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Sexual desire after RP, SRT and HT

User
Posted 25 Jan 2019 at 00:03

Hi all,

I wanted to post something about my experience of sexual life since my diagnosis in 2014

first off, I had the RP operation in 2014, and the expected neuropraxis/nerve injury that the operation gives. However, although I could not physically perfom sexually, the ”itch”, the desire was as strong as ever. 

luckily I regained potency at around 6-7 months post op, and have enjoyed our sexual life, though changed a bit with dry orgasms (still intense and pleasurable though)

However, since late 2017 and biochemical recurrence, I have been on Bicalutamide, as well as 6 week SRT, and increasing Tamoxifen doses (to current 20mg daily because of painful gynecomastia)

 

Unfortunately I am now in a pretty awful position over past 4 months where, with daily Cialis, I am able to have sex normally, but what is really awful is the lack of interest in sex that the HT brings. its alien, weird, like an itch that you have all your life that suddenly leaves you

in many ways it feels worse than having desire but being unable to have sex. 

I have 11 more months of HT to go and can’t wait until my body’s hormones get back to a normal as this is almost unbearable

 

bloody disease

User
Posted 27 Jan 2019 at 01:58
Good morning,

Darkrainbow - I have sympathy and sadness for you and those of you who have had their prostate removed and whose life is, to quote YOU above, "F...up".

But that does not apply to everyone who has RRP. And, the suggestion or claim that anyone, someone should quote "get used to it", unquote, is just so wrong.

A recent survey showed that 100% of patients who underwent a RRP made a full recovery, regaining urinary control 24/67, and full sexual function several times during the day and several time during the night .

I had my prostate removed May 2013. I don't live like a monk. Okay, I practice tonsure, have done for years. Otherwise, I'm a duracell bunny.

Had a chat with a mate of mine recently whose husband had had an RRP many years ago. She mentioned to him that I was about to undergo RRP. My friends Ex told her "Well that's it, he'll be impotent from now on you know". Duh. SO SO Wrong.

Any man reading this thread should read that no result is set in stone.

All side effects are potential. Including LIFE.

KR

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 27 Jan 2019 at 08:49

I have had a bit if a rethink, physically  I am still able, its just I feel less interested, I can climax fairly easily so it may be fatigue with the HT

User
Posted 27 Jan 2019 at 09:42

5mg Cialis every 2 days

i dont know if i really need it as sometimes I forget and am still able, but its a knowing its there to help

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User
Posted 25 Jan 2019 at 01:37

Hi Kayaker,
you might find this thread interesting https://community.prostatecanceruk.org/posts/t6875-Impotence-during-hormone-therapy#post105396 

The thread that I had hyperlinked in my response to Boxman is here:

https://community.prostatecanceruk.org/posts/t9100-The-HT-and-RT-treatment-Journey#post9100 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Jan 2019 at 06:33
I had Bical for 11 months and not once lost my libido. The sad thing was that during that period I was denied daily Cialis and was struggling with event doses. Caverject was more pain than it was worth , so we relied on pump and Invicorp. My wife reckons I will never lose my libido whatever they give me as sex has always been maybe too important to me

If life gives you lemons , then make lemonade

User
Posted 25 Jan 2019 at 14:34

It has only been since starting on daily tamoxifen that ive noticed my interest lessening

physically Im still able but it feels different without as much desire as before

User
Posted 25 Jan 2019 at 14:41

Having been on bicalutamide since Dec’17, SRT finishing in Apr’18, I am seriously considering stopping the HT in April instead of waiting till December 2019

that will be one year after SRT and 17 months on HT. others have pointed out the variations nationally in how Onco’s treat patients with HT 

User
Posted 25 Jan 2019 at 16:45
I think its better that the drugs remove the desire and the libido. If the libido went but you still had the desire it would be much more frustrating.

It's bad enough contracting PCa but the treatment regimes are so cruel, I'm trying to tough it out and follow the treatment plan but it's heartbreaking and even harder on our wives/partners who also suffer the consequences of our illness.

