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Oh dear - back on Hormone Therapy

User
Posted 29 Jun 2019 at 07:30

It was all going so well but over the last 6 months my PSA has been rising from 0.38 to 4.10 now.  I had an MRI last December and was called back for an enhanced MRI the same month.  Neither showed any recurrence of cancer in the prostate but my PSA continued to rise.  My oncologist thought that some cancer cells had ‘escaped’ to somewhere else in my body so she arranged a full bone scan and CT scan.

At my appointment this week she said that there was a very small spot on a lymph gland and something at the base of my spine which she thought was dead cells from my prostate.

I now have to have Bicalutamide for 14 days before and after a first Prostap injection, thereafter injections every 12 weeks.  She did say I didn’t have to continue this forever but could take a break at some point.

This is disappointing but I’m pleased that she’s proactive arranging tests etc.

Arthur

User
Posted 29 Jun 2019 at 20:11
Best wishes and all good luck. I know I’m a little / lot mental but so glad still to have avoided any further treatment other than surgery. I’m just 4 yrs post op and because I continually refuse futile SRT they won’t offer further treatment until scans confirm advanced. And they haven’t yet despite psa well over 100 now. My kidneys are showing damage from all the tracer contrasts re PET / CT / Bone scans , so they leaving it six months. More holidays booked already and enjoying the full QOL.

If life gives you lemons , then make lemonade

User
Posted 21 Aug 2019 at 18:11
Just had my annual medication review with GP which included several blood tests including PSA which has reduced to 1.08 from 4.10 so at least the HT is suppressing it.
User
Posted 17 Jul 2020 at 12:43

Hi All,

Phone call from oncologist yesterday, PSA now 0.05 all other blood tests ok.  Next appointment in 4 months not the usual 3.

Things didn’t look good in January 2013 (see my profile) I hope this is an encouragement to you all.

Arthur

 

User
Posted 02 Jul 2019 at 08:28

Hi Arthur, 

I'm so sorry to hear that you are back on HT again as you've done so well without it for several years. 

I know how disappointed you must be but hopefully, this will keep everything under control for a long time.

Fingers crossed, keep in touch. 

Steve 

 

 

 

 

User
Posted 18 Jul 2020 at 11:49

Thank you all for your replies - I’ve been very fortunate.

User
Posted 11 Mar 2021 at 15:21

Oncology appointment by telephone today, PSA now 0.02.   All other blood tests ok.

Next appointment in 4 months

I hope this gives you all some encouragement.

Arthur

User
Posted 29 Jun 2019 at 10:29

Sorry to hear that Arthur. Hope the HT brings everything back under control.

 

Ido4

User
Posted 29 Jun 2019 at 15:13
Oh dear indeed Arthur. That's not the best of news. On the positive it reads you have a good team behind you.

Good luck

Ray

User
Posted 29 Jun 2019 at 18:49

Hi Arthur,
my PSA rose from 0.04 in 2017 to 3.1 had CT/ scan showed three tumours , one in my spine ,right shoulder , left groin , I had early chemo six sessions and back on Prostap , this Sept will be two years since back on hormones 

Psa at the moment is 0.01 , but I know I am now on the wrong side of the track , please see my profile
Good Luck

User
Posted 29 Jun 2019 at 20:48

Arthur

Sorry to hear about the rise, I was not given HT so I don't know alot about its effects, there is bit of bury my head in the sand until I need to know. Hope all goes well and thanks for the support you have given me over the years.

Thanks Chris

Edited by member 29 Jun 2019 at 20:49  | Reason: Word corrected

User
Posted 23 Aug 2019 at 21:23
Hope the good news continues.Keep doing well.

Ray

User
Posted 24 Aug 2019 at 07:51

Arthur

That's good to hear, 

Thanks Chris

User
Posted 03 Oct 2019 at 20:31

Originally Posted by: Online Community Member

Oncology appointment today - PSA now 0.48.  Oncologist asked if I had poor flow, which I don’t have but didn’t think at the time what that could mean.

Could it mean in spite on being on HT again there are physical changes to my prostate?

