1st time Cialis

User

Posted 18 Feb 2019 at 09:04

Last night was the first time Mr L took his 10mg Cialis. We did have a response but Mr L was expecting more. There would be no chance of penetration with what was achieved last night. So I'm just wondering if this is something that gets better the more we take the Cialis, or if it didn't work on the first time then the chances of it working aren't very good, and we should ask for something else?

It's still very early days since the op, 10 weeks today! I know we should be patient, I was just disappointed for him.

Thanks for any advice

User

Posted 07 Mar 2019 at 00:44

Cialis / Tadalafil is not a ‘very strong drug’ and it is likely to be available soon over the counter at chemist’s shops without prescription, just like its sister drug Viagra (Sildenafil).

Cheers, John.

User

Posted 07 Mar 2019 at 12:35

Originally Posted by: Online Community Member

I can still orgasm with a limp dick, and Her Loveliness is happy as Larry. She has never been mad keen on penetrative sex since a painful experience during a cervical smear test at her GPs

Be careful accepting the status quo if you value your marriage. My X said exactly the same thing to me about 3 months before she fucjked off!!

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User

Posted 18 Feb 2019 at 11:01

Next time get him to take two x 10mg. 20mg is the standard size in many other countries for ‘occasional’ use. Or break some in half and try 5mg daily for a few days.

Providing he has no side effects of course. Some will say it’s very early days yet.

Best of luck.

Cheers, John.

User

Posted 18 Feb 2019 at 11:36

Yes, 10mg is a starting dose usually. I take 20 mg as required, they take about an hour to work but last for up to 36 hours! So taking them early is not problem.

John

Gleason 6 = 3+3 PSA 8.8 P. volume 48 cc Left Cores 3/3, Volume = 20% PSA 10.8 Feb '19 PSA 1.2

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User

Posted 18 Feb 2019 at 12:05

Hi,

ED recovery can happen almost immediately for some, and after a lot longer for others.

Your recovery time will be determined by when the body is ready, assuming nerve sparing and physical impact repairing.

If you're having movement/reaction after only 10 weeks, that potentially bodes well for the future.

What helps is a supportive partner, low or no expectation to reduce any mental pressure so relax about it.

good luck to you both

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 18 Feb 2019 at 13:13

Ten weeks is extremely early. Unless you are very lucky you could be looking at a year or more. 20mg is the normal event dose for a man so try that. If you take 20 mg then you should leave 24hrs before repeating, and only 3 times a week. Buy yourselves a Durex penis ring. They are about £7 at chemists and even supermarkets. They can a 60% into a 90%. Early days ok. Must use pump daily !

User

Posted 18 Feb 2019 at 13:40

Thanks for the replies everyone. Much appreciated.

We've only been given 10mg tablets and only 2 to be taken weekly. So would it be okay to take both tablets for one "event"? It's encouraging to hear that movement down below is a good sign at this early stage. I think naively both of us thought this wonder drug Cialis would be amazing, and it saddened me to see Mr L disappointed. I completely agree that no pressure or expectation is key in this whole process. We haven't got a pump yet, but after speaking with our ED nurse last week, she has booked us in on Thursday to get the pump, so pumping will begin. I will definitely get a Durex ring as well, I assume this is used with the pump?

User

Posted 18 Feb 2019 at 15:06

The pump comes with special rings that literally throttle the pumped penis allowing penetration. It does work but we never liked it. I always used the pump on my own without rings purely for daily practice and engorgement etc. The Durex ring is completely different. Just mildly tight but can vastly improve a semi-erection. You can also get them at Lovehoney website or Ann Summers. Ideally your best gold treatment is 5mg daily and plenty of pumping and then loads of patience. Penetration was missing for a long time but it made new things possible and fun. Ironically we probably had more fun than able couples during this period.

User

Posted 06 Mar 2019 at 18:09

Hi,

I have been refused low dose cialis, and only been issued with 4 x10mg tablets on the basis that Nice does nòt support low dosage anymore.

My 12 week appointment (1st with the surgeon), was cancelled quite late and no support has been offered for my ED and it looks like being at 5-6 months now.

I am very concerned that I am finding support very difficult and there has been no tsupport for my request for a pump either from the doctor or the specialist nurse at the hospital.

My prostate was cancerous and enlarged, and did have some nerve saving, and I am getting some ’response’ but its most inadequate.

What is the current thinking?

Where should I turn to for support?

Mike

User

Posted 06 Mar 2019 at 19:14

Looking at the NICE page on Tadalafil, low dose daily use is still listed, but Cialis® is specifically excluded, so you should be able to get the generic drug (Tadalafil), but possibly not under the Cialis® brand name. Do you have a McMillan nurse contact - I have found them very good for sorting out things like this, liaising with the right staff, and providing support when you need it.

(Actually, even Cialis® can be issued with an SLS prescription by a GP, which I thought PCa entitled you to.)