User
Posted 26 Jan 2019 at 01:22
Libido is desire, they are the same thing.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jan 2019 at 08:29
Perhaps I should have used the term lust. HT removes both lust and desire.
User
Posted 26 Jan 2019 at 09:39
JasperM, Labido is the desire, lust, needing, wanting, wishing for sex. Everything to do with sex drive.

The ability to get it up is potency, sexual function etc.

I think what you are saying is HT removes labido and potency.

Good luck with both in the future.

Cheers

Bill

User
Posted 26 Jan 2019 at 10:17

Labido, Libido ,lavida locca even Kama - Sutra!
They all same things, once your Prostate removed than your life is F...up!

Until December the 6th I was a party animal in and around london s Sauna,s swingers clubs,Naturist clubs  Gentlemen,s clubs  but since  Last year December  I live like a monk
So get used to it

My sex life never will be the same again so yours!

Edited by member 26 Jan 2019 at 19:03  | Reason: Correction

User
Posted 27 Jan 2019 at 01:58
Good morning,

Darkrainbow - I have sympathy and sadness for you and those of you who have had their prostate removed and whose life is, to quote YOU above, "F...up".

But that does not apply to everyone who has RRP. And, the suggestion or claim that anyone, someone should quote "get used to it", unquote, is just so wrong.

A recent survey showed that 100% of patients who underwent a RRP made a full recovery, regaining urinary control 24/67, and full sexual function several times during the day and several time during the night .

I had my prostate removed May 2013. I don't live like a monk. Okay, I practice tonsure, have done for years. Otherwise, I'm a duracell bunny.

Had a chat with a mate of mine recently whose husband had had an RRP many years ago. She mentioned to him that I was about to undergo RRP. My friends Ex told her "Well that's it, he'll be impotent from now on you know". Duh. SO SO Wrong.

Any man reading this thread should read that no result is set in stone.

All side effects are potential. Including LIFE.

KR

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 27 Jan 2019 at 08:04

Good Morning Dave

Thanks for your comment, Yes I'm not an exception not different than anybody else  ,yes your right there is a light end of the tunnel but remember this please not everybody strong enough to cope with every thing. 

Years years  you are having normal sex your body normal than after over night every thing is changing..than you do masturbate or trying to have sex than end of it nothing comes out of your penis than you say What the f....!!!

Yes there are many ways to get back to normal but not everybody is strong ? Some people are not married or have a partner? Especially during the festive season of christmas/New year having RRP could let you down if you live alone!

Yes I do feel like I live like a monk Last week I was suicadele and honestly if I knew that It was going to be this way I wouldn't go ahead with the operation at all.

I was not suffering badly anyway before the operation all I said to my GP was I feel I'm not fully empty my bladder . That is all.

Than after few test Was told I have got cancer!

Anyway you have a nice weekend my friend and I'm glad that you live like a Play boy :) not like me Monk:)

D.R

User
Posted 27 Jan 2019 at 08:49

I have had a bit if a rethink, physically  I am still able, its just I feel less interested, I can climax fairly easily so it may be fatigue with the HT

User
Posted 27 Jan 2019 at 09:23

Well Bill I'm really glad for you mate, you succeed!!!

Your a lucky guy :)

So I get used to it not you and I live like a monk

No Tea, no coffee, no alchol, No Sex:)

I wonder that do you take anything  Cialis, viagra etc?

D.R

Edited by member 27 Jan 2019 at 09:26  | Reason: Added

User
Posted 27 Jan 2019 at 09:42

5mg Cialis every 2 days

i dont know if i really need it as sometimes I forget and am still able, but its a knowing its there to help

User
Posted 27 Jan 2019 at 13:22

Well seems it's working for you well.

Sound you don't need them at all.

I'm genuinely glad for you, at least that b****** (cancer) doesn't stop some people like you having fun!!

 
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