Next appointment in 3 months

I don't think you should read into that question that you might have a problem.

Barry
User
Posted 05 Oct 2019 at 02:29

Hi Arthur, 

It sounds as though your treatment is working well in reducing your PSA.

Well done. Long may it continue. 

Steve 

User
Posted 05 Oct 2019 at 08:38

Arthur

Good to see another fall. RT can have an impact on the urethra and flow, so he was perhaps just checking progress.

Thanks Chris

User
Posted 05 Oct 2019 at 18:32
Sounds good Arthur , I am pleased for you .

a lot of the lads go IHT after about a year,

I am looking to have a break , my PSA has been 0.04 for two years now

Regards Barry

User
Posted 02 Jan 2020 at 18:18

I hope things continue to go well Arthur.

Ido4

User
Posted 02 Jan 2020 at 18:23

Arthur

Great news,  have a good new year.

Thanks Chris

User
Posted 02 Jan 2020 at 18:26
Nice one Arty. Keep the faith

If life gives you lemons , then make lemonade

User
Posted 03 Jan 2020 at 00:40
Well, that's a great way to start the new year 👍
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Apr 2020 at 16:05

Hi Everyone,

Just had telephone appointment with my oncologist - PSA now down to 0.09, all other blood tests ok.

Next appointment in 3 months.     I must admit, in my case, appointment over the phone works for me.

Arthur

User
Posted 09 Apr 2020 at 17:02

Arthur.

Great news , I have phone conversations with my onco nurse and probably get a longer conversation than face to face, also saves me a £4 car park charge. 

Thanks Chris

User
Posted 09 Apr 2020 at 18:08
Great news Arthur. I have my May Onco via telephone and a district nurse is coming to take all my bloods next week. I’m hoping psa isn’t like 800 :-// but I reckon it will be. Take care

If life gives you lemons , then make lemonade

User
Posted 09 Apr 2020 at 19:22

That's brilliant, Arthur.

Wish I could get a result like that.

Take care and look after yourself. 

Steve 

User
Posted 09 Apr 2020 at 22:52

Great result Arthur.

 

Ido4

User
Posted 09 Apr 2020 at 22:59
Excellent news, Arthur! Have a good Easter.

Very best wishes,

Chris

User
Posted 10 Apr 2020 at 08:32
Encouraging results Arthur, we'll done.
User
Posted 10 Apr 2020 at 11:13

Excellent result. My position is not identical to yours but similar. Recurrence in 3 lymph nodes treated with SABR radiotherapy and 2 years on bicalutamide.

I know it might not be healthy to focus too rigorously on one's PSA scores but a good one is a real boost.

User
Posted 14 Apr 2020 at 19:50
Good news Arthur. HT holiday sometime in the future looks possible, hope so. When in Skeg I had over the phone appointments, well pleased with them.

Ray

User
Posted 17 Jul 2020 at 13:58

Arthur

That is good news. I have just read your bio, that is quite a journey you have been on, lots of ups and downs. Hope you get a lot more ups.

Thanks Chris

 

User
Posted 17 Jul 2020 at 18:56

That is fantastic news Arthur. 

Ido4

User
Posted 18 Jul 2020 at 18:43
Gunning for you Arthur. What a journey but you’re holding on in there mate

If life gives you lemons , then make lemonade

User
Posted 18 Jul 2020 at 18:43
Gunning for you Arthur. What a journey but you’re holding on in there mate

If life gives you lemons , then make lemonade

User
Posted 20 Jul 2020 at 07:01

Sounds like more good news Arthur
Keep it up 
Regards Barry

User
Posted 20 Jul 2020 at 14:01
Good results Arthur. Must have been pretty pleasing to have had an HT holiday - was it 2-3 years.

Great that the restart on HT has brought your psa back down to immeasurable.

I'm certainly gunning for you.

