I don’t want to over complicate and bore people, so i will try and explain this as quickly as possible. ( and also writing isn’t my strongest attribute 😂)
Basically about 16 months ago I started to pee a lot (20-30 times a day )
what did I do ?
* went to g.p who did the obvious thing of testing urine.... this showed a very slight trace of an infection. ( antibiotics used ) 3-5 weeks no improvement
This is were things got slightly more complex
The peeing continued to be very serious, testicals started to hurt, penis became very very sore, bottom, lower back etc... things were getting rather bad at this point, 8-12 weeks in, constant no sleep, a young family long hours at work started to add up.
Next steps..... I will do in bullet points to speed this up
Multiple hospital visits
* sleeping tablets
* pain tablets
* STD tests ( negative)
* blood tests 5-10 times
* urinalysis 5-10 times ( negative )
* stopped playing sports, football cycling etc
This continued on and off over the following months.
3 private urologists £250 a time
I went private to have an cystoscopy
nerve blocking injections
Nutrition based diet
herbal tablets from China
The costs continued, every time I saw a gp or nurse I was told this was all in my head.
13-14 months passed.....
My mental state was very very fragile, snappy at work and at home.
I have to be honest, I reached breaking point on several occasions.... I think it’s hard for men to talk about but...... thoughts started to get in my head about ending it all and at one point i came close, if it wasn’t for the thought of my two young girls not knowing there dad it might of happened.
So I decided to try and keep fighting on with the help of my family.
I started to read more and more into the symptoms, and did that awful thing that you shouldn’t do and self diagnosed myself from google.... this seemed like a long shot,
But to be honest everyone else had given up so I had limited options.
I found a clinic in London which specialises in Prostate related issues, and booked in ASAP.
On my first visit, they did the following.
- full urinalysis sent away to lab
- Blood tests
- Prostatic fluid culture
1 week later I finally had the answer that he taken 16 months out of my life....
A diagnosis of chronic bacterial prostatitis!!!
They found a bug called Staphylococcus aureus
I couldn’t tell you the relief I felt that something had been found,
Apparently this bug lives harmlessly on the outside of the body, but when it get in causes all sorts of problems.
Not one person or any test had picked this up..
My treatment plan, antibiotics, shockwave treatment and muscle relaxers.
8 weeks later and as I write this message I am 95% pain free and peeing a normal 4-7 times a day,
The battle is not yet over as I am still on antibiotics for another infection, but there seems to be hope.
Why have I wrote this? I suppose to try and give others hope and belief you may one day get the answer you are looking for.
This is a horrible horrible illness to have I would not wish it on my worst enemy,
It has nearly broke me mentally and financially
But I’m still here 🤛
Best wishes Calum ( East Yorkshire )