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12 years with Gleason 9

User
Posted 07 Mar 2020 at 13:01

Wishing you well Dave fingers crossed for your next tests.

Regards John.

User
Posted 08 Mar 2020 at 17:38
Hi Dave

Fingers crossed its just a blip, had a few of those. If 13 bothers you next year just do 12+1 until 14 arrives.

Good luck

Ray

User
Posted 08 Mar 2020 at 18:02
Dave Iโ€™m so pleased for you. Hope this is just a tiny blip. Thanks for your kind help in the past mate .
User
Posted 09 Mar 2020 at 14:47
Well done dave

Thanks for sharing a positive report giving newer members of this select group hope for their futures

User
Posted 05 Jun 2020 at 14:26

Hi Guys,

Just to let you know my PSA is down to 0.7 and it is now 13 years since diagnosis!

User
Posted 05 Jun 2020 at 14:42

Brilliant news Dave, so good to read this. 

Leila

 

User
Posted 05 Jun 2020 at 16:26
Hey Dave lovely to hear from you mate. If ever we needed a true survivor story itโ€™s now. All the very best to you

Regards Chris

User
Posted 05 Jun 2020 at 19:40

Excellent news Dave - raise a glass or two. Delighted for you. I follow your story with interest as we were both diagnosed at roughly the same time. Your humour, kindness and insights have always been a great tonic. Here's to many, many more years ๐Ÿ‘

User
Posted 05 Jun 2020 at 20:41

Excellent news. I'm G9 myself, I like hearing good news stories. 

Dave

User
Posted 05 Jun 2020 at 21:07

My husband has very recently been diagnosed 3+5, we are devastated to say the least. Had MRI on Monday and now waiting for the MDT next week. It’s helpful reading your story. Thanks for sharing ๐ŸŒน

User
Posted 05 Jun 2020 at 22:33

Great news Dave. 

Ido4

User
Posted 06 Jun 2020 at 00:04

Fantastic news Dave, really happy for you.

Angex

User
Posted 06 Jun 2020 at 12:06
Nice one Dave, keep going well.

Mine is creeping up but ok.

Ray

User
Posted 06 Jun 2020 at 15:03

Great news Dave on your PSA. Only 5 years since my diagnosis, T3a etc.. (all in profile if anyone interested). My Feb PSA test was less than 0.1 for third time after it bounced around all over the place for 30 months.

Keep up the good work, its an inspiration to us all. 

 

Mike

User
Posted 06 Jun 2020 at 15:29

I read your profile, quite a story.    All the best. 

 

There is a Professor Karol Sikora who uses Twitter a lot, he's an Oncologist and wants to get treatment moving again.   He tweeted today:

'What am I hoping to achieve? The country is on its knees. If I can bring a little bit of hope into a few people's lives, that's good enough for me. Treating cancer teaches you that hope is a powerful motivator - I won't apologise to you for trying to help people through this.'

'My first patient at Hammersmith, a lady called Valerie, came to me as she was told nothing could be done - she had 2 small girls. I wasn't hopeful. We used an experimental drug and it worked, she never lost hope. She's still here 34 years later - I learnt a lot from Valerie.'

User
Posted 06 Jun 2020 at 17:10

Prof Karol Sikora opined when as one of the advisers to the Government that the chances of Abdelbaset al Megrahi, the convicted Lockerbie bomber (whose conviction is now in doubt) surviving more than 3 months with advanced PCa was most unlikely. Megrahi was released on compassionate grounds in August 2009 but lived to May 2012 so did well for a man considered to have only 3 months to live. There was talk at the time of the advisers giving the required opinion though!

Keep going Dave, you have many years yet!

Edited by member 06 Jun 2020 at 17:15  | Reason: Not specified

Barry
User
Posted 06 Jun 2020 at 18:32

That’s good news for a newbie like me- diagnosed Gleason 5+4 about 12 weeks ago ๐Ÿ‘๐Ÿป

User
Posted 06 Jun 2020 at 23:17

Always good to hear positive outcomes - thanks for sharing.  I was G9 N1, and latest PSA results are still <0.003.  Maybe I can hope that I will still be the same in ten years time as well!

User
Posted 07 Jun 2020 at 05:42

4 years since my G9 diagnosis.  I’m seriously expecting to be around at year 13 and beyond.  You give real hope.

ulsterman

User
Posted 07 Jun 2020 at 07:32

Well done Dave, Tony was told 14 years ago he had gleason 9 T3B but was actually diagnosed in 2005. but told on 2nd march 2006.   xxxx

 

regards Barbara.

 
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