Paul

User
Posted 28 Oct 2020 at 09:57

Hello Arthur, this looks like a good way forward for you and I do hope things are continuing to go well. It's such a roller coaster at times, isn't it. Hope you're doing well on your treatment 

Alison x

'Sorrow looks back, worry looks around, but faith looks up'
User
Posted 12 Nov 2020 at 16:35

good news Arthur,long may it continue.

regards Barbara

Edited by member 13 Nov 2020 at 08:11  | Reason: spelling

User
Posted 12 Nov 2020 at 17:07

Fantastic result Arthur.

Ido4

User
Posted 12 Nov 2020 at 17:36
Happy for you Arthur. Great news

If life gives you lemons , then make lemonade

User
Posted 12 Nov 2020 at 17:54
Nice one Arthur - long may it continue

Ray

User
Posted 12 Nov 2020 at 18:13
Tremendous news Arthur, delighted for you.
User
Posted 12 Nov 2020 at 18:38

Great news, hopes it continues. 

Thanks Chris

User
Posted 13 Nov 2020 at 09:12

That's very encouraging, Arthur. Now you can relax and have a good Christmas. 🙂 X

'Sorrow looks back, worry looks around, but faith looks up'
User
Posted 11 Mar 2021 at 17:48

Excellent news Arthur. 

Ido4

User
Posted 11 Mar 2021 at 19:49
Brilliant
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Mar 2021 at 21:06

Arthur,

Great news really pleased for you. 

Thanks Chris

User
Posted 11 Mar 2021 at 23:10

That's great news Arthur, and you certainly have been encouraging. 

Pete's PSA is slowly rising, 0.2 in Oct and just found out it's now 0.3 5 months later. He's been off any treatment for 2 yrs. Wondering what point they are likely to scan and re start treatment? Chatting with GP on Tuesday .

All the best, great results x

'Sorrow looks back, worry looks around, but faith looks up'
User
Posted 25 Mar 2021 at 13:02

That's gives me hope.so pleased for you

User
Posted 29 Mar 2021 at 01:14

Arthur,

Really good news!

Long may it continue.

Steve 

User
Posted 08 Jul 2021 at 16:20
Great news Arthur - I hope you have a decent hormone holiday
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Jul 2021 at 17:07
Nice one Arthur. Well chuffed for you

If life gives you lemons , then make lemonade

User
Posted 08 Jul 2021 at 19:25

Great news , hope it works out .

Thanks Chris

User
Posted 08 Jul 2021 at 21:03

Hi Arthur,

Nice to have a break from HT.  Hope it works well for you.

Steve 

User
Posted 09 Jul 2021 at 12:35

Great news Arthur. Enjoy being off the HT.

Ido4

User
Posted 10 Jul 2021 at 22:34

Hi Arthur

Enjoy the break and I hope it proves to be a long one. Have been on it for 4 years and have wondered about having a break from it.

Best wishes

Kevan

Show Most Thanked Posts
User
Posted 29 Jun 2019 at 10:29

Sorry to hear that Arthur. Hope the HT brings everything back under control.

 

Ido4

User
Posted 29 Jun 2019 at 15:13
Oh dear indeed Arthur. That's not the best of news. On the positive it reads you have a good team behind you.

Good luck

Ray

User
Posted 29 Jun 2019 at 18:49

Hi Arthur,
my PSA rose from 0.04 in 2017 to 3.1 had CT/ scan showed three tumours , one in my spine ,right shoulder , left groin , I had early chemo six sessions and back on Prostap , this Sept will be two years since back on hormones 

Psa at the moment is 0.01 , but I know I am now on the wrong side of the track , please see my profile
Good Luck

User
Posted 29 Jun 2019 at 20:11
Best wishes and all good luck. I know I’m a little / lot mental but so glad still to have avoided any further treatment other than surgery. I’m just 4 yrs post op and because I continually refuse futile SRT they won’t offer further treatment until scans confirm advanced. And they haven’t yet despite psa well over 100 now. My kidneys are showing damage from all the tracer contrasts re PET / CT / Bone scans , so they leaving it six months. More holidays booked already and enjoying the full QOL.

If life gives you lemons , then make lemonade

User
Posted 29 Jun 2019 at 20:48

Arthur

Sorry to hear about the rise, I was not given HT so I don't know alot about its effects, there is bit of bury my head in the sand until I need to know. Hope all goes well and thanks for the support you have given me over the years.

