My husband (59 yrs old) was diagnosed with an unusual aggressive advanced Grade 4 prostate cancer and was labelled "locally advanced". His Gleeson score is 8. His cancer apparently stems from the prostate in "scattered seed form" and it grew through the lining into a 2cm tumour in his bladder which was removed with a TURBT procedure. He then had to have a radioactive bone scan to see if it had spread to his bones and thankfully it hasn't spread. He had no symptoms apart from blood in his urine twice in one day and went straight to the doctors.
He even had a prostate test at the end of last year which was ok!!?? How can this be?
His planned treatment was to have Hormone Therapy and Radiotherapy. He's on the tablets since around 23/1 and had one injection which is to last a month and we are waiting for the Radiotherapy to start at the local Christies Hospital.
It's 6 weeks now since he had his TURBT procedure and we just found out today that the hospital hadn't forwarded the referral letter for the Radiotherapy so we've lost 2 weeks already!
I just wondered if anyone else is in the same boat and can shed light as to how long we wait for the radiotherapy to start and what to expect. Also the words "unusual, advanced, aggressive grade 4" label really unsettles me and the consultant said my husband's life expectancy could be 1-10 years.
We've been told he will never be cured but it could be contained.
Edited by moderator 19 Feb 2019 at 16:11
| Reason: To correct text formatting issue