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Reaction to treatment

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User
Posted 10 Jun 2019 at 23:06

Today my husband was due to have his second dose of chemo (Docetaxel). He had his first treatment 4weeks ago and coped really well with hardly any side effects. Today his bloods were all good and the treatment given the go ahead. However, a couple of minutes into the treatment he took a very bad reaction which was very frightening both for him and myself. He turned purple but the doctors and nurses were very quick to deal with it. He has now been told that he will not be able to have Docetaxel again. Has anyone ever experienced this. He has a review appointment next Monday to discuss the way forward. 

User
Posted 17 Jun 2019 at 18:12
This whole cancer has a significant effect on your relationship. That’s why they call it the couples disease. Whether you’ve had surgery or RT or HT or Chemo or the lot mixed together , your life and relationship and sex-life changes forever. There simply is no way to deal with PCa without causing life long side effects both mental and physical. Some men are ‘cured’ by surgery yet never get over the sexual disfunction. Some men get over surgery entirely and yet are not cured. Others take every treatment going and watch their relationship crumble. Even the ones who have survived 10 yrs must have a deep rooted fear in their chests all the time. Saddest time of my life tbh this last 4 yrs and it ain’t started yet :-((
User
Posted 11 Jun 2019 at 12:14
Hello

Sorry I have never had chemo but it sounds like the nurses and doctors had seen your husbands reaction before and should come up with alternatives.

Best of luck with everything

Paul

User
Posted 16 Jun 2019 at 12:26

Hi there,

i also had a reaction to the second dose of Docetaxel and my wonderful wife described me as an Umpah Lumpah, nice!

I had an immediate response from the nursing staff to stem the reaction with antihistamine. 

They carried on with the dose but administered at half the rate. Thereafter I had no reactions and the infusion of Docetaxel was always preceded by an infusion of antihistamine.  No mention of not being able to continue.  😀

 

 

 

 

User
Posted 17 Jun 2019 at 15:07

There's a good thread on hormone treatment https://community.prostatecanceruk.org/posts/t21321-Hormone-treatment-lack-of-support-from-NHS - just skip all the posts about the NHS which are mixed in through it.

As a T3bN1M1, I presume his hormone treatment will be life-long. It will eventually stop working by itself, and other drugs will be added, and chemo might be tried again (and there may be better drugs by then than there are now). I've been on it for 10 months and one of the posts by me in the thread above details the side effects, and another details the order they hit me. Others here have been on it for very many years.

A key thing to note is that hormone therapy may have a significant impact on your relationship, and you both need to understand that and communicate well with each other to handle it. Some people find counseling can be very helpful. The specialist nurses (number at top of page) also deal with the related emotional issues, so do call them if you need to.

Edited by member 17 Jun 2019 at 15:08  | Reason: Not specified

User
Posted 18 Jun 2019 at 20:54

An allergic reaction to chemo is rare but clearly possible. Just to let you know my hubby is a G10 T3,N1,N1 and nearly nine years on has mainly just been on HT. he has had chemo only in 2018, after years of zoladex, bicalutimide, stillbestrill and then radium 223. He’s now on Enzalutimide and doing ok. We have been very, very lucky. I’m saying it’s possible that the fantastic response to the PSA drop is good news and maybe he will do better than you think, it’s hard to know, there are men who have done well on HT for many years, despite awful diagnoses.

love

Devonmaid xxx

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User
Posted 11 Jun 2019 at 12:14
Hello

Sorry I have never had chemo but it sounds like the nurses and doctors had seen your husbands reaction before and should come up with alternatives.

Best of luck with everything

Paul

User
Posted 16 Jun 2019 at 12:26

Hi there,

i also had a reaction to the second dose of Docetaxel and my wonderful wife described me as an Umpah Lumpah, nice!

I had an immediate response from the nursing staff to stem the reaction with antihistamine. 

They carried on with the dose but administered at half the rate. Thereafter I had no reactions and the infusion of Docetaxel was always preceded by an infusion of antihistamine.  No mention of not being able to continue.  😀

 

 

 

 

User
Posted 17 Jun 2019 at 14:12

Just back after review with the Doctor. They are going to stop Chemo (Docetaxel) treatment and just continue with the 3 monthly  injections (decapeptyl).  My husband is Gleason 8 T3b N1 M1.  I’m sure there are others on this site who are on HT alone and I was just wondering how long they have been on this. His psa has dropped from 171 to 0.24 which is really good. He was first diagnosed in January 2019.

User
Posted 17 Jun 2019 at 15:07

There's a good thread on hormone treatment https://community.prostatecanceruk.org/posts/t21321-Hormone-treatment-lack-of-support-from-NHS - just skip all the posts about the NHS which are mixed in through it.

As a T3bN1M1, I presume his hormone treatment will be life-long. It will eventually stop working by itself, and other drugs will be added, and chemo might be tried again (and there may be better drugs by then than there are now). I've been on it for 10 months and one of the posts by me in the thread above details the side effects, and another details the order they hit me. Others here have been on it for very many years.

A key thing to note is that hormone therapy may have a significant impact on your relationship, and you both need to understand that and communicate well with each other to handle it. Some people find counseling can be very helpful. The specialist nurses (number at top of page) also deal with the related emotional issues, so do call them if you need to.

Edited by member 17 Jun 2019 at 15:08  | Reason: Not specified

User
Posted 17 Jun 2019 at 18:12
This whole cancer has a significant effect on your relationship. That’s why they call it the couples disease. Whether you’ve had surgery or RT or HT or Chemo or the lot mixed together , your life and relationship and sex-life changes forever. There simply is no way to deal with PCa without causing life long side effects both mental and physical. Some men are ‘cured’ by surgery yet never get over the sexual disfunction. Some men get over surgery entirely and yet are not cured. Others take every treatment going and watch their relationship crumble. Even the ones who have survived 10 yrs must have a deep rooted fear in their chests all the time. Saddest time of my life tbh this last 4 yrs and it ain’t started yet :-((
User
Posted 18 Jun 2019 at 20:54

An allergic reaction to chemo is rare but clearly possible. Just to let you know my hubby is a G10 T3,N1,N1 and nearly nine years on has mainly just been on HT. he has had chemo only in 2018, after years of zoladex, bicalutimide, stillbestrill and then radium 223. He’s now on Enzalutimide and doing ok. We have been very, very lucky. I’m saying it’s possible that the fantastic response to the PSA drop is good news and maybe he will do better than you think, it’s hard to know, there are men who have done well on HT for many years, despite awful diagnoses.

love

Devonmaid xxx

User
Posted 18 Jun 2019 at 21:37

Thank you, this is very reassuring. Let's hope his PSA results are a good sign. 

 
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