NHS is currently having to pay a price premium to obtain the low dose Tadalafil tablets though - they aren't cheap (NHS Price Concessions). It is probably much cheaper to have you break up the larger tablets.

User

Posted 06 Mar 2019 at 19:41

Hi Mike,

Looks like the NHS will struggle to help you and your recovery. What are you doing to help yourself recover?

Are you exercising regularly? As much as you can?

Have you written to your GP setting out a case for how their refusal to assist with equipment and medication in good time may hinder your recovery, and how that many cost the NHS a lot more in due course?

dave

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User

Posted 06 Mar 2019 at 19:53

Ask the GP or your allocated urology nurse whether there is an ED service or andrology clinic in your area and if so, ask the GP to refer you.

In the meantime, masturbate regularly, cut the 10mg tablets in half and take them every three days, if you have a partner have a go at oral sex, buy a pump online, do anything that draws blood to the genital area.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Mar 2019 at 22:04

Hare Krishna & Aloha

A month ago I attended to my first follow up appointment, was offered 4 x 20 mlg Tadafil that made zero impact to my sexual life..

Was told take no more than 1 tadafil in 24 hours.yes I did that but failed..

In fact when I masturbate and if I take or don't take tadafil I don't see the difference .

Poor fella Doesn't even get as hard as marshmallow.

This coming friday I will attend my first ED clinic

I might get A pump offer or not I'm not sure

I don't even know what to ask.all I know is my sex life is not good .

I Asked my GP already that if she could prescribes daily cialis answer were Cialis are very strong medicines she would only offer them to me if she gets a green lights from the hospital team.

Thanks

D.R

Edited by member 07 Mar 2019 at 07:47 | Reason: Not specified

User

Posted 06 Mar 2019 at 22:08

Hi All,

I am fortunate enough to be semi-retired and able to spend recovery time in sunnier climes, so exercise is no problem, but I wish the mental disturbance was not happening.

Incontinence has all but cleared in the 12 weeks since removal, (apart from sneezing, laughing and passing wind), but at the time I was advisd nerve sparing may not be possible due to enlargement. Despite bladder neck reconstruction I was lucky, but erectile function is only just beginning to happen, but not when required/desired, and nothing useful!

As I was on 4 Blue pills a month, the doctor changed those to 20mg Tamsilosin without a problem, and i have split those down to take 5mg daily for just over a week now.

To be honest the hospital side has left much to be desired.

My release notes did not include anything about the reconstruction (and my Doctors notes also lack thát information), and I was discharged with 2 weeks supplies and notes to have catheter removed, only to be told later I had to wait 3 weeks, and change all my plans. On top of that my 12 week appointment was cancelled last minute and I am still waiting...

Earlier today I had a call from the Phamácy saying they could not issue daily low dose tablets because Nice recommendation had been withdrawn as there was no evidence it helped, but if the consultant issued a letter they would reconsider. blah blah blah and appologies!

So tomorrow I will contact his secretary who is in another hospital (and authority) where he is based. Not taking this lying down, as all I have read says that early action gives the best opportunity for recovery from this situation.

Mike

User

Posted 06 Mar 2019 at 22:21

Originally Posted by: Online Community Member

I don't understand.

A pharmacy doesn't decide what drugs you get - they provide what you have listed on a prescription.

Did you have a prescription from your GP or hospital? If not, that's where you need to go to get one. If you do, take it to a different pharmacy.

Edited by member 06 Mar 2019 at 22:22 | Reason: Not specified

User

Posted 06 Mar 2019 at 22:35

I had written to my doctor requesting daily cialis in line with what I had read here etc as being suitable for my situation of prostáe removal post cancer diagnosis.

this all following cancellation of appointment with the consultant.

make sence? doctor obviously looking to cover her back. the surgery also has an ED clinic though so you would hope for something better

not exactly comforting is it?

Mike

User

Posted 07 Mar 2019 at 00:44

Cialis / Tadalafil is not a ‘very strong drug’ and it is likely to be available soon over the counter at chemist’s shops without prescription, just like its sister drug Viagra (Sildenafil).

Cheers, John.

User

Posted 07 Mar 2019 at 01:01

Originally Posted by: Online Community Member

As I was on 4 Blue pills a month, the doctor changed those to 20mg Tamsilosin without a problem, and i have split those down to take 5mg daily for just over a week now.

Was this a typo mjef? Did you mean 20mg Tadalafil? Tamsulosin has no known effect on ED caused by radical prostatectomy.

As frustrating as it is for the men affected, there is a postcode lottery and some CCGs have decided (despite clinical evidence) not to fund daily Cialis for nerve recovery. If the CCG says no, then your GP is not allowed to go against that.

