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Development of a stricture

User
Posted 10 Jan 2019 at 11:13

6 weeks ago I had a prostectomy.  The initial 4 weeks went very well with good bladder control and no erectile dysfunction due to nerve sparing surgery on both nerves.  However in the last 2 weeks my urine flow has got a lot worse to the point my wife insisted we go back to see the consultant.  After doing a flow test he declared the flow rate as terrible (about 3) and now wants to do an endoscopy to find out the problem and remove any strictures.   This will require having a catheter afterwards for a few days.  All this has destroyed my optimism and seeing the new year as a new start.

Has anyone experienced this side effect and how successful was the treatment?  

Martin 

User
Posted 10 Jan 2019 at 13:02
Hi read my profile. I was very similar to you. I had the cystoscopy to see what the problem was. It turned out my bladder opening is greatly reduced as a result of the operation. They scheduled me for an op to put it right. But on the day of the operation I asked the consultant if it was absolutely necessary. I asked this as my urine glow is slower but I can live with it. Almost 6 years on I still haven’t had the operation. Still slower flow but I can live with that.

Obviously you may have another issue. Let them take a look (which is painless) and then you can decide what you want to do

Good luck

Bri

User
Posted 10 Jan 2019 at 13:42

Martin

Like you and Bri and a few more on here we had similar problems soon after RARP, I went a different route to Bri and my result has been a disaster. We all recover in different ways, I did have not had a great outcome. You  could have a very quick and successfull result. It sometimes take a few attempts to resolve the stricture problem.

Thanks Chris

User
Posted 10 Jan 2019 at 14:25

Thanks for the reply.  Like you I am keen to get off the medical treadmill but I am not sure whether living with a flow rate of 3 is practical.  Has your flow rate improved at all and what is it currently? I have the investigation next week so will wait and see the outcome.

 

 

User
Posted 10 Jan 2019 at 15:30

Martin

Not sure if you were asking me or Bri or both, my flow rate has fluctuated from 0.5 (point five) just before a  dilatation upto about 15 just after dilatation. At 0.5 it becomes slightly uncomfortable to pass urine and you spend alot of time in the loo, the upside is continence normally improved when the flow was slow.

Thanks Chris

Edited by member 10 Jan 2019 at 16:04  | Reason: Spelling

User
Posted 11 Jan 2019 at 16:05
Martin,

I have a stricture, almost certainly caused or made worse but my Macmillan nurse rather aggressively removing my post-op catheter.

I was back in hospital hemorrhaging from my penis within 24 hours.

I was dry immediately post-op (3.75 years ago) but my flow was poor and had virtually ground to a halt this autumn. I was able to only pee 7cl in 2mins and at the same time unable to void my bladder. I was seemingly living with a permanent 370cl in my bladder, which was causing regular infections.

My Urology Consultant same hospital but not the surgeon, suggested a cystoscopy and dilation, which I readily agreed to!

I went into hospital on 21 December 2018. To cut a long story short there were several attempts to get the camera through with many different sizes of dilation equipment. Eventually, the camera made it, all done under local anesthetic! it was painful and TBH pretty barbaric. Catheter removed on Christmas Eve. Peeing has never been so enjoyable!! The is no cure for my stricture, scar tissue grows, but can be managed. In an attempt to delay the next dilation I am currently self-catheterising 3 times a week, with a view to once a week in about 4 weeks time.

I'm pleased with my treatment although a general anesthetic would be preferred next time.

I hope this helps, and you are welcome to PM should you wish any further information.

Pablo

 
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