i have been on abiraterone now for exactly 3 years.
my spread is to lymphs in my throat, aorta, locally plus of course prostate. i was /am T4n1m1a, gleson 9, initial psa 342.
in the last 3 years i am not sure if i have had any side effects from the abiraterone at all.
my psa is 0.06, the lowest it has ever been, all my other bloods are fine.
i have run 1,000s of miles in races accross the arctic, Sahara, Albania, Cambodia, Spain and Uk in the last 12 months alone, have never come last and always finished. i know i am at the ”lucky end” of the tolerance spectrum fir this drug but i sm (currently) living proof that things can go on as normal.
i have posted this before but i have a personal website www.makethemostofit.org which is designed to help anyone with pca see what is in my head to agree or not but either way to see an opinion.
i know that abiraterone wont last forever but it can work for years.
hope things go as well if not even better than i have had on the drug.
i take it first thing every day as i wake as you need an hour before food and that way it is done and i never forget (even sleeping in the snow in the Arctic!).