasp. It also could reduce my chances of a "curative" recovery.So after the original diag. of "no mo"which is apparently curative  the addition of these microscopics  "complicates" any  possible long-term  recovery. Any ideas bout these.

             Ta.

User
Posted 31 Dec 2018 at 15:00

I don't understand what "no mo" means - can you explain?

I think what they're saying is that you may have microscopic amounts of cancer cells that have spread elsewhere in your body, but which are currently too small to detect. Or, of course, you may not - that's the problem with something being undetectable!

I'm in the same boat, by the way. My PSA at diagnosis was 32, which is pretty high for localised PCa (which is my current diagnosis), but no external mets detected. I have my RT planning session on 4th Feb, so I'm about a month behind you. In my case I've been told they're going to irradiate both the prostate and the surrounding lymph nodes, to try to destroy any cancer cells that may have spread there.

If you've not already done so, I'd suggest downloading the information sheets that are available on this site - they're extremely useful. The PCUK nurses (freephone number at the top of the screen) are also incredibly helpful.

All the very best for your treatment,

Chris

Edited by member 31 Dec 2018 at 15:03  | Reason: Not specified

User
Posted 31 Dec 2018 at 15:15
The N0 indicates that there s no lymph node involvement - N stands for Nodes.

M0 means there is no cancer spread to the bones or major organs - M stands for metastases.

So your result should look something like T3 G7(3+4) N0 M0

The T tells you whether the cancer is tiny, a bit bigger but still inside the prostate gland or has broken out of the edge and is growing on the outside of the gland. Yours is locally advanced which is probably T3 or could be T4.

The G tells you how distorted the cancer cells are, 3 being the least distorted and 5 being the most distorted. They add together to two most common patterns they can see in your biopsy samples.

The person who mentioned the possibility of micromets may just have been trying to manage your expectations a little bit. If they had reason to believe you definitely have micromets, they would not be offering you curative treatment so it sounds like he was simply saying this treatment regime should cure you but years down the line it might come back.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jan 2019 at 18:51

Originally Posted by: Online Community Member
locally advanced pca ... "no mo" ... "microscopic" issues which may become apparent later

Locally advanced, but no detected spread means you are stage 3: the tumour has erupted through the prostate capsule, but no further. This means that while they detected no metastases, or local (node) spread, it is theoretically possible that there has been some spread at a microscopic level that cannot be detected by scans.

The two key points of radiotherapy are getting the fluid intake right to achieve a full bladder each time (unless you've been told different), and ensuring your bowel is empty each session. Both of these are to ensure that the tumour is in the same place once they've lined up the machine against your tattoos, to get maximum benefit.

Get them right and the radiotherapists will adore you. Get it wrong and prepare for the Wrath Of Khan  :)

I'm four years ahead of you; no spread so far (touches head).

Edited by member 01 Jan 2019 at 18:54  | Reason: tidying

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

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User
Posted 31 Dec 2018 at 15:00

I don't understand what "no mo" means - can you explain?

I think what they're saying is that you may have microscopic amounts of cancer cells that have spread elsewhere in your body, but which are currently too small to detect. Or, of course, you may not - that's the problem with something being undetectable!

I'm in the same boat, by the way. My PSA at diagnosis was 32, which is pretty high for localised PCa (which is my current diagnosis), but no external mets detected. I have my RT planning session on 4th Feb, so I'm about a month behind you. In my case I've been told they're going to irradiate both the prostate and the surrounding lymph nodes, to try to destroy any cancer cells that may have spread there.

If you've not already done so, I'd suggest downloading the information sheets that are available on this site - they're extremely useful. The PCUK nurses (freephone number at the top of the screen) are also incredibly helpful.

All the very best for your treatment,

Chris

Edited by member 31 Dec 2018 at 15:03  | Reason: Not specified

User
Posted 31 Dec 2018 at 15:13

N0 M0 are part of the staging - no sign of spread to bones or organs. However scans cannot pick up microscopic cells , hence there might be some cancer that at present can't be seen. Time will tell on that. Go with the thought a cure us on the cards.

Ray

User
Posted 31 Dec 2018 at 15:15
The N0 indicates that there s no lymph node involvement - N stands for Nodes.

M0 means there is no cancer spread to the bones or major organs - M stands for metastases.

So your result should look something like T3 G7(3+4) N0 M0

The T tells you whether the cancer is tiny, a bit bigger but still inside the prostate gland or has broken out of the edge and is growing on the outside of the gland. Yours is locally advanced which is probably T3 or could be T4.

The G tells you how distorted the cancer cells are, 3 being the least distorted and 5 being the most distorted. They add together to two most common patterns they can see in your biopsy samples.

The person who mentioned the possibility of micromets may just have been trying to manage your expectations a little bit. If they had reason to believe you definitely have micromets, they would not be offering you curative treatment so it sounds like he was simply saying this treatment regime should cure you but years down the line it might come back.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Dec 2018 at 15:17

Originally Posted by: Online Community Member

N0 M0 are part of the staging - no sign of spread to bones or organs.

Doh! Should have realised that's what the original poster meant smile . Thanks!

Chris

 

User
Posted 31 Dec 2018 at 16:14

Originally Posted by: Online Community Member

Been told I will have 35 sessions any advice out there on this treatment.            

I had 33 sessions of salvage RT after surgery but without hormone treatment, I found the process stared to get a bit tedious after the first week or so, the staff were absolutely fabulous and I met some lovely people during my daily visits. Not all hospitals follow the same protocol with regards to diet etc, I had daily enemas some do not. Water intake is important to get right. Follow the instructions given by your hospital and you should sail through it. I did not suffer from fatigue but as I said i did not have hormone treatment. Some guys suffer with adverse effects to the bladder and or bowel others have no problems. Adverse effects can take years to materialize.

Our hospital gave out a free parking pass for the duration of the treatment and we had an exclusive car park for the RT department.

best wishes with your treatment.

Thanks Chris

User
Posted 31 Dec 2018 at 17:01
Cheltenham Hospital also give free parking pass and allocated parking

Bob

User
Posted 01 Jan 2019 at 18:51

Originally Posted by: Online Community Member
locally advanced pca ... "no mo" ... "microscopic" issues which may become apparent later

Locally advanced, but no detected spread means you are stage 3: the tumour has erupted through the prostate capsule, but no further. This means that while they detected no metastases, or local (node) spread, it is theoretically possible that there has been some spread at a microscopic level that cannot be detected by scans.

The two key points of radiotherapy are getting the fluid intake right to achieve a full bladder each time (unless you've been told different), and ensuring your bowel is empty each session. Both of these are to ensure that the tumour is in the same place once they've lined up the machine against your tattoos, to get maximum benefit.

Get them right and the radiotherapists will adore you. Get it wrong and prepare for the Wrath Of Khan  :)

I'm four years ahead of you; no spread so far (touches head).

Edited by member 01 Jan 2019 at 18:54  | Reason: tidying

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

 
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