I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Hung up on prognosis

User
Posted 04 Sep 2019 at 23:35

Hi all. 

My dad is 54, he was diagnosed with prostate cancer Gleason scale 9 at 50 years old. He didn’t have any symptoms and was picked up a routine PSA check. 

Initially treated with radiotherapy and brachytherapy, hormone treatment with a query rib metastasis but never confirmed.

Slow rise of PSA was then investigated with a PSMA pet scan which highlighted some pelvic lymph nodes. Treated with biculdamide then abiriterone then low dose dexamethasone with no luck. 

Over time increased uptake in the bones particularly in the cervical neck area which required radiotherapy, increase of rib metastasis and lymph node disease in pelvis and sternum. 

 

Started docetaxel chemotherapy this january. Chemotherapy has just been stopped in 2-3 weeks ago as too poorly to continue and CT scan shows new liver lesion. 

 

This week dad was rushed into hospital query spinal cord compression due to excruciating pain, cord compression ruled out with MRI scan but it does show extensive disease spread throughout the spine. MRI report states whole skeleton infiltration. They are doing further tests to see how extensive disease has spread elsewhere. 

 

I know that some people do not like  to have a time frame but I am having an internal battle with myself over how long we have left ?? Please can anyone advise and how things have been for them personally. 

 

Palliative care team have been involved and they have put a DNAR in place. Depending on outstanding tests results they will see what they can offer treatment wise. 

When things got this bad are we talking weeks, months ??? 

 

Thank you 

User
Posted 05 Sep 2019 at 08:33

Gracie,

Really sorry to read your situation.

The best people to answer your question are the palliative care team - they know his situation best, and are used to handling it.

User
Posted 05 Sep 2019 at 09:31

Gracie, 

There's really no way to know: doctors hate to make such predictions, simply because we are all different, and the disease is unique to each person that gets it. I've heard many cancer predictions over the years, and each one has been significantly wrong.

For your sake, it really is best not to think that way. Take each day as it comes, and just let the team know that you'd like to be kept informed of how he's doing.

Hang in there!

 

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

 
Forum Jump  
©2019 Prostate Cancer UK