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User
Posted 28 Mar 2019 at 17:59

My dad was diagnosed, in October, with advanced prostate cancer with spreading to his pelvis, bones and the lymph nodes and his gleason score is 5+4. Unfortunately we received the news that his cancer is manageable but incurable which was the hardest piece of news I have heard because he really is one of my best friends.

The last couple of months have been full of doctors appointments, building a treatment plan and getting out heads around it all.

He has just started chemotherapy and is having the hormone therapy every 3 months. He will be having chemotherapy every 3 weeks for 18 weeks and then it's onto radiotherapy after that. 

I would love to hear about some other people's experiences and what we have to expect. I know that everybody is different, I'm just trying to wrap my head around the here and now and what's to come. 

Many thanks to anyone who replies, I am truly grateful.

User
Posted 28 Mar 2019 at 17:59

My dad was diagnosed, in October, with advanced prostate cancer with spreading to his pelvis, bones and the lymph nodes and his gleason score is 5+4. Unfortunately we received the news that his cancer is manageable but incurable which was the hardest piece of news I have heard because he really is one of my best friends.

The last couple of months have been full of doctors appointments, building a treatment plan and getting out heads around it all.

He has just started chemotherapy and is having the hormone therapy every 3 months. He will be having chemotherapy every 3 weeks for 18 weeks and then it's onto radiotherapy after that. 

I would love to hear about some other people's experiences and what we have to expect. I know that everybody is different, I'm just trying to wrap my head around the here and now and what's to come. 

Many thanks to anyone who replies, I am truly grateful.

User
Posted 29 Mar 2019 at 02:04
Hi Kat, my husband was diagnosed at the end of November with advanced prostate cancer. Similar diagnosis with the added complication of a fractured hip. If you look at my profile you can see what the last few months have held for us. As, you say, it’s hard to get your head around it all.

He had his first infusion of chemo on 22nd March and so far he has not suffered any nausea or fatigue but he’s been told that his reaction might be different to subsequent infusions. So he’s playing it by ear, resting when tired and trying to avoid infection. I hope your dad copes with it OK. Lots of people seem to get through with few side effects but every one is different. How old is your dad?

Look after yourself

Best wishes

Betty

User
Posted 29 Mar 2019 at 07:22

Hi Betty123,

My dad is 54 years old. 

I'm sorry to hear about your husband and the diagnosis and I hope that things move in a positive way. 

We've had a few bumps on the way to his first chemotherapy session as he was referred to cardiology and his PSA wasn't lowering after starting hormone therapy. But treatment has finally started and, although the cancer is incurable, we are hoping and praying for a really great response from the treatment. 

Thank you so much for replying xx

 

 

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User
Posted 29 Mar 2019 at 00:10
Hi... Sorry to hear about your dad... My husband was diagnosed exactly a year ago today.. He has locally advanced pc. He's on the 3 monthly infections and had chemo.. He coped well with the chemo with a few side effects. Bone pain and tiredness being the worst this usually started about day 4 to 8. He managed to work although it was from home all the way thru. He used a mouth wash every day so he didnt get any mouth ulcers and never felt sick..

Hope your dad copes aswell as my oh

Karen

User
Posted 29 Mar 2019 at 02:04
Hi Kat, my husband was diagnosed at the end of November with advanced prostate cancer. Similar diagnosis with the added complication of a fractured hip. If you look at my profile you can see what the last few months have held for us. As, you say, it’s hard to get your head around it all.

He had his first infusion of chemo on 22nd March and so far he has not suffered any nausea or fatigue but he’s been told that his reaction might be different to subsequent infusions. So he’s playing it by ear, resting when tired and trying to avoid infection. I hope your dad copes with it OK. Lots of people seem to get through with few side effects but every one is different. How old is your dad?

Look after yourself

Best wishes

Betty

User
Posted 29 Mar 2019 at 07:14

Thank you so much for your reply and I'm sorry to hear about your husband. 

I almost feel like I'm constantly wanting all the answers but need to remember to take things one step at a time. But I'm glad your husband hasn't had too many problems with the side effects and I hope that things continue that way and in a positive direction for you both x

User
Posted 29 Mar 2019 at 07:22

Hi Betty123,

My dad is 54 years old. 

I'm sorry to hear about your husband and the diagnosis and I hope that things move in a positive way. 

We've had a few bumps on the way to his first chemotherapy session as he was referred to cardiology and his PSA wasn't lowering after starting hormone therapy. But treatment has finally started and, although the cancer is incurable, we are hoping and praying for a really great response from the treatment. 

Thank you so much for replying xx

 

 

User
Posted 29 Mar 2019 at 08:06
Thinking of you. Don’t hesitate to jump on to the forum if you’re feeling confused. The Specialist Nurses are great too.

Best wishes

Betty

User
Posted 31 Mar 2019 at 03:45

My husband us the same age as your dad 54  his psa is 0.1 and had been for 9 months now, so we are slowlt feeling more positive, but do get anxious when his 3 monthly blood tests are due..

Feel free to ask any questions. 

 

Karen

User
Posted 31 Mar 2019 at 09:43

Hi Kazzy,

Sorry to hear that you and your husband are going through this but great to hear his PSA is staying low.

How did treatment go for your husband? 

My Dad is having chemotherapy once every 3 weeks for 18 weeks and then radiotherapy after that. Along with the hormone therapy, this will hopefully manage the cancer for a good amount of time. 

Have you got any useful ideas on how to support my dad?

Many thanks for your reply xx

User
Posted 01 Apr 2019 at 06:57

Hi , really sorry to read about your Dad.

rather than repeat my bio have a look at that. i was 49 on diagnosis, gleson 9, i am now 54, psa 0.05 about to run the marathon des sables (250kilometres accross the Sahara carrying 11kg) on friday for the 4th consecutive year with T4 prostate cancer, only person to do that with any T4 cancer.

the journey has its bumps but life is good for me ( i am luckier than many i know) never give up, take a look at my website www.makethemostofit.org to see what can be done despite cancers best effort to thwart me.

Kev 

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 01 Apr 2019 at 23:28

I've sent you a private message x

 
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