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Dad, 72, concerned and confused

User
Posted 26 Mar 2019 at 20:57

Hi all, 

First post here and just wanted to get to grips with what we have been told. 

Dad went to docs last week and told that he has "suspected prostate cancer". We had an urgent appointment due to his symptoms, mostly back pain. 

Anyway fast forward to yesterday and we sit down with the consultant who proceeded to tell us that dad was diagnosed with prostate cancer in 2012. My dad has never told us this, but also, because he was being treated for a heart condition back in 2012, that was the priority. The consultant told us that he was on "watchful waiting" but no PSA level test had been done. I am not sure if dad was in denial or completely forgot about it. 

 

He has blood tests done at the doctors and the consultant told us the cancer is now advanced and is in his bones, lymph nodes etc. He said the PSA level was 12000. 

He was given a GnRH yesterday and will have LHRH in a months time. The consultant said although he will get a CT scan, it will be matter of course because he knew from the PSA level it was all over his body. They said chemo will probably.not be an option because of my dadheart condition but the hormone injections will stop all the symptoms and we will have years. 

We haven't had a Gleason score, do you think I should ask for one? What can I expect to see from the CT scan? Are the hormone treatments effective for the high level of PSA? The consultant said that he would expect the levels to come down to single figures. 

They were positive about the outlook but I can't help but worry that he is so far gone now with no treatment and that if this had been monitored we may not be in this position now. I'm not trying to lay blame anywhere, just trying to sort out my head and what is to be expected from technical perspective. I will speak about practical changes with other help available but for now just want to get guidance on this. 

 

Thanks

User
Posted 26 Mar 2019 at 22:29
No, with a PSA level that high they know it’s metastatic (T4) cancer, so there’s nothing to be gained from a biopsy. A Gleason score essentially determines the risk that cancer will spread - in this case they know that it has already done so.

Hormone treatments are generally highly effective and should be able to keep the cancer under control for years.

All the best,

Chris

User
Posted 26 Mar 2019 at 22:34
The CT scan will be useful and should reveal if they have just bone lesions to deal with or if organs and soft tissue are involved too. Assuming your dads cancer is hormone naive ie they haven't already been treating him without your knowledge then he should get a really good response to the hormone therapy and yes he could indeed have "years".

User
Posted 28 Mar 2019 at 21:45

Sorry to hear your news.  I am exactly in same position with my dad who is 75 and it's in his bones.  This site is so helpful as I was very down and negative came on read some stories and it has helped.

Good luck and keep us informed how dad is doing. Very best wishes

 

Jackie x

User
Posted 29 Mar 2019 at 06:32

Dear Nardeeuh,

Best wishes for your Dad. Everything will be fine. 

 

Edited by member 29 Mar 2019 at 06:32  | Reason: Not specified

User
Posted 08 Apr 2019 at 13:18
Nardeeuh,

The hormone treatment is very effective.

I can only offer what I was told by my cancer specialist nurse who said.

'We have a gentleman who has been receiving his hormone treatment for 12 years, his original PSA was 13000, he is still doing well at 90'.

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User
Posted 26 Mar 2019 at 22:29
No, with a PSA level that high they know it’s metastatic (T4) cancer, so there’s nothing to be gained from a biopsy. A Gleason score essentially determines the risk that cancer will spread - in this case they know that it has already done so.

Hormone treatments are generally highly effective and should be able to keep the cancer under control for years.

All the best,

Chris

User
Posted 26 Mar 2019 at 22:34
The CT scan will be useful and should reveal if they have just bone lesions to deal with or if organs and soft tissue are involved too. Assuming your dads cancer is hormone naive ie they haven't already been treating him without your knowledge then he should get a really good response to the hormone therapy and yes he could indeed have "years".

User
Posted 27 Mar 2019 at 08:20
Thank you.

This is positive news.

It's all very new and a bit puzzling.

Thanks for explaining a few things for me.

User
Posted 28 Mar 2019 at 21:45

Sorry to hear your news.  I am exactly in same position with my dad who is 75 and it's in his bones.  This site is so helpful as I was very down and negative came on read some stories and it has helped.

Good luck and keep us informed how dad is doing. Very best wishes

 

Jackie x

User
Posted 28 Mar 2019 at 21:49

Hi Jackie. 

 

We are day 3 of hormone treatment and dad is being kept a close eye on. He is already feeling better whether it's the treatment or his headspace but I am positive of the next results. 

Scan came back to be booked in 8th April so it's all moving quickly.  

Good luck with your dad also, what treatment is he having? How long ago was he diagnosed? 

X

User
Posted 29 Mar 2019 at 06:32

Dear Nardeeuh,

Best wishes for your Dad. Everything will be fine. 

 

Edited by member 29 Mar 2019 at 06:32  | Reason: Not specified

User
Posted 07 Apr 2019 at 22:03

I’m in the same boat my dad is 72 and was diagnosed with bone mets snd 95 percent chance of prostate cancer on Wednesday . I’m really scared waiting on treatment plan tomorrow and possibility of s biopsy which they think is very risky for him due to his heart condition . Glad you got a good prognosis 

User
Posted 07 Apr 2019 at 22:06

Originally Posted by: Online Community Member

Sorry to hear your news.  I am exactly in same position with my dad who is 75 and it's in his bones.  This site is so helpful as I was very down and negative came on read some stories and it has helped.

Good luck and keep us informed how dad is doing. Very best wishes

I’m in the same boat - my dad is 72 how is your dad doing 

Jackie x

User
Posted 07 Apr 2019 at 22:07

Hi how is your dad doing now 

User
Posted 08 Apr 2019 at 13:18
Nardeeuh,

The hormone treatment is very effective.

I can only offer what I was told by my cancer specialist nurse who said.

'We have a gentleman who has been receiving his hormone treatment for 12 years, his original PSA was 13000, he is still doing well at 90'.

 
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