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Early days of self-catheterising

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User

Posted 24 Jun 2019 at 19:50

Hoping someone can assure/reassure me on this early stage of my treatment ! Now 3 weeks into my daily self catheterising with a “urology dynamics” appointment booked for next week, my simple question is as follows. Is it “normal” to feel the need to pee immediately on completely emptying my bladder via the catheter, followed by the same urgent need for a few hours afterwards - with no urine being produced ? This a new symptom/feeling as it only first occurred yesterday and happened again today - somewhat disconcerting & uncomfortable I must admit.

For the relevance of my “technical specification”; my average once-only catheterised daily output is 300 ml with a target to reduce to between 200 & 250 ml. Looking forward to hearing news from those beyond my situation.

Thanks in anticipation

User

Posted 24 Jun 2019 at 22:22

Could be infection - self catheterisation increases the risk

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Jun 2019 at 22:43

I assume you are still passing urine naturally as 300ml a day is not alot and a low output could lead to infection as suggested. Why do you want to reduce the out put to 200-250. I did IS dilation once a day for about a year or so and it does upset your normal routine.

Added

Do you mean you are retaining urine and the ISC is to completely void the bladder, hence trying to bring the residual urine level lower.

Thanks Chris

Edited by member 25 Jun 2019 at 18:05 | Reason: Not specified

User

Posted 25 Jun 2019 at 18:52

Drummerboy,

It's not a sensation I've experienced. Maybe you've picked up an infection?

re. your target to reduce your cathetised output from 300ml to between 200 - 250ml, I'm not sure I follow you. Is this a target agreed with your urologist?

My regime was (is) to cathetise daily and aim to empty my bladder and then to extend the duration between the need to cathetise so every day, every other day, twice a week, once a week etc.

Flexi

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User

Posted 24 Jun 2019 at 22:22

Could be infection - self catheterisation increases the risk

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Jun 2019 at 22:43

Added

Do you mean you are retaining urine and the ISC is to completely void the bladder, hence trying to bring the residual urine level lower.

Thanks Chris

Edited by member 25 Jun 2019 at 18:05 | Reason: Not specified

User

Posted 25 Jun 2019 at 18:52

Drummerboy,

It's not a sensation I've experienced. Maybe you've picked up an infection?

re. your target to reduce your cathetised output from 300ml to between 200 - 250ml, I'm not sure I follow you. Is this a target agreed with your urologist?

My regime was (is) to cathetise daily and aim to empty my bladder and then to extend the duration between the need to cathetise so every day, every other day, twice a week, once a week etc.

Flexi

User

Posted 25 Jun 2019 at 19:40

Many thanks to colwickchris, Lyn & flexi

Yes the 200-250 ml bladder draining is an agreed target with my specialist nurse, with the intention to reduce my ISC procedures, hopefully to alternate days then less frequently, it's good to have goals !!!! I do pee normally throughout the day (and night) albeit with less flow pressure, but I've been prepared to expect that. I'm catheterising because my consultant was very concerned about my retained urine with a bladder scan reading of 416ml on the day of my diagnosis ( It was explained that retained urine can lead to many other problems).

I did wonder about infection but as far as I'm aware there are no other signs. My ISC hygiene regime is scrupulous (as it MUST be) and I'm hoping the urodynamics procedure next week will also enable me to obtain answers. I must admit catheterising is as difficult now as it was on the 1st day, I can only hope that practice makes perfect.

My core question yesterday was others' experiences of the need to urinate immediately after ISC bladder emptying and for the following few hours ? If a fellow sufferer out there has been through the same I would appreciate the advice. I really do find this online forum most useful, and hope we are all helping each other.

User

Posted 28 Jun 2019 at 14:08

Thanks again to all. Just confirming I have got a bladder infection and I’ve been prescribed Trimethoprim antibiotics for 5 days. At least I now know what the strange sensations were, and they’re easing already.

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