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Lymphedema in groin

User
Posted 26 Jan 2020 at 15:18

Has anyone experienced Lymphedema in the groin after prostate surgery including lymph node dissection.  I am desperate to seek advice on how best to deal with this before it spreads to my legs.  Thank you for any advice that can be shared

User
Posted 26 Jan 2020 at 21:54

Contact your clinical nurse specialist (Macmillan nurse). They will refer you to their Lymphedema clinic.

User
Posted 26 Jan 2020 at 22:17
It depends on how long ago your surgery was, and sometimes, where you live.

If you have been allocated a urology nurse you could give him / her a call but in many areas, it will be your GP who needs to make the referral to the lymphodema clinic (if this exists in your region). If there is no lymphodema clinic in your area and you don't have an allocated nurse, you should discuss your concerns at your next appointment with the surgeon.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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