I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Tablet prescription

Email this conversation Print this conversation
User
Posted 29 Jul 2019 at 13:27

After having my prostate removed in March and not getting much support from the hospital with regard rehab apart from pointing me in the direction of a very expensive physio! Luckily I found good (and a little cheaper) one myself but then had the play the "can I get a pump on the NHS" game. Got fed up with that and ended up having to buy one privately and then got a one off prescription from the ED clinic for 100gm Sildenafil tablet. I was then told to get a repeat prescription from my doctor. When I went to the doctor I was told I could only have 4 tablets a month! Is this correct or has she got her facts wrong? Advice and experiences warmly welcomed.

Thanks

User
Posted 29 Jul 2019 at 13:27

After having my prostate removed in March and not getting much support from the hospital with regard rehab apart from pointing me in the direction of a very expensive physio! Luckily I found good (and a little cheaper) one myself but then had the play the "can I get a pump on the NHS" game. Got fed up with that and ended up having to buy one privately and then got a one off prescription from the ED clinic for 100gm Sildenafil tablet. I was then told to get a repeat prescription from my doctor. When I went to the doctor I was told I could only have 4 tablets a month! Is this correct or has she got her facts wrong? Advice and experiences warmly welcomed.

Thanks

User
Posted 22 Nov 2019 at 09:35

Prostate Cancer patients are entitled to a medical exemption certificate, which makes all NHS prescriptions free.

Prostate Cancer patients are also entitled to some ED meds on NHS prescription via the selected list scheme (SLS) which are not otherwise available via the NHS.

Edited by member 22 Nov 2019 at 09:57  | Reason: Not specified

Show Most Thanked Posts
User
Posted 29 Jul 2019 at 13:57

4 tablets, injections or pellets a month is the norm. Early in my recovery I was prescribed 100 mg sildenafil on a daily basis for a couple of years. 

Thanks Chris

Edited by member 29 Jul 2019 at 13:58  | Reason: Not specified

User
Posted 29 Jul 2019 at 14:01
I get 5mg daily Tadalafil (Cialis) on the NHS.

Cheers, John.

User
Posted 29 Jul 2019 at 14:41

Chris,

When you say early in recovery what sort of time are we talking? First 6 months, first year?

Thanks

Andy

User
Posted 29 Jul 2019 at 15:40
NICE guidelines dictate that a man with ED as a result of prostate cancer treatment is entitled to 4 erections per month. In some areas they are more generous with young men. We were lucky that the GP prescribed 4 Viagra tablets each month and the ED nurse prescribed 4 levites tablets per month. We got away with that for years but eventually we were sussed out.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Jul 2019 at 20:54

Andy

The prescription was done at about three months post op. Ed guy prescribed them , consultant said a waste of time as I was supposedly non nerve sparing. They did have a limited effect but I never achieved an erection or full tumescence, perhaps about 70 percent at best. I have just started on caverject injections and the first attempt was a 100 percent success.  Thanks Chris

User
Posted 22 Nov 2019 at 09:17

Hi. Do you have to pay for the prescription for the caverject or do we qualify for a medical exemption certificate.

Thanks for any info Paul

User
Posted 22 Nov 2019 at 09:35

Prostate Cancer patients are entitled to a medical exemption certificate, which makes all NHS prescriptions free.

Prostate Cancer patients are also entitled to some ED meds on NHS prescription via the selected list scheme (SLS) which are not otherwise available via the NHS.

Edited by member 22 Nov 2019 at 09:57  | Reason: Not specified

User
Posted 22 Nov 2019 at 11:26
Paul, you need to pick up an exemption form from your local pharmacy, fill it in and drop it off at the GP practice fro them to complete and send off. The GP has to confirm that you are either currently undergoing treatment for cancer, or are on ongoing treatment for the side effects of cancer or cancer treatment. ED qualifies as a side effect of cancer treatment.

The exemption certificate lasts for 5 years. At the point of renewal, another one will be issued if you still meet the criteria. John is about to apply for his 2nd renewal as, almost 10 years post op, he still needs ED meds.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2019 at 12:48

You can also get it issued/signed by your hospital if that's easier - mine was signed by my Macmillan nurse (or at least a signature was arranged by her - can't recall if it was actually her signature).

User
Posted 22 Nov 2019 at 15:42

Originally Posted by: Online Community Member


The exemption certificate lasts for 5 years. At the point of renewal, another one will be issued if you still meet the criteria. John is about to apply for his 2nd renewal as, almost 10 years post op, he still needs ED meds.

Lyn, John shouldn’t need an exemption should he due to his age

Bri 

User
Posted 22 Nov 2019 at 15:48
I don't know, Bri - what age do people start getting age exemption?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2019 at 16:03

Lynn - Age exemption is currently 60, unless I'm very much mistaken

Edited by member 22 Nov 2019 at 16:05  | Reason: Not specified

Good luck to everyone coping with the insidious big C

User
Posted 22 Nov 2019 at 18:01

😱

I won't bother with the replacement exemption certificate then. I just assumed it would be 65. The joys of having an older husband πŸ˜‚

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Nov 2019 at 16:11
Yep it’s 60 ( well for now anyway)

Bri

 
Forum Jump  
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2024 Prostate Cancer UK