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New to hormone treatment

User
Posted 15 Oct 2019 at 15:18

Hi diagnosed with advanced prostate cancer 17 Sept.

     Just started hormone treatment first with Cyproterone 50mg 2 tabs twice a day, then followed by Decapeptyl SR 22.5mg on 30th Sept at Sunderland great it lasts for 6 month, but some side effects are unusual to understand the tireness seems logical, but weepyness just surprised me by the intensity if i'm happy or sad i cry, then a few hours later I'm feeling back to normal, will this side effect ease off as time goes by? 

Any comments or advice on coping with emotions

User
Posted 23 Oct 2019 at 17:58

I'll trade you the weepiness for the hot flushes.

User
Posted 15 Oct 2019 at 20:37
It's a completely normal side-effect of HT. It may or may not ease off. Everyone has different reactions to HT.

Best wishes,

Chris

User
Posted 16 Oct 2019 at 00:01
Emotional side effects which some men experience receive little mention compared to more physical side affects. However, a minority can be affected by HT in a number of ways and in a minority of cases their personalities can be so changed that their partners feel they have changed so much that they are like different people.
Barry
User
Posted 23 Oct 2019 at 16:07

My husband is a year into HT and is weepy, gained weight, fatigue, no muscle mass, etc.  It has never gotten better but he has learned to live with the symptoms. If HT is the only treatment plan you will need consider it a blessing!  For many it does not keep the cancer from progressing.  Wishing you the best!

User
Posted 03 Dec 2019 at 17:33

With goserelin injections (implants) the side effects I’ve noticed are hot flushes, fatigue, loss of muscle power and putting on weight around the midriff. I’m also becoming breathless walking upstairs - so I’ve stopped walking upstairs!

After three months I’ve still to try to become more active - maybe that’ll help. They say it should. 

Did you mention you’re in Sunderland? I spent three formative years there a lifetime ago. Still have fond memories.

User
Posted 03 Dec 2019 at 22:44

Hi Gwtheyrn, we've lived in the north east for forty years only times we've gone into Sunderland was to go to the empire, now all my scans, Chemo etc have been at Sunderland Royal, Now I'm just hormone i'll revert to Belmont near Durham best part my travelling will cut by half.

I'm afraid i'm the opposite with the breathing I walk dog and have to go up a steep hill, so like an idiot I try to go as I used to then I'm bent over double at the top gasping for breath, and wonder why I can't do it as I used to.

Take care

User
Posted 04 Dec 2019 at 12:47
I'd take the middle road - don't overdo it - or you'll suffer! But do 'keep going'; that will help you avoid too much weight gain, and depending on your pre-treatment fitness, will reduce your muscle loss.

My waistline went from 34" to 38" over two years of hormones; managed to stabilise for the third year. Took me about 18 months to get back down to 34", including daily exercise and 'watching what I eat' (half-hearted dieting? who knows!).

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

User
Posted 04 Dec 2019 at 13:13

Hi Heenan, I'd welcome tips on how to lose the paunch. Like you I've been 34" around the waist years for but since HT I'm now 38" and 18 pounds heavier.

I'm doing loads of walking and daily push ups to combat the muscle loss.

Finding it difficult to stop snacking between meals something I never did before, I know this would help if I cut it out.

User
Posted 04 Dec 2019 at 13:44

There's really no magic to it. Consume fewer calories than your body burns and you'll lose weight!

Like others here I've gained a significant amount of weight in the 16 months I've been on HT. The main problem for me has been fatigue preventing me from doing all the walking I used to do. This lunchtime I washed the car and felt completely shattered after doing so, and it's hardly major exertion. Thank goodness I'm due to finish my HT in February. Can't wait!

Cheers,

Chris

Edited by member 04 Dec 2019 at 13:45  | Reason: Not specified

User
Posted 05 Dec 2019 at 21:45

Originally Posted by: Online Community Member
Andy, Any chance of a steer on which scales to buy please

The one I bought is:
https://www.amazon.co.uk/Clinically-Validated-Composition-high-precision-measurement/dp/B0033AGBVQ/

I avoided ones that link to phone, because I tend to keep things like this much longer than any phone support is likely to last, but many people do prefer ones that have phone apps, possibly via the cloud.