Thanks Chris

Edited by member 29 Jun 2019 at 20:49  | Reason: Word corrected

User
Posted 30 Jun 2019 at 08:08

Thank you all for your replies and support.  I wish you all well as you continue with your individual treatments and hope that you all have a positive outcome.

Keep strong.

Arthur

User
Posted 02 Jul 2019 at 08:28

Hi Arthur, 

I'm so sorry to hear that you are back on HT again as you've done so well without it for several years. 

I know how disappointed you must be but hopefully, this will keep everything under control for a long time.

Fingers crossed, keep in touch. 

Steve 

 

 

 

 

User
Posted 05 Jul 2019 at 08:58

Collected my first injection from the hospital yesterday, was expecting Prostap as I had previously but received Decapeptyl 3mg. Not sure if there’s much difference.  Unable to speak to the CNS will try to call her today to ask about the change.

User
Posted 21 Aug 2019 at 18:11
Just had my annual medication review with GP which included several blood tests including PSA which has reduced to 1.08 from 4.10 so at least the HT is suppressing it.
User
Posted 23 Aug 2019 at 21:23
Hope the good news continues.Keep doing well.

Ray

User
Posted 24 Aug 2019 at 07:51

Arthur

That's good to hear, 

Thanks Chris

User
Posted 03 Oct 2019 at 16:31

Oncology appointment today - PSA now 0.48.  Oncologist asked if I had poor flow, which I don’t have but didn’t think at the time what that could mean.

Could it mean in spite on being on HT again there are physical changes to my prostate?

Next appointment in 3 months

Edited by member 03 Oct 2019 at 19:17  | Reason: Not specified

User
Posted 03 Oct 2019 at 20:31

Originally Posted by: Online Community Member

Oncology appointment today - PSA now 0.48.  Oncologist asked if I had poor flow, which I don’t have but didn’t think at the time what that could mean.

Could it mean in spite on being on HT again there are physical changes to my prostate?

Next appointment in 3 months

I don't think you should read into that question that you might have a problem.

Barry
User
Posted 05 Oct 2019 at 02:29

Hi Arthur, 

It sounds as though your treatment is working well in reducing your PSA.

Well done. Long may it continue. 

Steve 

User
Posted 05 Oct 2019 at 08:38

Arthur

Good to see another fall. RT can have an impact on the urethra and flow, so he was perhaps just checking progress.

Thanks Chris

User
Posted 05 Oct 2019 at 18:32
Sounds good Arthur , I am pleased for you .

a lot of the lads go IHT after about a year,

I am looking to have a break , my PSA has been 0.04 for two years now

Regards Barry

User
Posted 02 Jan 2020 at 17:29

Latest oncology appointment today, PSA now reduced from 0.48 three months ago to 0.16 now so going in the right direction. Other blood tests all ok.

Next appointment in 3 months

Arthur 

User
Posted 02 Jan 2020 at 18:18

I hope things continue to go well Arthur.

Ido4

User
Posted 02 Jan 2020 at 18:23

Arthur

Great news,  have a good new year.

Thanks Chris

User
Posted 02 Jan 2020 at 18:26
Nice one Arty. Keep the faith

If life gives you lemons , then make lemonade

User
Posted 03 Jan 2020 at 00:40
Well, that's a great way to start the new year 👍
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Jan 2020 at 17:54
HT/Prostap does have one advantage. If you had a non-nerve sparing operation and have total ED then at least taking prostap your libido goes as well so you don't miss not being able to have sex - not much compensation for your partner though.
User
Posted 09 Apr 2020 at 16:05

Hi Everyone,

Just had telephone appointment with my oncologist - PSA now down to 0.09, all other blood tests ok.

Next appointment in 3 months.     I must admit, in my case, appointment over the phone works for me.

Arthur

User
Posted 09 Apr 2020 at 17:02

Arthur.

Great news , I have phone conversations with my onco nurse and probably get a longer conversation than face to face, also saves me a £4 car park charge. 

