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User
Posted 30 Jul 2019 at 08:02

Hello, Everyone,

I visited my GP back in June 2019 because I had started getting up more at night to pee.* He checked my Prostrate and wasnt concerned at that time but suggested PSA test just in case. It turned out my PSA was 14.6. This in turn sent me to the specialist who put me forward fro biopsies and I had 60 biopsies taken on my 13th Wedding Anniversary on the 8th July. I went for my results yesterday 29th July 2019. The Doc informed me that I had "Abnormal Cells" in parts of my Prostrate and gave me a brief explanation on Surgery process and Radio Therapy. Thats about all I know at this stage. I dont know my Gleason, nor do I know what stage I'm at. These are questions I will be asking on the upcomong appointments. I received litrature to do with Radical prostatectomy and External beam radiotherapy, still unsure on which door to go through here, until I speak to the relevent people. I will be looking to glean some info from members who have been through either proceedure. Thanks for reading my story, I will update my info as and when I receive it.

*( Incidently,at this time I had also changed my diet and my intake of water had increased substantially, I thought this was the reason I was getting up more)

User
Posted 15 Aug 2019 at 17:02

Originally Posted by: Online Community Member

Hi Guys, Quick update. Went to see the Oncologist yesterday, she informed me my Gleason is 4+3, my Stage is T2 N0 M0 and my cancer is Localised (not locally advanced). I will be going for my pre op assessment on Wed 21st August 2019. Will update later.

phil

i can only say from my experience, I declined surgery and 15 months later my PSA is undetectable after 20 fractions of EBRT and 18 months Hormone Therapy. I’m glad I didn’t go for RP, because if nerve sparing part of RP doesn’t work that’s the end of any chance of a sex life. With Sildenafil (prescription) I am able to have normal penetrative sex, although it’s dry ejaculations.

but everyone is different, so heed advice from people who have gone through the journey to help you decide. I think surgery would always be my last choice

User
Posted 15 Aug 2019 at 18:24

Hi Phill,  That was my diagnosis too.  Post op they found it was 4+4 but hadn't gone into the margin.  That's something you'd never know with RT.  The 4+4 bit was bad news but the margin good. Also after an op you know quickly from your psa that it's good or bad. I've never regretted having the op even though for 6 months there was leakage and it looks like it will never rise no hands again. At the op I was excited to get to get the thing out on the spot and while I was asleep and if it hadn't been for the drip I'd have been doing ward inspections that night.  To each their own choices and sometimes it's obvious. This topic comes up a lot.  All the best.

User
Posted 16 Aug 2019 at 09:49

There is no 'one fits all' choice: read the toolkit carefully (as suggested by Andy62 above), and bear in mind that whatever choice you make will affect you for the rest of your life (no pressure there, then!).

In particular, look at the side effects - immediate and long term - and see which you can live with most easily. People here have chosen a variety of paths, some going to great lengths to get what they thought was right for them - few have regretted their choices.

Chose well, and good luck!

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

User
Posted 25 Oct 2019 at 16:09

You are fortunate to have made such a quick recovery but this is more down to luck than a man's fitness or the amount of PFEs he does. 

Edited by member 25 Oct 2019 at 20:57  | Reason: For being unnecessarily offended in the original post

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Oct 2019 at 20:52
Yes, you are right - it was uncalled for so I have amended my post.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 30 Jul 2019 at 17:47

Hi Phill

You really do need to get hold of your precise diagnosis - if they've looked at the biopsy material, they will have this. It sounds like you had a transperineal template biopsy - that should have identified the areas of the prostate impacted. It's pretty impossible to give you any advice, or even for you to choose yourself, without having this information. Also, have you had an MRI scan and/or a bone scan?

Do you have an assigned Macmillan or specialist nurse? If so, call them and ask for an appointment so they can go through your diagnosis with you.

Meanwhile, you should request the Toolkit from this site, which contains leaflets about all the common procedures, side effects, etc.

User
Posted 15 Aug 2019 at 14:46

Hi Guys, Quick update. Went to see the Oncologist yesterday, she informed me my Gleason is 4+3, my Stage is T2 N0 M0 and my cancer is Localised (not locally advanced). I will be going for my pre op assessment on Wed 21st August 2019. Will update later.

