Hello. My first post as I am trying to find information on behalf of my father who was diagnosed with PC 6 months ago and I'm worried he is not getting the correct treatment. He is 77 and gets confused so can't remember the gleason score etc so all I know is he has advanced PC that has spread to his lymph nodes but is not yet anywhere else that we are aware of.
Since diagnosis he was put on bicalutamide 150mg for a few weeks and then hormone therapy injections administered by a local nurse. No chemo or radiotherapy was suggested and he was told his asthma was too bad for it to be considered. Apart from a blood test a month after the injections started he has not had any check or blood test since. Seen no-one and when he asked the nurse how long he had to have the HT for she didn't know.
He is now in hospital after having an asthma attack a week ago and when I asked the nurses if the breathlessness could be linked to the cancer she said they hadn't looked at it. No chest xray or anything to see if it has spread. Still nothing from the original consultant.
I am now getting involved as my father doesn't like to make a fuss but is scared and confused. I have no idea what would be the expectations for treatment and whether it is normal to have no check up etc after starting HT or whether RT is really ruled out..
Any help or advice much appreciated
Lucy