Thanks Chris

User
Posted 09 Apr 2020 at 18:08
Great news Arthur. I have my May Onco via telephone and a district nurse is coming to take all my bloods next week. I’m hoping psa isn’t like 800 :-// but I reckon it will be. Take care

If life gives you lemons , then make lemonade

User
Posted 09 Apr 2020 at 19:22

That's brilliant, Arthur.

Wish I could get a result like that.

Take care and look after yourself. 

Steve 

User
Posted 09 Apr 2020 at 22:52

Great result Arthur.

 

Ido4

User
Posted 09 Apr 2020 at 22:59
Excellent news, Arthur! Have a good Easter.

Very best wishes,

Chris

User
Posted 10 Apr 2020 at 08:32
Encouraging results Arthur, we'll done.
User
Posted 10 Apr 2020 at 11:13

Excellent result. My position is not identical to yours but similar. Recurrence in 3 lymph nodes treated with SABR radiotherapy and 2 years on bicalutamide.

I know it might not be healthy to focus too rigorously on one's PSA scores but a good one is a real boost.

User
Posted 14 Apr 2020 at 19:50
Good news Arthur. HT holiday sometime in the future looks possible, hope so. When in Skeg I had over the phone appointments, well pleased with them.

Ray

User
Posted 17 Jul 2020 at 12:43

Hi All,

Phone call from oncologist yesterday, PSA now 0.05 all other blood tests ok.  Next appointment in 4 months not the usual 3.

Things didn’t look good in January 2013 (see my profile) I hope this is an encouragement to you all.

Arthur

 

User
Posted 17 Jul 2020 at 13:58

Arthur

That is good news. I have just read your bio, that is quite a journey you have been on, lots of ups and downs. Hope you get a lot more ups.

Thanks Chris

 

User
Posted 17 Jul 2020 at 18:56

That is fantastic news Arthur. 

Ido4

User
Posted 17 Jul 2020 at 22:17

Yes, that’s very encouraging Arthur. Hope all continues to go well for you.

Ange x

User
Posted 18 Jul 2020 at 03:11

Hi Arthur, 

Another really good result!

Long may they continue. 

Steve 

User
Posted 18 Jul 2020 at 11:49

Thank you all for your replies - I’ve been very fortunate.

User
Posted 18 Jul 2020 at 18:43
Gunning for you Arthur. What a journey but you’re holding on in there mate

If life gives you lemons , then make lemonade

User
Posted 18 Jul 2020 at 18:43
Gunning for you Arthur. What a journey but you’re holding on in there mate

If life gives you lemons , then make lemonade

User
Posted 20 Jul 2020 at 07:01

Sounds like more good news Arthur
Keep it up 
Regards Barry

User
Posted 20 Jul 2020 at 14:01
Good results Arthur. Must have been pretty pleasing to have had an HT holiday - was it 2-3 years.

Great that the restart on HT has brought your psa back down to immeasurable.

I'm certainly gunning for you.

Paul

User
Posted 28 Oct 2020 at 09:57

Hello Arthur, this looks like a good way forward for you and I do hope things are continuing to go well. It's such a roller coaster at times, isn't it. Hope you're doing well on your treatment 

Alison x

'Sorrow looks back, worry looks around, but faith looks up'
User
Posted 12 Nov 2020 at 15:30

Oncology appointment by telephone today, PSA now 0.03. All other blood tests ok.

Next appointment in 4 months

Arthur

User
Posted 12 Nov 2020 at 16:35

good news Arthur,long may it continue.

regards Barbara

Edited by member 13 Nov 2020 at 08:11  | Reason: spelling

User
Posted 12 Nov 2020 at 17:07

Fantastic result Arthur.

Ido4

User
Posted 12 Nov 2020 at 17:36
Happy for you Arthur. Great news

If life gives you lemons , then make lemonade

User
Posted 12 Nov 2020 at 17:54
Nice one Arthur - long may it continue

Ray

User
Posted 12 Nov 2020 at 18:13
Tremendous news Arthur, delighted for you.
User
Posted 12 Nov 2020 at 18:38

Great news, hopes it continues. 

Thanks Chris

 
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