Bazza - seriously bad news. Seriously

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User

Posted 30 May 2019 at 18:41

Those three dates Lyn

Results

Doubling Time = 3.61 month
Doubling Time = 0.3 years
Velocity = 8.52 ng/ml/month

User

Posted 30 May 2019 at 18:55

A 1000 in 2020. I’ll be dead surely?

User

Posted 30 May 2019 at 20:31

Hi Bazza ,

not much that I can add , stay strong

Barry

I hope I make ten I am on 8&1/2 at the moment

User

Posted 30 May 2019 at 21:05

My PSA was over 1000 3 weeks ago and I am by no means dead. Hang on in there!

User

Posted 31 May 2019 at 17:37

Lyn, phosphotase alkaline level was 101 u/l which I understand is normal. Does this sound right as I was worrying about bonage

User

Posted 31 May 2019 at 18:10

Normal reading so it seems there is no particular activity going on in your bones or liver (I would have been more worried about your liver, tbh).

Have you had a bad chest infection recently? Just wondering about the comment that you have some signs of collapsed lung indicative of recent infection. Maybe the 90 reading is erroneous?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 31 May 2019 at 18:27

No but serious night sweats and a high temp for five days. I put it down to SEs of chemo Lyn.

User

Posted 31 May 2019 at 18:52

These were also bloods taken as the hosp which I’ve never had before, always just a separate blood centre. When do you reckon I should have a blood centre PSA for comparison? I so hope you’re right.

this is a surreal few days - oceans of tears, tons of close cuddles, so much love between Jo and I and an overwhelming feeling of being robbed because of our age and our situation and that everything is so perfect between us. She really was my first true love and despite 34 years with another, my mind obviously never expunged her memory. She is a truly beautiful woman inside and out and I cannot imagine my life without her in it or hers without mine. This is so effing tough Lyn.

User

Posted 31 May 2019 at 19:42

I know but look how far you have come. 9 years ago you were saying that you would never cope if you had a recurrence; you have said more recently that if / when you got to the 'no more treatment' stage you wouldn't be able to cope. Now look at you; you are happy after many years of feeling sad and unsupported / you are ready to kick ass with alternative treatments / there is some possibility that you are not yet at the 'no treatment' point after all.

You are, and always have been, stronger than you think. Get some clarification of your results, perhaps?

Edited by member 31 May 2019 at 22:14 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 Jun 2019 at 05:46

Thanks Lyn xxx

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