Hi, this is my first post. Looking for some advise on what we should be doing next.
My husband was diagnosed in Dec 18, age 49.
Nov 17 PSA was 3.4, he was tested due to family history. He had exam, but advised against biopsy, they weren’t concerned. Tested again Sep 18, PSA 4.1, biopsy found 5/5 cores left side only, Gleeson 4+3=7
Feb19, robotic assisted laporoscopic radical prostatectomy, partial nerve sparing. small positive margin found,
Mar 19, 6 weeks post op, PSA 0.6, Apr 19, PSA 0.7
No PET scan (choline) available in Aberdeen, went on waiting list for Edinburgh. (6 month wait)
June 19, PSA dropped to 0.3, July 19, had PSMA Pet scan at London bridge (consultant said worth having done – private health paid). PSMA scan showed nothing.
Sept 19 PSA 0.3, Nov 19 ended 33 sessions of salvage radiotherapy.
Jan 20, 6 weeks post radiotherapy PSA now up to 1.0. Consultant “at a loss as what’s going on”.
9 lymph nodes were taken during op – all clear.
They suggested that another PSMA scan may pick up something now readings are higher, potentially other nodes affected but it would be unusual, after being discussed at consultants meeting today they want an urgent CT bone scan.
Is it worth asking for referral for private PSMA scan. Also why don’t they do a bone scan prior to radiotherapy?