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My Retzius sparing RARP + NeuroSAFE journey

User
Posted 08 Jan 2020 at 15:15

Yes I am definitely getting obsessive now 😂 will need to digest all of the kind and great advice and make an appointment with the professor. Thanks lots! 

User
Posted 20 Jan 2020 at 13:24

Quick update..Week 8.

Pad free now day and nights. Although I wear. Tena 1/2 when out as don’t want to risk it so the extra reassurance works.

I appear to leak a little after a few large beers/wine which to be honest was expected. Soon as I stop necking it the leaks cease so all positive. 

Morning erections strong and pretty much same as pre op. Very happy with this as assumed this would an aspect I would have to sacrifice post op.

Wounds nearly healed now and still slight amount of abdominal discomfort but don’t really notice it day to day.

First PSA’s due week 10 and Prof review meeting week 12.

Looking forward to getting back to the gym end of Feb :-)

User
Posted 20 Jan 2020 at 16:50

All sounds great TG! We had a consultation with the prof over the weekend, which was re-assuring. 

I just have some more questions that I’d like to double check with you and your inbox is full so I can’t send it through. Anyway that I maybe able to communicate with you in private pls? 

Many thanks again! 

User
Posted 20 Jan 2020 at 17:02

Hey AT

Just cleaned out the inbox :D

TG

User
Posted 29 Jan 2020 at 09:07

Week 9 Update:

Pad free 24/7. I carry one with when out just in case and still opt for dark trousers :-)

Strong urine flow and reasonable bladder capacity ~80% pre-op I’d say but I don’t push it in terms of holding as long thus far.

Get a couple of dribbles if too much wine so just keep it sensible sorts that.

No ED issues at all. Taking 2.5mg tadalafil every 12hrs but sometimes skip a day and no negative effect so this aspect certainly exceeds expectations. 

First PSA bloods next week so fingers crossed <0.1 

User
Posted 29 Jan 2020 at 15:43

That is such great news. What an amazing recovery! I think you owe your surgeon a drink!

Thanks for sharing

Clare

User
Posted 29 Jan 2020 at 18:41
I send Professor Whocannotbenamedhere a small can of WD40 every Christmas so he can treat his pet robot, DaVinci, to a drink!

Cheers, John.

User
Posted 30 Jan 2020 at 00:23

Probably just as deserved John!

User
Posted 06 Feb 2020 at 11:54

Week 10 check in

John, think I need some wd40 as put my back out ðŸĨīðŸĨīðŸĪŠ

Pushed PSA test back a week as put my back out last week and can barely move. Main issue are the usual exercises I do to maintain it and the core is weights in the gym and if it goes (first time in 10yrs) a back brace. Can’t do both for a few weeks yet so necking the pain killers and using the massage machines.

On the plus side it didn’t go during my visit to London for the op 😜

Aside from that continence all fine and wounds healing nicely. 

User
Posted 07 Feb 2020 at 08:03

Sorry to hear about your back Tech guy. I sympathetic as I know how you feel having suffered myself for almost 15 years. Once you stop doing your normal routine it's really difficult to get going again without putting something out of wack. I am slowly building up the walking and light Yoga exercises but really forcing myself to hold back a bit. So far so good. Good to hear your continence is improving which must be a real positive. Hope you get sorted with your back and continue to make progress.

User
Posted 07 Feb 2020 at 09:39

Originally Posted by: Online Community Member

John, think I need some wd40 as put my back out ðŸĨīðŸĨīðŸĪŠ

Symantec, 

I think at your age you might need a grease gun rather than a light oil!

😂😂😂😂😂

Cheers, John.

User
Posted 09 Feb 2020 at 09:58

Cheers Dave

hope you improve and making good progress too.

yes back is a right pain and spending much time laying down. Trying some Pilates today but it’s been beyond that. Tens machine helps now so hopefully will loosen up a bit :-)

TG

User
Posted 09 Feb 2020 at 09:59

John,

The Sauvignon Blanc gun has been active 😛ðŸĪ–ðŸĪ“

TG

User
Posted 13 Feb 2020 at 10:18

Update:

had bloods on 11/2/20: Result <0.01. Pretty happy with that. Now three months chill until next one. A good start that’s for sure. The anxiety was more than I thought but just have to adapt for rest of my life. ðŸŧ

Edited by member 13 Feb 2020 at 10:59  | Reason: Not specified

User
Posted 13 Feb 2020 at 10:48

Good to hear positive news Tech Guy.

All the best going forward.

 

Ange.

User
Posted 13 Feb 2020 at 11:12
Great news and hopefully you will be able to give yourself a break for a couple of months. Good luck with the future. Best wishes Dave
User
Posted 13 Feb 2020 at 14:45

Really good news. 

Ido4

User
Posted 16 Feb 2020 at 12:50

John

Pour yourself a drink today mate. Without you and the folks on here I would never have found the Prof. My outcome thus far has been way beyond expectations. I’d seen the profs website a week before joining here but obviously didn’t know them from adam. When I heard about the positive experiences on this site it was like a lifeline. You guys basically to date transformed what was a tumultuous journey. After PSA results this week and now effectively week 12 post op I feel I can now get on with life. 

TG

User
Posted 17 Feb 2020 at 14:14

your inbox appears full :D. Responding to you message. Will forward later,.

User
Posted 17 Feb 2020 at 14:26
Symantec, do you mean me?

I pour myself a drink whatever the circumstances.

My maxim is "Win or lose, we'll have some booze!"

Best of luck with your continuing recovery. The b****** still owes me 2" 😂😂😂😂🙂😂😂

Cheers, John.

 
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