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User
Posted 12 May 2019 at 21:21

So dads in hospital again. Hes still on abiraterone but in extreme pain. It's not being managed well at all with higher doses of morphine and pregabalin. Hes still as sore but now very drowsy and a bit away with the fairies when he is awake. Has anyone else ever gone through this amount of pain as it's not something that I read about very often. 

Miffy
User
Posted 12 May 2019 at 23:35
If it's bone pain this can be helped with radio therapy - my dad certainly benefitted from it.
User
Posted 13 May 2019 at 13:39

My dad was in immense pain 3 weeks ago up to his tonsils on oxy and the like. He is newly diagnosed with spread to bones . He also had pneumonia at time of diagnosis and psa is 1000. He had one radiation treatment to bones and is off painkillers. Still very very weak and unable to walk without breathlessness but vastly improved . These things can turn around . Saying a prayer 

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User
Posted 12 May 2019 at 23:35
If it's bone pain this can be helped with radio therapy - my dad certainly benefitted from it.
User
Posted 13 May 2019 at 08:02
Metastatic prostate cancer is extremely painful for most men towards the late stages. The myth of a painless death is rarely achieved. The trick is balancing the meds so that pain is controlled without the man being in a permanently unconscious state - not something that hospital oncology teams or GPs are usually particularly skilled at. If not already done so, ask for a referral to the local hospice who are generally the specialists in pain control - or perhaps the pain clinic at your hospital, if there is one.

RT can sometimes be offered if one or two bone mets are causing most of the pain, or if the mets are making the bone unstable.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 May 2019 at 08:25

He is being referred to the hospice but cant get a place until he gets an MRI in hospital. I understand your point and appreciate your reply but was not expecting anyone to mention death or late stages. I am not under any illusion but don't really want to talk about that at this point, its particularly hard as it is and merely some comfort and insight into other peoples experiences with pain was what I was looking for. 

Miffy
User
Posted 13 May 2019 at 13:39

My dad was in immense pain 3 weeks ago up to his tonsils on oxy and the like. He is newly diagnosed with spread to bones . He also had pneumonia at time of diagnosis and psa is 1000. He had one radiation treatment to bones and is off painkillers. Still very very weak and unable to walk without breathlessness but vastly improved . These things can turn around . Saying a prayer 

 
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