Yes we are near Liverpool and Dad is being treated there.
I think my main concern in all of this is that the consultant mentioned Salvage RT a possibility but obviously wanted scans before hand. We are concerned if it has become unsalvageable now.
He was very excited to offer the new PSMA scan and said it would pick up micro mets as Dad's PSA was above 8. He was very shocked that Dads PSA was even detectable as his scans prior showed it had reached the prostate wall but there were no signs of any spread. Dad asked if he could go on his planned holiday before the op or if it was best to cancel. He was told 'go on your holiday it has taken years to get to this size' Dad asked again if it would be ok and was told 'go and enjoy your holiday, when you come back we will get you in put it in the bin and its gone' We totally understand he isn't a magician and cant predict the future, but, we were totally floored when he told us it was a more aggressive than first thought.
We are worrying as the PSA level is rising every two weeks, prior to his op it was fluctuating between 10 & 12 for 18 months.
Interesting to read about not starting HT until PSA reaches 20.
I just feel Dad has been left hanging in all of this and isn't getting any straight answers.
Take Care, I will keep you all posted.
Thank God for this community