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NO bladder feeling after Enlarged prostate removed

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User
Posted 09 Feb 2019 at 07:42

Hi there,

I am hoping someone can ease my mind about NOT being able to 'feel' my bladder when full, empty or anything inbetween, following prostate removal and bladder neck reconstruction.

Flow is excellent and muscle control pretty good with really minimal leakage apart from when sneezing or wanting to pass wind, all of which I am very pleased with.

Can anyone else confirm this lack of feeling (signals), to be normal before I see the consultant in 2 weeks. My Doctor and the hospital urology nurse have not been reassuring as they appear to have no experience to fall back on.

I can control flow by stopping and starting, and am mentally judging when to go to the toilet rather than wait for any signals.         Last week and the only time I misjudged it, I was uncontrollably weeing just feet from the toilet, having started unusual leaking very close together I realised where it was leading and thankfully already on my way home.

 

My story started when psa had been rising for years and assessed as being due to an enlarged prostate that required treatment as it was causing severe flòw problems. With a ’hard’ area I was given a biopsy that found non-agressive cancer in one crore.

At 63 and with a family history of grand old age i was looking forwad to many more healthy years, and as I needed surgery anway decided for removal. (robotic assissted).

it was only at the bedside before the op that I was informed that ED was highly likely due to problems with saving nerves and enlarged prostate -3 times normal size- but decision was already made and i was not going back.

The first weeks post op 10 weeks ago, preventing strain on the midriff muscles were unpleasant.

Generally I believe I have recovered well and despite some nerves saved ED is going to be an issue with no real reactions and a definate curve south. Even pelvic exercises see no twitching or rising and holding! There is a little flow with assistance of Viagra, so hopefully there is potential.

 

I have found these pages and forums infòrmative in general terms, but not enough is said about the immediate after effects of treatment (operation in my case), which left me disappointed when going through those first few days. However even mixed messages came from the hospital because I chose to take the ’talks/classes’.

 

Mike

User
Posted 09 Feb 2019 at 11:40
You have to be joking about there being a lack of information on here about the immediate aftermath of surgery 😂😂😂 There are detailed descriptions of every bodily function imaginable plus some that are unimaginable.

Basically, when they cut the prostate out they slashed and burnt your nerve bundles. That has changed the neural journey to your brain of messages like “I should think about going to the loo” or “bladder is now full”. Like a toddler who is being potty trained, your brain needs time to recognise the new signals at all, and then to recognise them subconsciously and eventually unconsciously. However, if the nerves are still burnt and bruised they won’t send any signals.

Should improve in time.

You would be better taking daily low dose Cialis rather than event dose Viagra. Cialis brings increased blood flow (and therefore oxygen) to the pelvic area which helps with nerve repair, which in turn aids recovery of continence and ED. There is no evidence that Viagra has that wider healing effect.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Feb 2019 at 07:42

Hi there,

I am hoping someone can ease my mind about NOT being able to 'feel' my bladder when full, empty or anything inbetween, following prostate removal and bladder neck reconstruction.

Flow is excellent and muscle control pretty good with really minimal leakage apart from when sneezing or wanting to pass wind, all of which I am very pleased with.

Can anyone else confirm this lack of feeling (signals), to be normal before I see the consultant in 2 weeks. My Doctor and the hospital urology nurse have not been reassuring as they appear to have no experience to fall back on.

I can control flow by stopping and starting, and am mentally judging when to go to the toilet rather than wait for any signals.         Last week and the only time I misjudged it, I was uncontrollably weeing just feet from the toilet, having started unusual leaking very close together I realised where it was leading and thankfully already on my way home.

 

My story started when psa had been rising for years and assessed as being due to an enlarged prostate that required treatment as it was causing severe flòw problems. With a ’hard’ area I was given a biopsy that found non-agressive cancer in one crore.

At 63 and with a family history of grand old age i was looking forwad to many more healthy years, and as I needed surgery anway decided for removal. (robotic assissted).

it was only at the bedside before the op that I was informed that ED was highly likely due to problems with saving nerves and enlarged prostate -3 times normal size- but decision was already made and i was not going back.

The first weeks post op 10 weeks ago, preventing strain on the midriff muscles were unpleasant.

Generally I believe I have recovered well and despite some nerves saved ED is going to be an issue with no real reactions and a definate curve south. Even pelvic exercises see no twitching or rising and holding! There is a little flow with assistance of Viagra, so hopefully there is potential.

 

I have found these pages and forums infòrmative in general terms, but not enough is said about the immediate after effects of treatment (operation in my case), which left me disappointed when going through those first few days. However even mixed messages came from the hospital because I chose to take the ’talks/classes’.

 

Mike

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User
Posted 09 Feb 2019 at 11:40
You have to be joking about there being a lack of information on here about the immediate aftermath of surgery 😂😂😂 There are detailed descriptions of every bodily function imaginable plus some that are unimaginable.

Basically, when they cut the prostate out they slashed and burnt your nerve bundles. That has changed the neural journey to your brain of messages like “I should think about going to the loo” or “bladder is now full”. Like a toddler who is being potty trained, your brain needs time to recognise the new signals at all, and then to recognise them subconsciously and eventually unconsciously. However, if the nerves are still burnt and bruised they won’t send any signals.

Should improve in time.

You would be better taking daily low dose Cialis rather than event dose Viagra. Cialis brings increased blood flow (and therefore oxygen) to the pelvic area which helps with nerve repair, which in turn aids recovery of continence and ED. There is no evidence that Viagra has that wider healing effect.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Jul 2019 at 14:35
I have read posts from many of these forums and you are the first person that has indicated this problem. YOU ARE NOT ALONE! Beginning to think I was the only one. I have no internal feeling or urge to go. Only feeling of pressure in my penis. It caused a lot of trouble with bed wetting for a long time because I wouldn't wake up, and sometimes not being able to judge how quickly to get to a bathroom. Sadly in my case, it is not the worst side effect. I also suffer with more than 2.5" loss of length and buried penis much of the time. Now 16 months post surgery.
 
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