Hello all and thanks for the various replies.
Yes, it is professor that cannot be named from Guildford who also cannot be named and works at the Shard. He seems untroubled by the whole thing whereas I am waking at 4am sweating and retreating into myself, which is a bad policy at the best of times! Have seen close family members suffer with Cancer hence by fear at the mere word...surely time for a name that doesn't strike immediate dread? Maybe "prostate malfunction"?
Just to repeat, I have been on this path for 6 months or more now. Original diagnosis was prostatitis and PSA 0.7. He picked up a firm side on DRE and that was then an MRI and CT scan were ordered. MRI showed PI RADS score of 3 and with all the other scores (CT clear) he suggested not to biopsy. Fast-forward 3 months symptoms still bad so he performed a Cystoscopy (that wasn't fun) and then a second MRI. The second MRI showed PI RADS of 2 but he ordered the biopsy after giving me the option of waiting another 6 months. Bearing in mind I have a lot of prostatitis like symptoms I opted for biopsy. Surgeon doing the biopsy was surprised and said "we don't normally biopsy PI RADS 2.
Fusion biopsy happened, all cores fine except 1 that showed Gleason 3+3 although I know that can change after it is fully examined etc.
He gave me two options - AS or surgery. Surgery he told me has 98% chance of removing it all unless Gleason upgrade to 7 at which point rate is 95%. He was very thorough on describing the issues with surgery but also quite good at relaying his own experiences with most patients, which seem to have good outcomes!
He confirmed confined to Prostate and T1c being the stage.
My own thoughts are that I was 'lucky' to get prostatitis that was chronic as it pushed more tests along. Despite the hell of 6 months I am at least somewhere with a diagnosis. My problem is anxiety and worry...which has plagued me for 30 years in various guises.
Scary thing as well is it seems the prostatitis was the only thing promoting further tests...had I not had that I don't think I would have even had a biopsy...
More thoughts are very welcome and I am reading advice avidly as this seems a lonely place in my head right now...