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Dad gets his biopsy results tomorrow. 😞

User
Posted 16 Sep 2019 at 19:28

Hello I’m new here😊 I’m attending the hospital tomorrow with my lovely Dad. He had extremely high levels of psa. Had mri then needed biopsy. Taken 12 samples. He had blood in his semen which is why he went to the drs initially. He had the DRE and the dr felt a lump immediately. My dad said it was very sore. My dad is 74 years young and im His only daughter he has so I’m really worried for him. The doctor did say to my dad that it wasn’t looking good from the psa levels etc. Can anyone tell me if this is going to be bad news tomorrow from any personal experiences. My concern is the blood in semen is saying symptoms of advanced prostrate cancer. 

User
Posted 16 Sep 2019 at 19:39
Do you know what his PSA actually was as a number?

If they thought that it was obviously advanced prostate cancer they probably wouldn't have done a biopsy, but gone straight to a bone scan, so the fact he's had a biopsy is good news.

Best wishes,

Chris
User
Posted 16 Sep 2019 at 19:52

T


Take a note pad and pen with you tomorrow just in case it is bad news and jot down what the consultant says. Some consultants will allow you to record the conversation. If it is bad news the recollection of the conversation may get a bit foggy. Following my diagnosis I was then seen by a urology oncology nurse who explained things in more detail and gave me lots of info.


Hope it goes well.


Thanks Chris


Added


If you go to the bottom of the page and follow the information link you will find all sorts of info including questions to ask the consultant. 

Edited by member 16 Sep 2019 at 20:04  | Reason: Not specified

User
Posted 16 Sep 2019 at 20:04

That’s good to hear. Thank you Chris. My dad didn’t tell me about any of his concerns until he had Just seen the specialist and warned him likely was cancer. So due to me not being there with him I’m not 100% certain of his score but he did say 60 something? 


Tamar 😊

User
Posted 16 Sep 2019 at 20:05

Ok I’ll be armed with my notepad and pen. Dreading it. Just been looming. I’ll take a peek now and thank you. 


Tamar. 😊

User
Posted 16 Sep 2019 at 22:05

60-something is high, but not necessarily metastatic, which ties up with what Chris said. I was 57 and not metastatic (AFAIK). I've just seen someone 150 and not metastatic, although that's going to be rarer.

User
Posted 16 Sep 2019 at 22:30
Probably worth adding that the next stage in the process will probably be to have a bone scan arranged. This is entirely routine, and don’t read anything sinister into the fact that it’s happening. Just be prepared for the fact that you’re probably looking at another month before tests are finished and treatment options can be discussed.

Best wishes,

Chris
User
Posted 16 Sep 2019 at 23:16

Actually there is no minimum-maximum reading to scale PSA because it is unique to each one of us, when I was diagnosed with aggressive Prostate cancer T3 4-5 on Gleason scale my reading was 5.6, now is the PSA high or low?? actually no one knows so by default it is always classed as high, even if it had been 1.6, it still would have been classed as high as no one knows, at this very first stage all it is, is the first marker.


Treatment will start including the medication In my case 1 injection every 12 weeks of Zoladex 10.8 for 2 years which is HRT basically, plus 20 daily sessions of Radiotherapy, at the end of the 20 sessions, you then have a break for 6 months then you will have an appointment to discuss your latest PSA blood test which you will have had a week or so earlier, this first 6 month reading is the 1st real noteworthy reading after being controlled by medication and treatment in my case it was 0.19 (down from 5.6) this is your first main marker on your graph, and from that point on you will have 6 monthly appointments to monitor and discuss your PSA and you yourself


My case It was confirmed on the 19/12/14 after having CT scan MRI, Cystoscopy and Biopsy of 16 samples all found to be aggressive, and a full Bone Scan and here I am nearly 5 years later with a PSA reading of 0.02 as at July 19 only when there is a spike will they need to react and even a spike might just be a blip, so no need to panic it might just be finding a new level especially when the medication has finished after the 2 years, it only causes concern if it is rise on rise on rise, so keep your chin up we have the Best Medical Staff , the Best Equipment, giving us all the Best Chance, so we can ask no more than that, Prostate Cancer is Not the end of the world as it used to be.

Edited by member 16 Sep 2019 at 23:23  | Reason: Not specified

User
Posted 17 Sep 2019 at 00:07

Please order (or download - I prefer the paper version) the comprehensive information folder called the “Tool Kit” from this charity:


https://prostatecanceruk.org/prostate-information/our-publications/publications/tool-kit


Best of luck.


Cheers, John.

Edited by member 17 Sep 2019 at 00:11  | Reason: Not specified

User
Posted 17 Sep 2019 at 00:09
Wilhelm, your post isn't factually correct. Best not to give people advice that assumes everyone will have the same treatment that was available to you.

PS 'Hormone therapy' is written as HT not HRT.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 Sep 2019 at 00:14

Originally Posted by: Online Community Member

PS 'Hormone therapy' is written as HT not HRT.


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User
Posted 17 Sep 2019 at 07:34
Wilhelm, your treatment was just one of many different treatments available. You certainly can't assume that someone else will have the same treatment that you had. It might well be something completely different, such as surgery. Nobody can know what treatment will be the most effective in any individual case until all diagnostic tests have been completed, and Taytarita's Dad has not yet completed that process.

As Lyn has advised, "hormone therapy" (HT) treatment for prostate cancer is NOT the same as "hormone replacement therapy" (HRT) that post-menopausal women are offered. They are totally different drugs, administered for different purposes. Do not confuse the two.

Best wishes,

Chris
User
Posted 17 Sep 2019 at 19:25

Good luck with your meeting  I hope that it went well - I am having a hospital meeting with my 56 year old husband tomorrow and am so scared. He’s had s positive biopsy and has been given a Gleason score of 4+4 ( I know that is not good and   means likely to grow at a moderate rate) he’s been booked in for a bone scan and like you I’m so scared that it’s spread to other organs and so worried for the future with two teenagers. 

User
Posted 18 Sep 2019 at 08:34
What was the outcome of your meeting, Tamar?

Best wishes,

Chris
User
Posted 19 Sep 2019 at 15:23

Originally Posted by: Online Community Member
Wilhelm, your post isn't factually correct. Best not to give people advice that assumes everyone will have the same treatment that was available to you.

PS 'Hormone therapy' is written as HT not HRT.


 


Sorry but you missed the point of my comments , of course the treatment I had was derived for me alone, but from the beginning when it was diagnosed as Aggressive , and 5-4 or 4-5 on gleason scale I felt at that time OMG this is it, but how wrong I was, my bottom line was We have the best medical staff with the best equipment which gives us a best chance of coming out he other end, although it does not appear like that at the beginning

 
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