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My Retzius sparing RARP + NeuroSAFE journey

User
Posted 04 Nov 2021 at 15:09

I see Professor Whocannotbenamedhere is using a new robot in his private clinic, which only involves one laparoscopic puncture in the abdomen, rather than the six or seven wounds that we ended up with a few years ago.

Apparently, this robotic arm has four tentacles which roam your insides to do the business, like something out of ‘Alien’.

I had never heard of this, and only looked at his website as I was recommending the Prof to a sixty year old friend, who asked his GP for his first ever PSA test, who with a cursory “Have you got any symptoms?”, and thus told him to bugger off!

My mate paid for a private test by post, and the upshot is he has cancer G3+5=8, which might have killed him if left to the care and ministrations of his GP.

I believe a formal complaint is in train.

Cheers, John.

Edited by member 06 Nov 2021 at 12:40  | Reason: Not specified

User
Posted 04 Nov 2021 at 16:14

I wonder, John, whether the robot you refer to is the one made in Cambridge? It is called Versius and is made by CMR Surgical. Though that one does make 3 punctures and has 3 arms.

I mentioned this robot to the surgeon at Addenbrookes when I attended the hospital earlier today and asked whether they had been offered a discount on obtaining one or two.  His answer was: "Not yet"

 

 

Ivan

User
Posted 04 Nov 2021 at 16:45

Yeah might be the CMR or the new DaVinci single port system. Spoke to the prof about it last year as I have more that a passing interesting with robotics and machine learning. Will ask the Prof tomorrow if I remember as catching up with PSA results.

User
Posted 04 Nov 2021 at 16:48

All to common with PCa…if I had a quid for ever time I’ve been told this is the best cancer to have and very treatable..… 🤷🏼‍♂️😵‍💫🥶 Bottom line it’s still cancer and even at type 3+3 exhibits all the traits and can metastasise. Learning this on my own looking at various leading research papers make me act fast. The histology would say I’d made a timely decision 😵‍💫

User
Posted 06 Nov 2021 at 07:15

Originally Posted by: Online Community Member

Quarterly PSA bloods done on the 28th Oct…this time they got blood out of the old stone with ease.

Result was <0.006 so can’t ask for better than that as pretty much the two year post RARP point. Will touch base with the Prof at the end of the week🍻😎

 

Brilliant news TechGuy! Very happy for you!

I have my 2nd post op PSA coming up in early Dec and starting to get nervous. They only tested mine down to <0.03 last time. Do you think I should be asking for the ultra sensitive test like yours down to <0.006?

User
Posted 06 Nov 2021 at 08:32

Hi Jeremys 

It’s up to you really mate. Ask for the blood report maybe as my GP would always tell me <0.01 as a number but the report gives more viability.  personally I would just stick with the test you have. I had a couple of blips with data with was probably down to machine calibration or even assay used. Expected at these sensitivity levels I think but causes unnecessary worry. In the US I think the general threshold for BCR is 0.03 but more about how the numbers move as should always be the case.

Simon

User
Posted 06 Nov 2021 at 10:12

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Quarterly PSA bloods done on the 28th Oct…this time they got blood out of the old stone with ease.

Result was <0.006 so can’t ask for better than that as pretty much the two year post RARP point. Will touch base with the Prof at the end of the week🍻😎

 

Brilliant news TechGuy! Very happy for you!

I have my 2nd post op PSA coming up in early Dec and starting to get nervous. They only tested mine down to <0.03 last time. Do you think I should be asking for the ultra sensitive test like yours down to <0.006?

 

No. Ultrasensitive PSA is becoming discredited anyway, if your hospital provides results to 0.03 then that is the assay of their equipment, and what would you gain now? If your reading came back as 0.026 this week and 0.029 next week, what would that tell you? It could have been 0.031 last time for all you know.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Nov 2021 at 11:10

Yeah I think the term is ‘noise’. Personally I like the raw data because that’s the stuff I use irl and without it I blue screen. But needs to be taken in context or can add to anxiety….as I’ve demonstrated 😵‍💫🤪

There is a lot to be said for Bollinges(John) approach and getting his <0.1 result which is more than enough in real terms. 🍻

User
Posted 06 Nov 2021 at 12:44

It’s the Da Vinci single port system, using an add-on gadget to an existing Da Vinci ‘octopus’  terminal.

Quite an advance!

Cheers, John.

User
Posted 06 Nov 2021 at 18:26

Hey John 

great convo with the Prof and he sends his regards and thanks for new leads. Apparently the new Da Vinci SP system isn’t in Europe at the moment but hopefully soon 🤖🤓

 

 
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