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User
Posted 05 Feb 2019 at 12:04

Hi Everyone 


Have transferred to this section as we now have a Pca diagnosis.  Husband has a gleason score of 3+4(7) and has along with the consultant decided on a prostatectomy.  Met with the surgeon yesterday who was quoting a possible 2 month wait (private), naturally my Husband wants this sorting asap so I am looking at other surgeons.   I know surgeons can't be named on the boards but if anyone would be kind enough to DM me (if that's allowed).


Thankyou

User
Posted 05 Feb 2019 at 13:13
Urology surgeons have to publish their stats online - you can check by individual surgeon or by hospital although some surgeons don't comply - you have to wonder what they are hiding. Keep in mind that some of the apparently most successful surgeons cherry-pick patients that are likely to be straightforward with good outcomes while there are others whose outcomes don't look great because they are brave and take on RPs that others would refuse to undertake.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 05 Feb 2019 at 18:05

Hello,


I used the BAUS website to check out the surgeon, it says how many they've done of what kind and complications.   https://www.baus.org.uk/


Without wanting to cause alarm my own opinion is that there is no time better than as soon as possible to have an operation. They kept telling me they're slow growing and 3+4 might be OK, mine was upgraded after the op from 4+3 to 4+4 and one with two 4's is serious stuff.  


It's great to have a top surgeon but I was happy with a 1 a week man who saw me quickly and did it within 10 days of me meeting him. He worked full time as lead urology surgeon in the NHS and at 2 private hospitals and had over 20 years experience.


All the best, Peter

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User
Posted 05 Feb 2019 at 12:25
Hi Gee,

Prostate cancers are usually slow growing, so a two month wait is probably not so bad. I waited six months to go with the right surgeon.

My message function is not working, like so many things on this bulletin board, but you can email me at re.vision@btinternet.com and I’ll tell you about Professor Whocannotbenamedhere.

Cheers, John
User
Posted 05 Feb 2019 at 12:47

Thanks John, just messaged you.Prof whocannotbenamed is not available till April.


 

User
Posted 05 Feb 2019 at 13:13
Urology surgeons have to publish their stats online - you can check by individual surgeon or by hospital although some surgeons don't comply - you have to wonder what they are hiding. Keep in mind that some of the apparently most successful surgeons cherry-pick patients that are likely to be straightforward with good outcomes while there are others whose outcomes don't look great because they are brave and take on RPs that others would refuse to undertake.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 05 Feb 2019 at 13:16

Hi have they give more detail about where in the prostate the cancer is. It can be slow growing but it can also depend where in the prostate its located ie is it up against the wall of the gland for example


Regarding a surgeon make sure you get one who has done many of these ops preferably in the 1,000’s and do them week in week out


All the best 


Bri

User
Posted 05 Feb 2019 at 15:02

No, not said where it is located.


I am looking to contact 2 surgeons at RM who are high volume and seem highly regarded.


Thankyou 

User
Posted 05 Feb 2019 at 18:05

Hello,


I used the BAUS website to check out the surgeon, it says how many they've done of what kind and complications.   https://www.baus.org.uk/


Without wanting to cause alarm my own opinion is that there is no time better than as soon as possible to have an operation. They kept telling me they're slow growing and 3+4 might be OK, mine was upgraded after the op from 4+3 to 4+4 and one with two 4's is serious stuff.  


It's great to have a top surgeon but I was happy with a 1 a week man who saw me quickly and did it within 10 days of me meeting him. He worked full time as lead urology surgeon in the NHS and at 2 private hospitals and had over 20 years experience.


All the best, Peter

User
Posted 11 Feb 2019 at 13:29

Hi everyone, just an update, we are seeing the consultant at RM tomorrow with surgery pencilled in for next Friday.  Thankyou for your messages, will keep you posted x

User
Posted 12 Feb 2019 at 19:50

Just an update, we met with the consultant at the RMH today, really lovely guy, made us feel very positive, his left side is clear and the Pca is on the lower right side.  He said the PSA was unusually high for the amount of Pca found on biopsy. HB been getting a groin pain which could possibly be prostatitis which may explain the PSA.   So all systems go for next Friday 22nd.  Feeling in a much better place and happy with our choice of surgeon.   Thankyou for your help and advice everyone, this forum has really helped us and am sure will continue to help.

 
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