Lymph drainage

User

Posted 02 Jun 2019 at 13:18

i have cancerous lymph’s in the groin causing swelling in the pubic area and obvious knock on swelling in parts I’d rather not mention. There is nothing here in France to drain this areas and relieve pressure so that the embarrassing swelling subsides. Does anyone know of a place in the UK used to lymph node issues caused by the spread of cancer who could help. Private or NHS but must be good. Thanks

User

Posted 02 Jun 2019 at 14:37

I don't think there is any treatment for it. Lympodema in the feet and legs can sometimes be relieved by lymph draining massage but it doesn't solve the problem and I don't think that it could be done in the groin area. People with lymphodema due to heart failure are often given water tablets but these don't work if the swelling is due to other causes.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Jun 2019 at 16:20

So what do I do Lyn?

User

Posted 02 Jun 2019 at 17:43

Ask whether there are any lymphodema therapists in your area that could teach you how to massage / manually drain some of the fluid yourself? Important to look after your skin as well to avoid infection/ cellulitis

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Jun 2019 at 18:42

I asked my surgeon about the post-operative risk of lymphoedema, having had several pelvic lymph nodes removed during my surgery. He said it was 3%.

I had a shock this week, when I discovered I had swollen feet. However, I checked the pedometer on my phone and it said 15,000 paces, traipsing all round Hamburg.

Pleased to say, back home the swelling has gone down.

Still breathing, then.

Best of luck with your condition, Spartacus.

Cheers, John.

User

Posted 02 Jun 2019 at 20:06

Hello-have you had a definitive diagnose of cancer having spread to lymphnodes?(This is crucial info needed to determine whether or not you can be treated with MLD)..

User

Posted 02 Jun 2019 at 20:53

Yes he does, so although no massage can be done directly in the groin area, I was thinking that a therapist may be able to teach him a technique to reduce the swelling in his penis a bit?

The bigger question is whether he can access a qualified lymphodema therapist in the depths of France where his nearest oncology centre is two hours away :-(

Do you fancy a trip to France, BD - my guess is that you would have very little competition?

Edited by member 02 Jun 2019 at 23:12 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Jun 2019 at 22:39

Prostate cancer breakthrough: New treatment 'destroys' tumours

https://mol.im/a/7096959

I don’t know whether you have seen this article from the Mail on line. It may be of interest.

User

Posted 02 Jun 2019 at 22:50

Bazza - maybe you could contact the lymphedema support network - they have a telephone support line - https://www.lymphoedema.org/

Ulsterman

User

Posted 03 Jun 2019 at 02:58

At least one of our members has had Lutetium 177 privately abroad and when he last posted was doing well. Unfortunately, it is very expensive. I am sure it will become gradually available in due course on the NHS but Bazza might benefit from it now. It does require you having a preliminary PSMA scan to see whether you will be suitable, about 8% of men are not. (see Notabene's profile/bio).

Edited by member 03 Jun 2019 at 12:36 | Reason: Not specified

Barry

User

Posted 03 Jun 2019 at 20:39

Hi Bazza

I don't know where in France you are but there are many Thermal Sulphur baths in the Pyranees.

One in particular at Les Thermes de Luz, Saint Sauveur advertises as specialising in the treatment of Lyphadema. Most of the Thermal Spas are set up to receive and treat French people sent by the Medical authorities. My neighbour comes down from Paris for 2/3 months to go for treatment at the Thermal baths.

I'm not sure this helps but I would try it, it does no harm.

Paul

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