I've thought long and hard on the choices ahead: I would not be happy to go back on hormones long term, though I'd give it a go. Same with chemotherapy: without a more convincing story about success, I find it hard to justify the side effects.
Point is, it's about lifestyle, and we're all different. Living, to me, includes getting out to live music at least a couple of times a week, getting to festivals, and traversing the country to keep up with extended family and old friends. If the disease - or its treatment - confined me to barracks, I'd call that existing, not living. And I'd opt out. Not while the balance of the mind was disturbed, but before I got to that.
I certainly wouldn't make any hard decisions until it was certain I had recurrence. But then I'd give HT a try - maybe it'd be easier second time around. And I'd give chemo a chance - some people sail through it.
I think what I'm saying is that you're best taking life changing decisions based of the practicalities of YOUR life: there's no standard definition of 'feeling crap' (though we all know what you mean!).
But asking your consultant to guesstimate your life expectancy with / without further treatment is perfectly reasonable step - provided you never forget that it's a guesstimate, not a fact.
Edited by member 29 Apr 2019 at 09:52
| Reason: typos