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12 years with Gleason 9

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User
Posted 04 Mar 2019 at 17:19

Hi Guys,

At risk of repeating myself I am a rare visitor to this website these days, but just been to see my Consultant who is happy with my PSA at a mere 0.5.  I won't bore you all with details of my treatment which those who are interested can pick up on the Profile, but here I am living proof that a Gleason 9, T3 diagnosis is survivable, and that is with the treatment options available 12 years ago.

I know I am lucky, and that far better men than me haven't survived, but hopefully those new diagnosed chaps who are a little downhearted may gain something from my story.

Wishing you all the best of luck.

:)

Dave

 

 

User
Posted 04 Mar 2019 at 17:19

Hi Guys,

At risk of repeating myself I am a rare visitor to this website these days, but just been to see my Consultant who is happy with my PSA at a mere 0.5.  I won't bore you all with details of my treatment which those who are interested can pick up on the Profile, but here I am living proof that a Gleason 9, T3 diagnosis is survivable, and that is with the treatment options available 12 years ago.

I know I am lucky, and that far better men than me haven't survived, but hopefully those new diagnosed chaps who are a little downhearted may gain something from my story.

Wishing you all the best of luck.

:)

Dave

 

 

User
Posted 27 Jul 2019 at 18:31

I was 46 when diagnosed, T3b and Gleason 9. Still here 8 years later. On Zoladex, likely to start Bicalutamide in the next year as PSA rising. Still working full time as a teacher. Fell like I need to retire, but still enjoying life. The Christie hospital has been fantastic with me, and give me hope for many years to come.

User
Posted 07 Mar 2019 at 20:29
Congratulations Dave and Peter, both rapidly moving into TopGun's hall of fame - what a great advert for radiotherapy.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Mar 2019 at 21:54
Well done Dave keep sitting on that perch :-)

Ray

User
Posted 04 Mar 2019 at 20:28

I’m T3b and G9, age 46 at diagnosis.  Your message gives me great hope.  Thanks.

 

Ulsterman

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User
Posted 04 Mar 2019 at 18:05

Excellent.  Your profile looks an interesting read, I'll look at it more later but on a quick view noticed your rising and falling psa which is something often written about.  All the best Peter

User
Posted 04 Mar 2019 at 18:40

Great news Dave .    Here's  keeping my fingers crossed for your next 12 years. 

 

Best wishes 

Ann

 

 

User
Posted 04 Mar 2019 at 20:10
Hi Dave and well done, Tony reached his 13 years since diagnosis on the 1st March but he has now become hormone resistant and is on chemo at the moment but doing well on it.

regards barbara

User
Posted 04 Mar 2019 at 20:28

I’m T3b and G9, age 46 at diagnosis.  Your message gives me great hope.  Thanks.

 

Ulsterman

User
Posted 04 Mar 2019 at 21:54
Well done Dave keep sitting on that perch :-)

Ray

User
Posted 05 Mar 2019 at 06:35

Good luck Dave

Barry

User
Posted 06 Mar 2019 at 20:34

Excellent news Dave. You and I were diagnosed at about the same time in 2007 , where has that time gone !!! . I too don't use this new site too often - i much prefered the previous one. I am delighted things are going well for you . My PSA has remained stable for all these years but i am going through another bout of very difficult " prostate area ache" - I've had it before and was told  that it might  be some form of infection or nerve damage. Getting it checked out shortly. I have never managed to lose the anxiety when it comes round to PSA results day and i know i never will !!!

All best wishes

Pete

User
Posted 07 Mar 2019 at 19:42

Thanks Dave - your message gives me hope. I was diagnosed with G9/T3 in April 2013 and have a low but rising PSA with no further treatment as yet following RP in 2013 and RT in 2016. Great to see that there can be a future. 

User
Posted 07 Mar 2019 at 20:29
Congratulations Dave and Peter, both rapidly moving into TopGun's hall of fame - what a great advert for radiotherapy.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Mar 2019 at 10:33

Great news Dave wish you well for the next 22.

John.

User
Posted 27 Jul 2019 at 18:31

I was 46 when diagnosed, T3b and Gleason 9. Still here 8 years later. On Zoladex, likely to start Bicalutamide in the next year as PSA rising. Still working full time as a teacher. Fell like I need to retire, but still enjoying life. The Christie hospital has been fantastic with me, and give me hope for many years to come.

User
Posted 28 Jul 2019 at 21:43

Fantastic news Dave and you have done us all a service by posting this. I feel this particularly at the moment as my PSA is edging up after RT. This gives us all a tonic.

 
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