I’ve been poking about on the forum for the last six months or so following tests, diagnosis and surgery; so thought it appropriate to start engaging properly. Not least as it seems highly likely that I’m not entirely done with Prostate Cancer!
I’m 54, consider(ed) myself fit & healthy. Before this, my biggest health stress was varicose veins!
PSA was 20 in January 2019 having being 13+ for the previous four years (don’t ask!). Following a biopsy, Multi-parametric MRI and bone scan, I was staged T2 possible T3. Gleason 9 (4 + 5). MRI and Bone Scan were negative for spread.
Had a meeting with a surgeon in March and for me, surgery was a no brainer. Partly because I wanted the best possible shot at getting the cancer out, and partly because I wanted some certainty over whether it had spread. The intention was for partial nerve-sparing.
The surgery went well. A couple of return visits to hospital, but down to using just one pad a day from about week 3. Have to say that the effects of surgery on my general energy levels and the recovery from extended lymph node dissection took me by surprise.
The good news; Post-op PSA in June was <0.1 so undetectable. Although the pathology report had some bad news:
Peri prostatic lymph node involvement
Extensive spread around the prostate including three sites of Extra Prostatic Extension
Seminal Vesicle involvement
Restaged to T3B N1 M0
Gleason Score confirmed as 5 + 4
Meeting with oncologist in early July was frank in terms of likelihood of PSA increasing. In fact, she said there had been some surprise that my PSA was undetectable. Anyway, it’s a case of what to do when the PSA starts to go up, rather than if.
At the moment I’m not on any follow-up treatment and just playing a rather frustrating game of wait & see.
Sorry if that was long-winded, hopefully, answered the obvious questions. Happy to discuss aspects of surgery if anyone considering it wants to know more. Otherwise, it’s nice just to say hello :)