I apologise for a bit of a rant.
I can relate only my own experience. Without using the Conveen system, I would have had to opt for early retirement because I had no control at all during the day. As for the Conveen making me lazy, it was while using it that my sphincter recovered (very suddenly) to a point where I had about 20 minutes of grace before losing control. Unfortunately, as can be seen from my bio, there was no further progress. The Conveen components are available on prescription and so (in Wales anyway) are free of charge.
If anyone wishes to say that I was not doing PFEs properly, they will get a very dusty answer. They were absolutely no use at all. The verdict from a physiotherapist was that I was doing everything correctly and my pelvic floor was in good condition.
I just wish that medical advice about post-prostatectomy incontinence would veer away from blanket statements like "Conveen makes you lazy", "you're not doing PFEs correctly" and so on. My personal feeling, for what it is worth, is that if continence is going to come back in a reasonable time, then it will. Great. If it takes a little longer, persevere and all will be well, and there are several routes to mitigate the symptoms in the meantime. If continence does not come back, it is not the end of the world and there are solutions that make a return very close to normal life a possibility. The urinary system is pretty complicated and taking away a large part of it is bound to cause disruption. Consequently, I think it is hardly surprising that post prostatectomy experiences are so varied.
It is wrong to push the blame for lack of recovery from incontinence back onto men who have been through a fairly traumatic time and probably will try to move mountains to get back to as normal a life as possible.
Tony
TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015. |
User
If you are diagnosed with PCa in England you get free prescriptions whatever your age.
Cheers, John.
User
just to add these external catheters have been a great help to me i have just about got control back at night ,but day time is still a way off and by using these i can pretty much do as i did before... i use the ones that you wear direct and then wear boxer shorts on top which helps to hold them in place ... there is another type which is built direct into boxer shorts but i didn't get on so well with those
User
A bit of an update
it's 10 weeks since the operation ...night time is ok now and the day time is gradually starting to return, its easiest to control whilst sitting down, still a lot of leakage when walking though.....i've not as yet used any pads , as i prefer the external catheters and a leg bag