I am hoping someone can ease my mind about NOT being able to 'feel' my bladder when full, empty or anything inbetween, following prostate removal and bladder neck reconstruction.
Flow is excellent and muscle control pretty good with really minimal leakage apart from when sneezing or wanting to pass wind, all of which I am very pleased with.
Can anyone else confirm this lack of feeling (signals), to be normal before I see the consultant in 2 weeks. My Doctor and the hospital urology nurse have not been reassuring as they appear to have no experience to fall back on.
I can control flow by stopping and starting, and am mentally judging when to go to the toilet rather than wait for any signals. Last week and the only time I misjudged it, I was uncontrollably weeing just feet from the toilet, having started unusual leaking very close together I realised where it was leading and thankfully already on my way home.
My story started when psa had been rising for years and assessed as being due to an enlarged prostate that required treatment as it was causing severe flòw problems. With a ’hard’ area I was given a biopsy that found non-agressive cancer in one crore.
At 63 and with a family history of grand old age i was looking forwad to many more healthy years, and as I needed surgery anway decided for removal. (robotic assissted).
it was only at the bedside before the op that I was informed that ED was highly likely due to problems with saving nerves and enlarged prostate -3 times normal size- but decision was already made and i was not going back.
The first weeks post op 10 weeks ago, preventing strain on the midriff muscles were unpleasant.
Generally I believe I have recovered well and despite some nerves saved ED is going to be an issue with no real reactions and a definate curve south. Even pelvic exercises see no twitching or rising and holding! There is a little flow with assistance of Viagra, so hopefully there is potential.
I have found these pages and forums infòrmative in general terms, but not enough is said about the immediate after effects of treatment (operation in my case), which left me disappointed when going through those first few days. However even mixed messages came from the hospital because I chose to take the ’talks/classes’.