Worried again - back ache - Localised cancer - Prostate Cancer UK Online Community

User

Posted 15 Apr 2019 at 11:20

Hi everyone,

I'm afraid I'm worrying again! Mr L has been complaining of lower back pain since the middle of last week. He reckons it's because he's got a new bike seat, however I'm worrying it could be something else. We're 18 weeks post RRP, his first PSA test in February showed <0.05, and the bone scan he had 2 days pre op was normal. Do you think this is something to be concerned about? I'm finding since this diagnosis I worry about every little thing. I try not to let it show to Mr L, and he seems to be carrying on as normal. Any advice is very much appreciated.

Thanks

Michaela

User

Posted 15 Apr 2019 at 12:24

Given those results you are worrying about nothing..

Fingers crossed you have all the indicators for a durable remission..

The worry thing goes with the territory I'm afraid but it won't help you or your other half. Try to put PC out of your thoughts.

User

Posted 15 Apr 2019 at 14:13

Thanks for the reply Franc. I know you’re right, I just can’t help but think everything is related to bloody PC. I know it’s something I have to learn to live with, like all you guys are. Some very sad stories on here, which makes this damn thing so frightening.

Thanks again

User

Posted 15 Apr 2019 at 14:23

Hi Michaela,

I think I did say to you once in an email that if your man had the op, you could both look forward to a cancer-free 2019. So hopefully he is.

You and Haig, the man who never had cancer (look him up), could form Hypochondriacs Anonymous and you could be in the vicarious branch!

I know every little thing is a worry and the C word is a shock to most people. But worry about his next PSA test result if you want, not back pain.

All the best.

Cheers, John.

User

Posted 15 Apr 2019 at 17:07

Hi John, thanks for your reply! Yes I recall you saying that to me, I just need to believe it. It is such a shock and even after the initial treatment, this thing just goes on and on.

Lol, yes I think Haig and I would get on very well!! It’s a good job Mr L doesn’t read this very often, he’d be a nervous wreck if it was left to me!!

thanks again

User

Posted 16 Apr 2019 at 12:09

Hi Michaela,

I know exactly how you feel. I am an optimist but i hurt my shoulder a few months back over training in the gym. It was agony and i was worried that the injury could have been caused by bone mets or weakened bone due to the HT.

But, they had a look with an ultrasound and some old X-rays and it appears to be trapped nerves causing the pain, which has now completely gone! So i was worrying about nothing.

It sounds like everything so far is going in your favour, don't spoil it by worrying about everything. We have to take every day we are given and make the most of it. There are some great teachers of that Philosophy on this forum.

Perhaps Mr L really needs a different bike seat 😆

take care and have a good day ,

Phil

User

Posted 17 Apr 2019 at 08:32

Thanks for your reply Phil, and I'm glad your shoulder is feeling better! I can't tell you how encouraging it is to hear the people on here tell me our chances are good, it lifts me enormously. I don't think I'll ever get used to waiting for the 3 monthly PSA results, feels like torture, and indeed never ending.

Oh and the bike seat was a new one! the second new one since March!

Thanks again,

Michaela

User

Posted 17 Apr 2019 at 09:08

Perhaps it is still too soon to be cycling :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Apr 2019 at 12:50

Michaela, The waiting for PSA results is always , and will always be difficult. Back in December my consultant told me he didn't need to see me or have a PSA test for 6 months . I was gobsmacked - 6 months - i felt abandoned. I only finished my Radiotherapy in August of last year so i felt it was really early to go 6 monthly. But we have to trust them and he was adamant all was OK so I've learnt to put the worry in a little box , and you will too, as time goes on.

I just got 2 weeks notice from my job without any warning ( i am an agency consultant). No work pension, no severance pay and a specialised job so difficult to find something else. So was a big blow but we have to find a way through. I refuse to be trodden down by this damned disease.

I know you too will find a way to reduce the worrying and it sounds like you are looking for that pathway and you will find it. Just try to remember that everyday is an extra gift ................

Take care,

Phil

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