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Coping after catheter removal

User
Posted 25 Jan 2020 at 20:57

Had a radical prostatectomy 2 weeks ago and suffering a bit of leakage with various movements such as get out of chair bending down etc. Interested to know what to expect going forward.

User
Posted 25 Jan 2020 at 23:17

Hard to tell so soon after surgery, some guys are dry immediately others in a few days and some aot longer. Standing and particularly bending will cause a leak. Have you been doing pelvic floor exercises? Tense the pelvic floor muscles before you stand and get up slowly, try to keep the muscles tense until you get to the toilet. A way of testing your control is to see if you can stop the flow mid stream, don't do it on a regular basis.

Hope things improve, but it is very early days to a assess how things will develop.

You can also expect small amounts of blood and debris in the next few weeks, I emphasize the words small amounts.

Hope all goes well.

Thanks Chris

 

User
Posted 26 Jan 2020 at 08:53

I'm almost 4 months post op and still suffering from leakage when standing/walking. Mens depend pants are the most comfortable from Amazon. I also have a prescription for conveen sheaths which i use when travelling distances for my job.

User
Posted 29 Feb 2020 at 21:40

Hi all. I'm from Canada, but found this site a couple of years ago.

I had RP mid-December, and the first few days had lots of leakage as I found it hard to completely empty the bladder.  It felt like I was always going to the washroom, and at night, even after avoiding drinking after dinner, there would be lots of leakage the first few days;  and stress incontinence when coughing or changing positions would cause leakage.   But by one month post-surgery, I was only using pads for security with some very light dribbling at times.  So fairly quick recovery for me.   But I had years of yoga behind me (which helps with core and pelvic floor muscles).

Some suggestions.
* Pre-surgery, I went to a physio clinic to see a physiotherapist that specializes in dealing with pelvic floor issues for men (prostate) and women (post- child birth). While Kegels may seem simple, it was helpful to see a specialist to be sure I was doing Kegels properly, an.  It is not just which muscle to tighten,  but to learn to relax them as well.   I was give for some suggested exercises. In particular, stress incontinence is the hardest one to overcome, and she suggested trying to practice tightening the pelvic floor before coughing. I found it helpful to see a specialist. I didn't need to see her again post surgery. If you can find a physiotherapist who specializes in pelvic floor issues, they can certainly help.

* One great little tip that I got from my cancer center in Toronto (the top one in Canada) is to buy "newborn diapers" for pads, because they are more absorbent, less bulky, and less expensive than products marketed to adults. At first I couldn't understand why they would suggest newborn diapers, but they explained to me how to use them when catheter was removed. Just cup the penis and the scrotum with the newborn diaper and the diaper pads will tie the back (behind scrotum) to the front to produce a very good fitting, and extremely absorbent pouch that's not too bulky. Here's link, but link doesn't say too much: https://www.uhn.ca/PatientsFamilies/Health_Information/Health_Topics/Documents/Incontinence_Products.pdf
-- newborn diapers that are wrapped only around the penis/scrotum are also far easier to change than adult diapers.

 

Edited by member 29 Feb 2020 at 21:48  | Reason: Not specified

User
Posted 02 Mar 2020 at 13:11
Everyone is different, but I have been improving so I hope you'll find my story a little bit reassuring. I am 3 months post op and currently only have very occasional stress incontinence leakage. I am using a pad inside my underwear during the day, and pull up pads at night just for convenience. This is a vast improvement on how I was a month ago, when I was going through perhaps three pads in a day, and could hardly move without leaking. I have been doing my pelvic floor exercises regularly (i find the NHS SqueezyMan app is useful as a reminder). best of luck for your recovery
User
Posted 02 Mar 2020 at 16:18

My surgeon said most men are dry in 6 months.   I beat that by a couple of months.  I was always dry at night.  In the early days walking caused leaks that you're not conscious of until the pad fills and it leaks.  Carry a spare.   It just got better week by week.  I bought a load of Boots pads and ended up giving them to a charity shop when it suddenly got a lot better.  It felt cold going out with no pads those Boots one's are thicker than the others.  

I always reply with this standard info, apologies to anyone who's read it 20 times before:

'Normal Incontinence Progress

A piece on a website said at first you're dry in bed and deteriorate through the day.  Over time the deterioration slows so you might be dry in the morning but wet in the afternoon and then dry all day, or at least relatively dry.  Most say 3 - 6 months for dry, but not everyone.'

 

I'm now over 3yrs post op and can still leak a bit occasionally such as bending down to untie a shoelace when you get back from a walk.  Also after you finish at the toilet and pull up your zip, you need a good technique for that one.  I didn't know it was a common problem till the hospital sent out a questionnaire and included that in the list of do I suffer from...... after the op.

I've never been good at doing Kegels etc.

 

 
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