I actually ended up buying 3 of them for use in different places, and they do closely agree with each other. I also do occasional skinfold fat measurements (using Jackson Pollock 4-site equation method), and that normally agrees to within 1 percentage point too.

User
Posted 26 Jan 2020 at 14:13
Well this will be my last post for awhile; my head has come to terms with my condition, the appointment with the radiotherapy team should have been cancelled when the Chemo failed, being emotional and hot flushes are now just a part of me.

Now Christmas with its chasing is over life is returning to a nice steady tempo, only check up appointments with Urology and repeating 24 week hormone injection. Time to plan a holiday somewhere warm, as Boots will insure me at a reasonable price.

See you for now

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User
Posted 15 Oct 2019 at 20:37
It's a completely normal side-effect of HT. It may or may not ease off. Everyone has different reactions to HT.

Best wishes,

Chris

User
Posted 16 Oct 2019 at 00:01
Emotional side effects which some men experience receive little mention compared to more physical side affects. However, a minority can be affected by HT in a number of ways and in a minority of cases their personalities can be so changed that their partners feel they have changed so much that they are like different people.
Barry
User
Posted 23 Oct 2019 at 16:07

My husband is a year into HT and is weepy, gained weight, fatigue, no muscle mass, etc.  It has never gotten better but he has learned to live with the symptoms. If HT is the only treatment plan you will need consider it a blessing!  For many it does not keep the cancer from progressing.  Wishing you the best!

User
Posted 23 Oct 2019 at 17:58

I'll trade you the weepiness for the hot flushes.

User
Posted 23 Oct 2019 at 18:16

No thanks Jasper, I'm getting those aswell during the night, learning with the weepiness if I push to hard then it seems to be worst 

Edited by member 23 Oct 2019 at 18:18  | Reason: Not specified

User
Posted 03 Dec 2019 at 17:33

With goserelin injections (implants) the side effects I’ve noticed are hot flushes, fatigue, loss of muscle power and putting on weight around the midriff. I’m also becoming breathless walking upstairs - so I’ve stopped walking upstairs!

After three months I’ve still to try to become more active - maybe that’ll help. They say it should. 

Did you mention you’re in Sunderland? I spent three formative years there a lifetime ago. Still have fond memories.

User
Posted 03 Dec 2019 at 22:44

Hi Gwtheyrn, we've lived in the north east for forty years only times we've gone into Sunderland was to go to the empire, now all my scans, Chemo etc have been at Sunderland Royal, Now I'm just hormone i'll revert to Belmont near Durham best part my travelling will cut by half.

I'm afraid i'm the opposite with the breathing I walk dog and have to go up a steep hill, so like an idiot I try to go as I used to then I'm bent over double at the top gasping for breath, and wonder why I can't do it as I used to.

Take care

User
Posted 04 Dec 2019 at 12:47
I'd take the middle road - don't overdo it - or you'll suffer! But do 'keep going'; that will help you avoid too much weight gain, and depending on your pre-treatment fitness, will reduce your muscle loss.

My waistline went from 34" to 38" over two years of hormones; managed to stabilise for the third year. Took me about 18 months to get back down to 34", including daily exercise and 'watching what I eat' (half-hearted dieting? who knows!).

.

-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx

User
Posted 04 Dec 2019 at 13:13

Hi Heenan, I'd welcome tips on how to lose the paunch. Like you I've been 34" around the waist years for but since HT I'm now 38" and 18 pounds heavier.

I'm doing loads of walking and daily push ups to combat the muscle loss.

Finding it difficult to stop snacking between meals something I never did before, I know this would help if I cut it out.

User
Posted 04 Dec 2019 at 13:44

There's really no magic to it. Consume fewer calories than your body burns and you'll lose weight!

