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User
Posted 10 Sep 2019 at 11:13

Hi All further to last conversation when registrar wasn't happy with PSA reading of 0.03. I contacted Clinical Nurse who said that this reading seemed fine to her. She suggested another blood test which I have just had results of 0.008 very happy with this long may it continue. Wait now to see Oncologist in November, when hopefully he can do something about my "Boobs" and pain caused by hormone tablets.

Good luck to all fellow sufferers.

Barry

User
Posted 10 Sep 2019 at 11:13

Hi All further to last conversation when registrar wasn't happy with PSA reading of 0.03. I contacted Clinical Nurse who said that this reading seemed fine to her. She suggested another blood test which I have just had results of 0.008 very happy with this long may it continue. Wait now to see Oncologist in November, when hopefully he can do something about my "Boobs" and pain caused by hormone tablets.

Good luck to all fellow sufferers.

Barry

User
Posted 10 Sep 2019 at 20:50
Great news - ultrasensitive testing can cause a lot of unnecessary stress.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Sep 2019 at 22:07

I don't consider it acceptable to wait until November to sort out the boobs.

Ask for Tamoxifen now (providing you aren't at high risk of DVT or have any heart problems). I got it by asking the clinical nurse specialist (she went and got a prescription from an oncologist the same day).

User
Posted 15 Sep 2019 at 20:32

Originally Posted by: Online Community Member

While I'm not really suffering from the boobs, I am getting the "are you pregnant, and when's it due?" look around my middle (without actually putting on much weight, a couple of kilos in over a year).  I know I'm nowhere near the stage where I can ask for it yet, but does Tamoxifen help with fat belly and pubis in the same way as it does with boobs?

 

See your GP to check that it isn't lymphodema - if so, water tablets might help. Swelling in the pubic area can be a sign of lymph damage during the RT. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 10 Sep 2019 at 20:50
Great news - ultrasensitive testing can cause a lot of unnecessary stress.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Sep 2019 at 22:07

I don't consider it acceptable to wait until November to sort out the boobs.

Ask for Tamoxifen now (providing you aren't at high risk of DVT or have any heart problems). I got it by asking the clinical nurse specialist (she went and got a prescription from an oncologist the same day).

User
Posted 15 Sep 2019 at 19:24

Originally Posted by: Online Community Member

I don't consider it acceptable to wait until November to sort out the boobs.

Ask for Tamoxifen now (providing you aren't at high risk of DVT or have any heart problems). I got it by asking the clinical nurse specialist (she went and got a prescription from an oncologist the same day).

While I'm not really suffering from the boobs, I am getting the "are you pregnant, and when's it due?" look around my middle (without actually putting on much weight, a couple of kilos in over a year).  I know I'm nowhere near the stage where I can ask for it yet, but does Tamoxifen help with fat belly and pubis in the same way as it does with boobs?

User
Posted 15 Sep 2019 at 19:40
I'm afraid not. Those require exercise to remove.

Chris

User
Posted 15 Sep 2019 at 20:14

I rather doubt tamoxifen will even reduce breast fat - only prevent/reduce breast glandular tissue, and for reduction, only in the case of recent growth.

User
Posted 15 Sep 2019 at 20:32

Originally Posted by: Online Community Member

While I'm not really suffering from the boobs, I am getting the "are you pregnant, and when's it due?" look around my middle (without actually putting on much weight, a couple of kilos in over a year).  I know I'm nowhere near the stage where I can ask for it yet, but does Tamoxifen help with fat belly and pubis in the same way as it does with boobs?

 

See your GP to check that it isn't lymphodema - if so, water tablets might help. Swelling in the pubic area can be a sign of lymph damage during the RT. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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