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restarting cycling

User
Posted 02 Mar 2019 at 20:53

Six weeks today since radical robot surgery (and some nodes removed), and I feel fortunate that my recovery to date seems to be going quite smoothly in general. However I have had bad pain in my hips a couple of times when walking much more than just a mile (different hip each time). I did have a little arthritic pain after walking a few miles before the op, but this is a different order of pain. I have been looking forward to bringing this up, and many other things, at my follow up appt mid March. This has now been postponed, no new date yet.

Now I like to get some exercise by cycling, nothing too athletic, about 5-10 miles in a day a few times a week. I would love to get back on my bike, but wanted to be 'good' and get expert opinion direct at the follow up. It should take the load off the hip joint so perhaps avoid the pain I get from walking. I reckon if I take it slowly and there is no real discomfort from cycling I will be OK. Any thoughts please.

User
Posted 02 Mar 2019 at 21:32

hi black night i'm 7 weeks post opp and was a regular cyclist with a club befor surgrey at my follow up appointmet last fri i asked the nurse when would be be ok to get back on the bike? was told give it 3months at least and then see how i feel and take it steady, from what i have read on here 6months seems to be the normal time to resume bike riding hope this might av been of some help

User
Posted 03 Mar 2019 at 15:14

When I had my operation nearly 3 years ago I wasn't told anything about cycling and didn't think to ask. However like Black Knight cycling was my preferred form of exercise, in my case to protect my knees. I thought I would try a short local trip a few weeks after the catheter came out, but that trial resulted in me getting off the bike faster than I had got on!

And then a few weeks later again I went on a family holiday (booked before the cancer diagnosis) to a "beach activity" resort (Neilson) where bikes could be borrowed. I noticed that some of them had saddles with a central groove to reduce body contact, and gingerly tried a short trip with my wife to the nearest coffee stop. It worked without problem and once I got home I went out and bought a similar saddle and started gentle cycling, working slowly up to my customary 20-30 mile routes over the local hills.

If you are interested, the saddle I bought was the cheapest one with a central cut-out that I came across, from Halfords. There seem to be quite a range of such saddles available, some claiming superior therapeutic shaping and priced accordingly, but because I wasn't sure whether I would use the saddle much if longer trips were no fun I decided to start with a cheap one. I have since noticed that Sports Direct also have cheap and cheerful versions.

User
Posted 03 Mar 2019 at 16:14

Thanks for the replies. I have found more on this great forum about cycling now; good to read as many views as possible. 

I am of a mind to get on my bike this week and give it a little go. If it hurts or is just fairly uncomfortable it will be a brief trial like J-B's first attempt back in the saddle. We have Halfords less than half a mile away so I will look at special saddles as well. 

Now I am certainly on kind of Alpha male superman, if there is any pain it will be taken as a stern warning to desist. Just hoping to feel a bit puffed from some reasonable exercise, and maybe to help shed a few pounds.

User
Posted 03 Mar 2019 at 17:31
Our uro said that if John got back in the saddle too soon then he had wasted his time doing nerve sparing and could have just gone for the quicker non-nerve sparing option. It was a bit of a shock to J that the surgeon put it so strongly so although it was a miserable few months, he did wait the full time. I think it was 7 months in total before he was back out there. Worth it in the long run though as he regained erectile function eventually - it may not have made a difference but if he had been left with permanent ED there would always have been the regret of wondering whether he had brought it on himself.

I certainly think you should stay off the bike until you have had your post op review with the surgeon to check all is okay.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Mar 2019 at 10:28

That's the scary thing about the whole journey - seemingly minor things like this are choices which leave you wondering what might have happened if you had chosen the alternative path.

In my case erectile function hasn't been an issue that leaves me to ask "what if?", it returned sufficiently and the shortfall compared with pre-op is almost certainly due to now only having half the previous nerve supply. But I live with a continuing slight urine leak particularly towards the end of the day, and inevitably I sometimes wonder if anything different I might have done early on would have helped. (Back to the initial subject, the leak doesn't seem any worse if I have been cycling or for that matter any better).

User
Posted 06 Mar 2019 at 12:55
I never got told anything about specitic things not to do after my surgery other than take it easy and no heavy lifting or driving for a while. Shows how areas differ in approach!
User
Posted 06 Mar 2019 at 15:17

Well, I have just ventured out for a 2 mile ride. My cycle now equipped with a much better quality saddle than the cheapo original, with central cut-out and gel padding, £20 from Amazon. Certainly puffed a bit but no discomfort (or leakage) from this short trial. I now intend to wait a few hours or until tomorrow to take another short ride, all being well, and weather permitting.

It turns out (after many calls and finally speaking to someone in the hospital) that my Consultant has been off sick for his own operation, and no estimate available as to when he will be back to his clinics. The others' clinics are all booked up to the hilt of course. But he did tell me before my op that nerve sparing was not an option, so less to lose by earlier exercise perhaps. The morning after surgery he firmly coached the ward staff that 'robotic patients' should be up and about within hours, and no oxygen (I was discharged later that day). That did feel a bit harsh at the time.

If we patients were to take the most cautious approach with exercise during recovery how much more would general fitness deteriorate? I am no expert but the feelgood endorphin hit and stimulated circulation to the lower body from gentle cycling might well outweigh any hypothetical damage to nerve structures which are probably already lost beyond practical recovery in any case. Besides I feel that if cycling were such a no-no in general (of course there may be specific reasons for individuals to avoid it) more would be made of it in the hand-outs.

Yes, easy to dwell on what might have beens, our possible pasts. Whatever, it would be nice to be sure of being able to proclaim at the end 'je ne regrette rien'.

User
Posted 06 Mar 2019 at 17:23
If you had non nerve sparing then I think you can cycle as soon as you feel able - there are no nerve bundles to damage.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Mar 2019 at 21:22

BK

I had a "supposedly" non nerve sparing RARP but still manage to get some natural movement. There are a very small number of men who have reported recovery after a supposedly NNS op.

Thanks Chris

User
Posted 07 Mar 2019 at 20:29

Thanks Chris for your uplifting message. Never mind the South, may we yet rise again.

User
Posted 07 Mar 2019 at 21:10

BK

Not sure about the rising bit.

CJ ,Lyn, I have probably asked this before does recovery in your respective homes mean a stand to attention penis or a fully swollen penis but no where to hang the hat.

Thanks Chris

User
Posted 07 Mar 2019 at 22:46
I don’t understand the difference there?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Mar 2019 at 23:32

Lyn

Prior to my RARP with a full erection my penis would point upwards and I could flex it up and down. Post RARP with aids I could get a full size penis but it hangs down. Guys talk about having no strength were the penis meets the body and are unable to flex the penis up and down when fully engorged. I seem to recall someone say the control systems for engorging the penis and lifting the penis are different sets of nerves.

Thanks Chris

User
Posted 07 Mar 2019 at 23:47
I shall test and report back 😉
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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