Like others here I've gained a significant amount of weight in the 16 months I've been on HT. The main problem for me has been fatigue preventing me from doing all the walking I used to do. This lunchtime I washed the car and felt completely shattered after doing so, and it's hardly major exertion. Thank goodness I'm due to finish my HT in February. Can't wait!

Cheers,

Chris

Edited by member 04 Dec 2019 at 13:45  | Reason: Not specified

User
Posted 04 Dec 2019 at 18:06

I started monitoring and graphing my weight when I started on HT, so I could see what was happening and try and avoid gaining weight and losing muscle. I bought body composition scales so I could see how much of my weight is fat, muscle, other, and proportion of fat which is visceral.

I'm a cyclist, and I've kept that up. My onco is a cyclist as well and we've done a couple of the same events, and even came joint 3rd in one event, just 7 weeks after he'd stuck 18 brachytherapy needles in my nether regions. I think cycling exercise might have reduced some of the side effects from the treatments. (The cold wet weather has kept me in for the last month though.)

I've managed not to lose any muscle on HT by exercising, but my fat is increasing, including visceral fat - it's gone from 9kg to 13kg in last 10 months.

User
Posted 04 Dec 2019 at 18:24

Originally Posted by: Online Community Member

 I bought body composition scales so I could see how much of my weight is fat, muscle, other, and proportion of fat which is visceral.

Andy, Any chance of a steer on which scales to buy please

Cheers

Bill

User
Posted 04 Dec 2019 at 19:16
I’m just simply dreading starting in Feb. Sorry to all you stronger guys enduring it. It’s just simply something I can’t get my head around 4 1/2 yrs after surgery. I’m actually terrified of this next stage and feel shaky every day :-((

If life gives you lemons , then make lemonade

User
Posted 04 Dec 2019 at 21:51
I must say, Chris, that I've found HT a lot "less bad" than I was anticipating. Weight gain, loss of libido, and (as you may have read in my treatment thread) a bit of breast growth are the only real side-effects I've experienced, none of which have been particularly hard to live with. When I first started HT I felt as if my head was full of cotton wool for a couple of months, but that wore off pretty quickly. It's been a pretty gentle form of treatment for me.

Do you know what type of HT you'll be having? Injections or bicalutimide tablets?

Very best wishes,

Chris

User
Posted 05 Dec 2019 at 05:49
Will be injectable but not sure which. I did 11 months of bicalutamide way back 4 yrs ago.

If life gives you lemons , then make lemonade

User
Posted 05 Dec 2019 at 19:36

I feel like a newbie amongst you gentlemen, I'd lost 8 kilo before I was diagnosed, so a little bit back on will be okay, sorting the tears out in some situations especially excercise just go at 75% then ok, people showing sympathy always gets me. breathlessness same as exercise, even I do want to go up the last hill as fast as I used to before PC me bent over gasping for breath (not good but it's my littie fight back odd times)

User
Posted 05 Dec 2019 at 21:45

Originally Posted by: Online Community Member
Andy, Any chance of a steer on which scales to buy please

The one I bought is:
https://www.amazon.co.uk/Clinically-Validated-Composition-high-precision-measurement/dp/B0033AGBVQ/

I avoided ones that link to phone, because I tend to keep things like this much longer than any phone support is likely to last, but many people do prefer ones that have phone apps, possibly via the cloud.

I actually ended up buying 3 of them for use in different places, and they do closely agree with each other. I also do occasional skinfold fat measurements (using Jackson Pollock 4-site equation method), and that normally agrees to within 1 percentage point too.

User
Posted 06 Dec 2019 at 09:37
Thanks Andy, I'll check it out
User
Posted 26 Jan 2020 at 14:13
Well this will be my last post for awhile; my head has come to terms with my condition, the appointment with the radiotherapy team should have been cancelled when the Chemo failed, being emotional and hot flushes are now just a part of me.

Now Christmas with its chasing is over life is returning to a nice steady tempo, only check up appointments with Urology and repeating 24 week hormone injection. Time to plan a holiday somewhere warm, as Boots will insure me at a reasonable price.

See you for now

 
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