Just an update from my appointment with the oncologist on Wednesday afternoon.
I’m now off the daily Bicalutamide 150mg after 4 years and now on Enzalutamide - 160mg once a day. I’d heard how big the Enzalutamide pills are and they really are 4 massive pills of 40mg each and are an effort to swallow. They might work and, if they do, I’ll stay on them till they stop working. I had Zoladex for the first time in December and I’ll continue with that.
My liver mets did not show in a choline PET Scan done in November and since then there’s been extensive, aggressive spread. I saw the scan and it is covering quite a lot of my liver but the nets are not yet causing me significant problems, but I was told it’s the liver that is likely to be the main cause of symptoms.
If I have a good response to the new drug the oncologist estimates I have 1 to 2 years, more likely the lower end because of the extent and aggressiveness of my cancer. If I don’t respond then, she said, realistically less than 6 months.
She’s simultaneously contacting the drugs trial people at the Marsden to see if I’m suitable for any trials going on, so another possible avenue that might increase my lifespan.
We discussed a DNR Form, but I’ve not yet done that, although I will.
For now I intend carrying on as I have, which I think is realistic optimism. I’m no longer watching what I eat, I figure I might as well enjoy myself. In my head I feel amazingly calm and reckon those around me are suffering more from my news, especially my partner who I have been with for almost 35 years.
I have a fantastic support network, and the support is very noticeable.