NICE guidance says that a man with ED as a result of prostate cancer or as a result of treatment for that cancer is entitled to 4 tablets per month or 4 injections or 4 doses of cream / pellets ... basically you are rationed to one attempt at sex each week. It also says that you should have a vacuum pump if you want one. Some CCGs will not allow pumps but are more generous with the tablets, others will pay for a pump but not daily tablets for nerve repair.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 07 Mar 2019 at 01:03

Originally Posted by: Online Community Member

doctor obviously looking to cover her back. the surgery also has an ED clinic though so you would hope for something better

Or she is complying with the guidance given in your area, in which case you may have to challenge the CCG rather than the individual doctor. Have you made an appointment with the ED clinic?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 07 Mar 2019 at 06:11

I had the same letter via my GP surgery and I simply sent an email challenging it , adding the fact that Tadalafil is now generic and half the price of Cialis. So they let me stay on it no problem.

User

Posted 07 Mar 2019 at 07:16

I had a letter from the local health authority telling me I was not eligible for 5mg daily Tadalafil any more. My GP simply over-rode it. Not that it has done any good so far ☹️.

After my uncomfortable experience with the Alprostadil erotic eye drops I might just give up on the whole thing. I just read the patient leaflet for Invacorp 25 injectable erections, and I thought ‘Can I be bothered?’ Probably not.

I can still orgasm with a limp dick, and Her Loveliness is happy as Larry. She has never been mad keen on penetrative sex since a painful experience during a cervical smear test at her GPs about 40 years ago.....

Keep smiling.

Cheers, John.

Edited by member 07 Mar 2019 at 07:33 | Reason: Not specified

User

Posted 07 Mar 2019 at 07:50

Morning

I think its not all about Tadafil,Viagra,Cialis or even Kama-sutra.....its about Desire:)

D.R

User

Posted 07 Mar 2019 at 10:35

John , the injection is WAY easier than it seems and is just a sharp jab. Give it a go maybe unless you are happy

User

Posted 07 Mar 2019 at 11:46

Hi John

Yes agreed with you I taken 20miligram of tadafil but has done zero effect to my little fella..

Now given Sildenafil 100 Teva miligram hoping that works!

Thanks

D.R

Edited by member 07 Mar 2019 at 11:54 | Reason: Not specified

User

Posted 07 Mar 2019 at 12:35

Originally Posted by: Online Community Member

I can still orgasm with a limp dick, and Her Loveliness is happy as Larry. She has never been mad keen on penetrative sex since a painful experience during a cervical smear test at her GPs

Be careful accepting the status quo if you value your marriage. My X said exactly the same thing to me about 3 months before she fucjked off!!

User

Posted 07 Mar 2019 at 12:54

We are both very happy after thirty-eight years of not being married.

We are still betrothed, but there was a hurricane years ago in the Virgin Islands in the Caribbean, and our wedding there was cancelled. We relocated to Phuket for our ‘Honeymoon’. Once I saw those ‘Ladyboys’.........😉

My GP today has put me back on 5mg daily Tadalafil, following the unsuccesful Alprostadil eye drops. I am waiting for the fabled up to two-year erectile recovery after partial nerve-sparing surgery. We live in hope.

Cheers, John.

User

Posted 07 Mar 2019 at 19:11

Hi Franji1

I like the way your being open and Frank.

D.R

User

Posted 08 Mar 2019 at 13:45

Update

Was given Sildenafil of 100 mg.I tried immediately but failed.. still my fella as soft as marshmallow:(

D.R

User

Posted 08 Mar 2019 at 19:53

Hi all.

I've just read all the recent posts on this subject! Never mind the does this work or that work, it's not about desire, the drug, or whatever, it's about time!

I've tried all of it, to no effect, it's about time, it will happen,(if it's going to) when it does.

I have all the desire, the dream, the need, but all to no avail, all the workings are there but not the ability, just have to wait for my buddy to respond!

You can't force it, it has to happen when it does, I wish it could be different but it can't! So just be patient, it will happen when it does! From my side I hope it's soon, but what will be will be!

User

Posted 08 Mar 2019 at 21:15

Whatever is or isn’t working etc , you must keep your penile tissue elastic and stretched and exercised as much as is possible using a vacuum pump on a near daily basis. You can’t just sit and wait for that day to happen , because when it does you may just have a bent 3” remaining. I swear my near-total recovery is down to persistence with all meds and regular pump exercise. Shame I’m going to lose it all again sometime soon with further treatment. Don’t give up !

User

Posted 08 Mar 2019 at 21:19

Also important to acknowledge that for some men, nothing works - not even the pump. It is important that we don’t imply that men left with total ED have somehow simply not tried enough.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 08 Mar 2019 at 22:45

Hi Chris J.

Today I went to ED clinic .I was offered A pump to keep my little monster Happy and Healthy I was told that I must use the pumb daily for two weeks .

So after 2 weeks it would be up to me to use it further or not.but first two weeks is a must.

I forgot to ask him why first two weeks is so important?

So you seem a very knowledgeable guy may I ask you why?Do you know the answer?

Thank you in advance.

D.R

Ps.could I have some of your lemons please so I can make lemonade and sell them on the beach?

Edited by member 08 Mar 2019 at 23:07 | Reason: Not specified

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