User
Posted 15 Aug 2019 at 17:02

Originally Posted by: Online Community Member

Hi Guys, Quick update. Went to see the Oncologist yesterday, she informed me my Gleason is 4+3, my Stage is T2 N0 M0 and my cancer is Localised (not locally advanced). I will be going for my pre op assessment on Wed 21st August 2019. Will update later.

phil

i can only say from my experience, I declined surgery and 15 months later my PSA is undetectable after 20 fractions of EBRT and 18 months Hormone Therapy. I’m glad I didn’t go for RP, because if nerve sparing part of RP doesn’t work that’s the end of any chance of a sex life. With Sildenafil (prescription) I am able to have normal penetrative sex, although it’s dry ejaculations.

but everyone is different, so heed advice from people who have gone through the journey to help you decide. I think surgery would always be my last choice

User
Posted 15 Aug 2019 at 18:24

Hi Phill,  That was my diagnosis too.  Post op they found it was 4+4 but hadn't gone into the margin.  That's something you'd never know with RT.  The 4+4 bit was bad news but the margin good. Also after an op you know quickly from your psa that it's good or bad. I've never regretted having the op even though for 6 months there was leakage and it looks like it will never rise no hands again. At the op I was excited to get to get the thing out on the spot and while I was asleep and if it hadn't been for the drip I'd have been doing ward inspections that night.  To each their own choices and sometimes it's obvious. This topic comes up a lot.  All the best.

User
Posted 16 Aug 2019 at 09:49

There is no 'one fits all' choice: read the toolkit carefully (as suggested by Andy62 above), and bear in mind that whatever choice you make will affect you for the rest of your life (no pressure there, then!).

In particular, look at the side effects - immediate and long term - and see which you can live with most easily. People here have chosen a variety of paths, some going to great lengths to get what they thought was right for them - few have regretted their choices.

Chose well, and good luck!

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

User
Posted 25 Oct 2019 at 15:45

Had my robotic prostatectomy on the 10th October and to be honest 40 mins after returning to the ward I felt very good indeed. If it wasnt for the catheter and Doctors orders I would have been up and about within the hour. The staff thought this was down to the pain meds I was still on from the Op but the next day I felt even better. I was up and about on my feet by 10am on the following day and I was discharged from hospital on that day at 4pm. But for a little soreness around the point where the Prostate was pulled through, I had no pain or discomfort of any kind from the other 6 sites and no pain whatsoever from the area where the prostate was. My catheter was removed on the22nd and but for two dribbles shortly thereafter I have not had any leakage nor have I had any discomfort or problems passing urine. I have been wearing pads through the night on the last 3 nights but have awoke with them dry. I also have had erections, not fully erect but somewhere halfway there, I put this down to my surgeon sparing the nerve on the righthand side. I am very much over the moon with my recovery and put a lot of it down to being very fit in the first place plus doing the pelvic floor excercises 3 times a day since my diagnosis in July. Of course my Surgeons skills were perfect and I can highly recommend surgery to anyone out there. I concider myself very blessed to have come through the process pretty much unscathed so far.

Edited by member 25 Oct 2019 at 17:50  | Reason: Not specified

User
Posted 25 Oct 2019 at 16:09

You are fortunate to have made such a quick recovery but this is more down to luck than a man's fitness or the amount of PFEs he does. 

Edited by member 25 Oct 2019 at 20:57  | Reason: For being unnecessarily offended in the original post

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Oct 2019 at 17:51

I have re read my post and nowhere does it knock anyone else for being unfit, wind your neck in dude, its really not my fault your having a bad time. Dont knock me because I'm doing ok. post has been edited now. screw this site, I really dont need you anyway.

 

 

 

Edited by moderator 25 Oct 2019 at 22:38  | Reason: Not specified

User
Posted 25 Oct 2019 at 18:26

Originally Posted by: Online Community Member
Yippy doo daa - so you think that everyone else that has a tough time after surgery is a) not very fit and / or b) didn't do their PFEs? You are indeed fortunate to have made such a quick recovery but you shouldn't imply that this is anything more than good luck.

PS It is against the rules to name surgeons here. Best edit your post or ask the moderators to do it for you.

This is the first time I have to take issue with the response you have given to another forum member. He was only making a statement as to what he believed and was not running anyone else down I think your answer to him was wrong in its tone

User
Posted 25 Oct 2019 at 18:28

Originally Posted by: Online Community Member

I have re read my post and nowhere does it knock anyone else for being unfit, wind your neck in dude, its really not my fault your having a bad time. Dont knock me because I'm doing ok. post has been edited now. screw this site, I really dont need you anyway.

please stay mate, we need varied input

User
Posted 25 Oct 2019 at 20:52
Yes, you are right - it was uncalled for so I have amended my post.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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