Last posted about 8 months ago, so an update is well overdue.
I had RARP at the beginning of June. The physical recovery went well. Dry(ish) pretty much straight away after removal of catheter. Pelvic floor exercises helping to reduce the accidents when coughing, rising from a chair etc.. I did note that after a short period of forgetting to do them, the accidents began to increase again, so I now ensure I do my 3 sets per day and all seems fine!
Mentally I'm a bit up and down, although mostly up. My first 2 PSA tests came back at <0.1, which is good news.
I had my 3rd test on Friday (20th Dec) and I must admit, I'm wobbling a bit waiting for the result. My pathology showed that I was Gleason 7 (3+4), my pc was quite extensive measuring 36 x 27 x 21mm and was right up against the edge of the prostate, although not extending out of it. I have a number of positive margins around the bladder neck area, totalling approx 33mm (in his most recent letter to my GP, the consultant stated 30ml. not sure if this is a typo, and he meant mm, I think he dictates letters over the phone to his PA). I asked him, given my results, what are the chances of a biochemical recurrence (BR)? He stated about 50% (although I'm not sure over what time period, I think he said within the next 5 years).
Keeping fingers crossed I don't get a BR, but would be interested to hear from anyone on here have similar experience, especially around the bladder neck, and what next steps they took given that situation?
I must say that I have found the openness, honesty and support shown by everyone on this forum really useful, and it really helps when looking for advice and guidance, and read the stories of others in this group.
Best wishes for the festive period,